An Original Member

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Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

An Original Member

Postby Nichoebe » Fri May 27, 2016 6:27 am

I was just checking in on Colorectal Cancee Survivors Group and while following his latest journey I unfortunately found an original member here Kenny Thompson is at home and has stopped all treatment and hospice has entered his life I really am so pissed off at this cancer "war" we're all in we keep losing soldiers and it sucks let's all keep Kenny and his family in our thoughts and prayers this really sucks
Stay Strong
Fight The Fight
God Bless All Of Us
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

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Jacques
Posts: 581
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: An Original Member

Postby Jacques » Fri May 27, 2016 9:27 am

Is this the Kenny Thompson (now age 51) who was DX'd three years ago and who joined this forum originally on Friday July 12, 2013 at age 48?
Last edited by Jacques on Fri May 27, 2016 10:30 am, edited 1 time in total.

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Bev G
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Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: An Original Member

Postby Bev G » Fri May 27, 2016 9:38 am

Jacques wrote:Is this the Kenny Thompson (now age 51) who was DX'd three years ago and who joined this forum originally on Friday July 12, 2013 at age 48?



Unfortunately, yes.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Re: An Original Member

Postby Maddielolo » Fri May 27, 2016 12:04 pm

Will be thinking of Kenny and his family...

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: An Original Member

Postby ams5796 » Fri May 27, 2016 12:06 pm

Thanks for letting us know. I was wondering about Kenny. This makes me very sad. I will be thinking of him.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: An Original Member

Postby jhocno197 » Fri May 27, 2016 12:25 pm

:( :( :( :( :( :(
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

bitchslapped
Posts: 1534
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: An Original Member

Postby bitchslapped » Fri May 27, 2016 12:41 pm

Never get used to reading news like this. My thoughts are w/Kenny & his family.
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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CRguy
Posts: 10293
Joined: Sun Feb 10, 2008 6:00 pm

Re: An Original Member

Postby CRguy » Fri May 27, 2016 12:42 pm

Sending Peace and Harmony
on the Journey, KT

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Nik Colon

Re: An Original Member

Postby Nik Colon » Fri May 27, 2016 1:06 pm

No! I can't believe it :(

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: An Original Member

Postby juliej » Fri May 27, 2016 5:01 pm

Thanks for the update, Mike.

It seems wrong that someone like Kenny who has such gusto for life can be in this situation. :evil: I was hoping for a different outcome. A miracle. Something. Kenny is a wonderful, complex, creative, humorous, and strong person and I'm proud to call him my friend. Those of you on FB, please tell him that Juliej sends her love.
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

mariane
Posts: 687
Joined: Sun Sep 13, 2015 6:16 pm

Re: An Original Member

Postby mariane » Fri May 27, 2016 5:05 pm

I am sorry. :(
mom of now 12 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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nitebreez
Posts: 79
Joined: Sun Mar 24, 2013 3:37 pm
Location: West Central Florida
Contact:

Re: An Original Member

Postby nitebreez » Fri May 27, 2016 5:47 pm

Ohhhh, "Kenny Twisted". What a really crazy, and lovely sense of humor you had. I have missed seeing your posts here,....
T4a-Nx-M0 cc (perforated colon) Septic shock
2/19/13 emergency surgery/colostomy
4/13/13 colostomy reversed (reconnected!)
1/22/14 folfox completed
3/3/14 CT Scan NED
4/15/16 CEAs still low

Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

Re: An Original Member

Postby Nichoebe » Fri May 27, 2016 6:18 pm

I came to the forum after Kenny and always enjoyed his posts .Man was always positive and knowledgable about whatever topic he was speaking of. I knew he had lung growths last he posted he was going for immunotherapy more or less I'm not quite sure if it was exactly immunotherapy but along those lines .Then nothing for quite some time then his wife posted how he was thinking of everyone but couldn't speak his thoughts as he now had growths on his brain. I knew it was not going to be a happy ending, but I also thought he would pull a trick or two out of his sleeve , but not this time. I'm pretty pissed off and bummed out he and I are same age and I always respected his posts and thought process. After coming on board I just can't count how many people have gone and most times out of nowhere I was blown away when Voxx moved on as he was posting one week and then poof gone or the woman from Italy and Iceskater the young kids in there twenties . This just sucks and now one must brace themselves for what's next. Sorry to be a bummer but that's where I'm at lately taking motorcycle run with the boys tomorrow and I sure hope that gets me out of this funk
Stay Strong
Fight The Fight
God Bless
And To Kenny Godspeed I Hope There's More To It On The Other Side
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

Nik Colon

Re: An Original Member

Postby Nik Colon » Fri May 27, 2016 6:30 pm

Yes, Kenny always put a smile on my face. I also talked to him privatly quite a few times. I considered him a great friend (even tho I never met him in person). I am so sad he is in this situation. He is such an amazing person.

DarknessEmbraced
Posts: 3584
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: An Original Member

Postby DarknessEmbraced » Fri May 27, 2016 8:19 pm

I'm so sorry for Kenny, his friends and family! :(
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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