Postby TeamCM » Fri Jan 27, 2017 1:14 am
Hi Mike,
I am sorry your are experiencing this. You are not being impatient at all.
I would call every day, several times a day if necessary. I would also set up appointments with other oncologists/facilities. You don't have to go if your original plan works out. I find that having several back up plans makes it a little easier when waiting for the next intervention.
I am not patient about anything for my guy when it comes to his illness or treatment. The times I have been, stuff was missed, follow up appointments were not made, certain issues fell through the cracks and metatisies spread. I learned early on that no one is going to make sure you are getting what you need (as far as your trearmenr goes)but you and your loved ones. I sure have upset medical staff along the way. But if it helps my guy then that's ok. I'm not rude but I do hold his doctors accountable for the treatment plan they have recommended.
So to answer the question "how patient should you be"? My answer is not st all.
This is your life. The cancer sure isn't patient. You shouldn't have to be either.
My heart goes out to you... I wish you the best.
Caregiver to my Guy
DX 4/2015 @ 37
Stage IV Colon Cancer
Colon Resection 4/17/2015, 2/38 Lymph Nodes, 4-6 Liver Mets
Folfox 5/18/2015
Liver resection 8/2015
2 Liver ablations 1/2016, peri mets
Y-90 3/2016 & 4/2016
Failed HIPEC 6/2016, metastasies to spine, additional liver mets, peri mets increased significantly
Folfiri 8/2016
Scans 10/2016 revealed shrinkage, jaundice, chemo reduced
Scans 12/2016 revealed growth, hospitalization
Biliary drain & stents placed 1/2017 but jaundice persists