Tanya - how are you?

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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Tanya - how are you?

Postby jhocno197 » Fri Jun 24, 2016 9:16 pm

Just wanted to check in on you.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
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Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Tanya - how are you?

Postby Lydia666 » Fri Jan 20, 2017 4:09 pm

I do wonder how she is. Anyone know?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Tanya - how are you?

Postby jhocno197 » Fri Jan 20, 2017 6:46 pm

I haven't heard anything.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Top
ebv60
Posts: 45
Joined: Thu Jan 24, 2013 1:22 pm

Re: Tanya - how are you?

Postby ebv60 » Sun Jan 22, 2017 12:02 pm

jhocno ..I don`t have information on Tanya but would like to ask you about the treatment your are with Lonsurf? Hope it is ok with you ? As you can see my wife is on somewhat the same treatment you are (see signature) . Her tumors increased in size 20% while on Stivarge from 6/16 to last scan on 12/28/16. Tumors in lung and liver .. Was wondering how your treatment are doing, and if you have had a scan yet.

I read almost everyday but don`t post much ..Thank you
to DW 6/12 stage 4
6/12 colon resection, liver Mets
Folfox & Folfiri till 4/13
liver resection Mayo 5/13 Clear margins
mop up chemo
NED till 9/14
cancer complete hysterectomy,
CEA climbing 12/14
1/15 scans, tumors return
1/15 Mayo for surgery; need shrinkage before surgery
Folfiri w Erbitux
break over Christmas, rash from Erbitux
1/16 scan tumors growing, liver, lungs, lymph nodes involvement
Folfiri w Avastin 1/16
Stivarga 6/16
lonsurf 1/17
Scan 6/17 tumors growing.
At peace 7/17
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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Tanya - how are you?

Postby jhocno197 » Sun Jan 22, 2017 10:51 pm

ebv60 wrote:jhocno ..I don`t have information on Tanya but would like to ask you about the treatment your are with Lonsurf? Hope it is ok with you ? As you can see my wife is on somewhat the same treatment you are (see signature) . Her tumors increased in size 20% while on Stivarge from 6/16 to last scan on 12/28/16. Tumors in lung and liver .. Was wondering how your treatment are doing, and if you have had a scan yet.

I read almost everyday but don`t post much ..Thank you



It's actually my husband who is on it. He started his third cycle Monday. So far he has had to have a blood transfusion on day 15 of each cycle. He had to have an emergency CT on 12/25, and another emergency CT yesterday; it said the tumor is unchanged, so it looks like it's keeping him stable, at least for now.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Top
ebv60
Posts: 45
Joined: Thu Jan 24, 2013 1:22 pm

Re: Tanya - how are you?

Postby ebv60 » Mon Jan 23, 2017 10:10 am

jhocon: Thanks very much on the feedback! My wife is done with her first cycle, blood test today ..I 'am hope for the best for your husband on his treatment
to DW 6/12 stage 4
6/12 colon resection, liver Mets
Folfox & Folfiri till 4/13
liver resection Mayo 5/13 Clear margins
mop up chemo
NED till 9/14
cancer complete hysterectomy,
CEA climbing 12/14
1/15 scans, tumors return
1/15 Mayo for surgery; need shrinkage before surgery
Folfiri w Erbitux
break over Christmas, rash from Erbitux
1/16 scan tumors growing, liver, lungs, lymph nodes involvement
Folfiri w Avastin 1/16
Stivarga 6/16
lonsurf 1/17
Scan 6/17 tumors growing.
At peace 7/17
Top
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