At my doctor appointment 2 weeks ago I was questioning her about possible surgical options after I get my next CT scan. Originally she said she wanted to start with chemo to see if things shrink.
All we know for sure from my first scan in October and a diagnostic laparoscopy is there is thickening of the colon wall in the transverse colon, and that there are tumors on my perinotneum and on one ovary. So I asked about HIPEC, hysterectomy, and colon resection. She kinda looked at me crazy and asked me what I meant when I mentioned HIPEC. She actually told me she didn't know enough about it and that she'd research it.
So I go back and see her today and have my 6th chemo treatment. She said she looked into HIPEC and that depending on what the scans show it's definitely a possibility, but that she would want me to go someplace that has a lot of experience in doing the procedure. My scan is next Friday, February 5th, and I'll get the results on the 8th. I will have more chemo on the 8th, but I do know that I have to wait 6 weeks before any surgery because she's got me on Avastin right now. So I have some time for a surgical consult I guess.
My question is does anyone have any insights as to someplace in the Midwest - I'm in between Milwaukee and Chicago that would be a good choice for a surgical opinion? She said she doesn't want me at Froedert because the dr that specialized in HIPEC is leaving that hospital. I wasn't impressed with Froedert anyways because that's where I first had my initial onc appointment and the dr basically told me there would be no cure for me so I was not comfortable with him treating me at all.
Even if I had to travel further away I will do it - anything I can do to beat this I'm willing to try.
Surgical opinion options?
-
michellecairn
- Posts: 80
- Joined: Wed Dec 23, 2015 7:09 pm
- Facebook Username: Michelle Pulera
- Location: Kenosha, Wisconsin
Surgical opinion options?
Age: 39(38 at dx), married, mom of 2
Stage IV
DX: 10-7-15 colon cancer (signet ring cell)
CEA: 10-4-15: 9.5, 2-8-16: 42.5, 3-7-16: 22.6, 5-26-16: 18.8, 7-27-16: 14.3, 10-20-16: 21.1
abnormal MSH6 and BARD1
KRAS: wild type
MSI High
Lynch positive
11-16-15: 1 round Folfirinox/5FU, 5 rounds folfox/5FU , 4 with Avastin
2-8-16: Chemo not working
3-7-16: back to folfox/Avastin/5FU
3-24-16: Keytruda
2-23-17: FAILED Keytruda
3-2-17: Erbitux
3-30-17: Erbitux + Irinotecan
5-25-17: FAILED Erbitux + Irinotecan
Stage IV
DX: 10-7-15 colon cancer (signet ring cell)
CEA: 10-4-15: 9.5, 2-8-16: 42.5, 3-7-16: 22.6, 5-26-16: 18.8, 7-27-16: 14.3, 10-20-16: 21.1
abnormal MSH6 and BARD1
KRAS: wild type
MSI High
Lynch positive
11-16-15: 1 round Folfirinox/5FU, 5 rounds folfox/5FU , 4 with Avastin
2-8-16: Chemo not working
3-7-16: back to folfox/Avastin/5FU
3-24-16: Keytruda
2-23-17: FAILED Keytruda
3-2-17: Erbitux
3-30-17: Erbitux + Irinotecan
5-25-17: FAILED Erbitux + Irinotecan
Re: Surgical opinion options?
I hope you find someone up there
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
-
Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: Surgical opinion options?
Hey Michelle, I had a similar spread to you! Sorry I can't help with locations but I hope you find one that fits for you.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
Re: Surgical opinion options?
I realize these docs aren't near you, but -- after doing much digging on these forums and elsewhere -- these are the HIPEC docs we are consulting for my dad:
1. Dr. Sardi at Mercy in Baltimore, MD https://mdmercy.com/centers-of-excellen ... o-sardi-md
2. Dr. Levine at Wake Forest http://www.wakehealth.edu/Faculty/Levine-Edward-A.htm
3. Dr. Bartlett at U Pitt http://www.upmccancercenter.com/network ... m?id=21716
We also spoke with the office of Dr. Sugarbaker, who invented the surgery. He is in Washington, DC. His age cut off is 60 (or was it 65?) so my 70-year old dad was a no-go for him, but his clinical coordinator (who also happens to be his wife) was very helpful in helping me understand what I need to know and what my next steps should be as we consider HIPEC with other surgeons.
Our thought was if we are going to even think about considering such a radical surgery, we are going to talk with docs who have successfully performed said surgery many, many times. We have family near Washington, DC so that helped influence our Mid-Atlantic-ish line up.
I hope our HIPEC list will help your research and/or encourage others to ID docs in your area.
-Snapfish
1. Dr. Sardi at Mercy in Baltimore, MD https://mdmercy.com/centers-of-excellen ... o-sardi-md
2. Dr. Levine at Wake Forest http://www.wakehealth.edu/Faculty/Levine-Edward-A.htm
3. Dr. Bartlett at U Pitt http://www.upmccancercenter.com/network ... m?id=21716
We also spoke with the office of Dr. Sugarbaker, who invented the surgery. He is in Washington, DC. His age cut off is 60 (or was it 65?) so my 70-year old dad was a no-go for him, but his clinical coordinator (who also happens to be his wife) was very helpful in helping me understand what I need to know and what my next steps should be as we consider HIPEC with other surgeons.
Our thought was if we are going to even think about considering such a radical surgery, we are going to talk with docs who have successfully performed said surgery many, many times. We have family near Washington, DC so that helped influence our Mid-Atlantic-ish line up.
I hope our HIPEC list will help your research and/or encourage others to ID docs in your area.
-Snapfish
Daughter to 70-year old father dx 2015-Sept-28: Stage IV adenocarcinoma with signet ring cell features
Sigmoid colon primary with peri mets
MSS; RAS wild-type; mutation in exon 8 of p53
2015-Oct: Began FOLFOX-6 at MDA; CEA was 15.1 at baseline
2016-Feb: CEA 5.7; 10 full rounds of FOLFOX-6 completed
2016-Mar-3: Began FOLFIRI
chemo, chemo, chemo
2017-Jan: Total of 29 cycles of chemo down. Back on FOLFOX again after FOLFIRI fail. CEA now 118.
Sigmoid colon primary with peri mets
MSS; RAS wild-type; mutation in exon 8 of p53
2015-Oct: Began FOLFOX-6 at MDA; CEA was 15.1 at baseline
2016-Feb: CEA 5.7; 10 full rounds of FOLFOX-6 completed
2016-Mar-3: Began FOLFIRI
chemo, chemo, chemo
2017-Jan: Total of 29 cycles of chemo down. Back on FOLFOX again after FOLFIRI fail. CEA now 118.
-
Nik Colon
Re: Surgical opinion options?
Here is a couple links I found. First link inudes Chicago and others. I live in MN so I added a couple links from there since you live close.
http://www.cancercenter.com/treatments/hipec/
MN
http://surgicalspecialistsmn.com/oncolo ... ntestinal/
U OF MN
http://www.surg.umn.edu/divisions/surgi ... /index.htm
http://www.cancercenter.com/treatments/hipec/
MN
http://surgicalspecialistsmn.com/oncolo ... ntestinal/
U OF MN
http://www.surg.umn.edu/divisions/surgi ... /index.htm
Last edited by Nik Colon on Thu Jan 28, 2016 1:02 am, edited 5 times in total.
Re: Surgical opinion options?
Snapfish wrote:I realize these docs aren't near you, but -- after doing much digging on these forums and elsewhere -- these are the HIPEC docs we are consulting for my dad:
1. Dr. Sardi at Mercy in Baltimore, MD https://mdmercy.com/centers-of-excellen ... o-sardi-md
2. Dr. Levine at Wake Forest http://www.wakehealth.edu/Faculty/Levine-Edward-A.htm
3. Dr. Bartlett at U Pitt http://www.upmccancercenter.com/network ... m?id=21716
We also spoke with the office of Dr. Sugarbaker, who invented the surgery. He is in Washington, DC. His age cut off is 60 (or was it 65?) so my 70-year old dad was a no-go for him, but his clinical coordinator (who also happens to be his wife) was very helpful in helping me understand what I need to know and what my next steps should be as we consider HIPEC with other surgeons.
Our thought was if we are going to even think about considering such a radical surgery, we are going to talk with docs who have successfully performed said surgery many, many times. We have family near Washington, DC so that helped influence our Mid-Atlantic-ish line up.
I hope our HIPEC list will help your research and/or encourage others to ID docs in your area.
-Snapfish
A family member of mine is fixing to go to Baltimore with a "difficult" surgery around appendix. I got that much out of her. Suppose to be 1 of 5 drs that can do it. I hope your #1 is hers. im sure its not HIPEC (unless she's not telling me) but I've seen a few surgeries around appendix on here lately. I think she's hoping for no surgery but I don't think they will leave even a non-cancerous polyp in there. I hope not anyways : ( good luck everyone.
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
-
O Stoma Mia
- Posts: 1709
- Joined: Sat Jun 22, 2013 6:29 am
- Location: On vacation. Off-line for now.
Re: HIPEC topics on ColonTalk
I don't have any personal experience with HIPEC, but there are a number of members here who have looked into this topic in recent months. Here are a few of the relevant threads:
Surgical opinion options? (January 2016) -- (the current thread)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53554
hipec (October 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52696
HIPEC (September 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52432
HIPEC (ers) - Compare Stories (August 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52326
Turned down for HIPEC (July 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52086
HIPEC (July 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=52069
HIPEC (June 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51858
HIPEC (May 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51336
HIPEC and QOL (May 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=51249
Looking for a HIPEC surgeon (April 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=50963
Peritoneal mets, HIPEC, EPIC (March 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=50479
Update on Hipec progress (March 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50429
HIPEC treatment side effects (February 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50209
Best Doctors For HIPEC (February 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50079
Chemo After HIPEC
http://coloncancersupport.colonclub.com/viewtopic.php?t=48830
Need advice (hipec) (October 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=48401
Chemo after HIPEC (August 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47573
How old were you when you had HIPEC? (August 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47488
Liver resection and HIPEC surgery is on (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=47356
Limitations of Scan and Exploratory Laparoscopy After HIPEC (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47077
Stage 4 from India - looking for HIPEC experiences (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=47055
information and questions about HIPEC (February 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=45757
HIPEC as early as next week?? Whaat!!!
(May 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46470
Week after HIPEC (August 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=43305
HIPEC scheduled for the 29th (July 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=42893
Back to reality - and HIPEC question (April 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=41469
HIPEC-Is it always all or nothing? (January 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=39326
HIPEC (November 2012)
http://coloncancersupport.colonclub.com/viewtopic.php?t=37834
Radiation VS HIPEC (September 2012)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=36324
HIPEC question (April 2011)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=21397
If you've had HIPEC, please help (November 2010)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=16029
New to Forum – HIPEC concerns (November 2008)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=5149
-
Surgical opinion options? (January 2016) -- (the current thread)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53554
hipec (October 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52696
HIPEC (September 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52432
HIPEC (ers) - Compare Stories (August 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52326
Turned down for HIPEC (July 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52086
HIPEC (July 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=52069
HIPEC (June 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51858
HIPEC (May 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51336
HIPEC and QOL (May 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=51249
Looking for a HIPEC surgeon (April 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=50963
Peritoneal mets, HIPEC, EPIC (March 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=50479
Update on Hipec progress (March 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50429
HIPEC treatment side effects (February 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50209
Best Doctors For HIPEC (February 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50079
Chemo After HIPEC
http://coloncancersupport.colonclub.com/viewtopic.php?t=48830
Need advice (hipec) (October 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=48401
Chemo after HIPEC (August 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47573
How old were you when you had HIPEC? (August 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47488
Liver resection and HIPEC surgery is on (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=47356
Limitations of Scan and Exploratory Laparoscopy After HIPEC (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47077
Stage 4 from India - looking for HIPEC experiences (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=47055
information and questions about HIPEC (February 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=45757
HIPEC as early as next week?? Whaat!!!
(May 2014)http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46470
Week after HIPEC (August 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=43305
HIPEC scheduled for the 29th (July 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=42893
Back to reality - and HIPEC question (April 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=41469
HIPEC-Is it always all or nothing? (January 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=39326
HIPEC (November 2012)
http://coloncancersupport.colonclub.com/viewtopic.php?t=37834
Radiation VS HIPEC (September 2012)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=36324
HIPEC question (April 2011)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=21397
If you've had HIPEC, please help (November 2010)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=16029
New to Forum – HIPEC concerns (November 2008)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=5149
-
-
Bev G
- Posts: 5856
- Joined: Thu Jan 07, 2010 11:19 pm
- Facebook Username: Bev Golde
- Location: Quechee, VT
Re: HIPEC topics on ColonTalk
O Stoma Mia wrote:I don't have any personal experience with HIPEC, but there are a number of members here who have looked into this topic in recent months. Here are a few of the relevant threads:
Surgical opinion options? (January 2016) -- (the current thread)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53554
hipec (October 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52696
HIPEC (September 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52432
HIPEC (ers) - Compare Stories (August 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52326
Turned down for HIPEC (July 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52086
HIPEC (July 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=52069
HIPEC (June 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51858
HIPEC (May 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51336
HIPEC and QOL (May 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=51249
Looking for a HIPEC surgeon (April 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=50963
You are SO awesome, OSM...so kind with your time! Have I thanked you lately? THANK YOU!!!
Peritoneal mets, HIPEC, EPIC (March 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=50479
Update on Hipec progress (March 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50429
HIPEC treatment side effects (February 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50209
Best Doctors For HIPEC (February 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50079
Chemo After HIPEC
http://coloncancersupport.colonclub.com/viewtopic.php?t=48830
Need advice (hipec) (October 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=48401
Chemo after HIPEC (August 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47573
How old were you when you had HIPEC? (August 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47488
Liver resection and HIPEC surgery is on (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=47356
Limitations of Scan and Exploratory Laparoscopy After HIPEC (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47077
Stage 4 from India - looking for HIPEC experiences (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=47055
information and questions about HIPEC (February 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=45757
HIPEC as early as next week?? Whaat!!!
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46470
Week after HIPEC (August 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=43305
HIPEC scheduled for the 29th (July 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=42893
Back to reality - and HIPEC question (April 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=41469
HIPEC-Is it always all or nothing? (January 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=39326
HIPEC (November 2012)
http://coloncancersupport.colonclub.com/viewtopic.php?t=37834
Radiation VS HIPEC (September 2012)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=36324
HIPEC question (April 2011)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=21397
If you've had HIPEC, please help (November 2010)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=16029
New to Forum – HIPEC concerns (November 2008)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=5149
-
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
-
Bev G
- Posts: 5856
- Joined: Thu Jan 07, 2010 11:19 pm
- Facebook Username: Bev Golde
- Location: Quechee, VT
Re: HIPEC topics on ColonTalk
Bev G wrote:O Stoma Mia wrote:I don't have any personal experience with HIPEC, but there are a number of members here who have looked into this topic in recent months. Here are a few of the relevant threads:
Surgical opinion options? (January 2016) -- (the current thread)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53554
hipec (October 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52696
HIPEC (September 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52432
HIPEC (ers) - Compare Stories (August 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52326
Turned down for HIPEC (July 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52086
HIPEC (July 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=52069
HIPEC (June 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51858
HIPEC (May 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51336
HIPEC and QOL (May 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=51249
Looking for a HIPEC surgeon (April 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=50963
Peritoneal mets, HIPEC, EPIC (March 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?t=50479
Update on Hipec progress (March 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50429
HIPEC treatment side effects (February 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50209
Best Doctors For HIPEC (February 2015)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50079
Chemo After HIPEC
http://coloncancersupport.colonclub.com/viewtopic.php?t=48830
Need advice (hipec) (October 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=48401
Chemo after HIPEC (August 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47573
How old were you when you had HIPEC? (August 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47488
Liver resection and HIPEC surgery is on (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=47356
Limitations of Scan and Exploratory Laparoscopy After HIPEC (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=47077
Stage 4 from India - looking for HIPEC experiences (July 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?t=47055
information and questions about HIPEC (February 2014)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=45757
HIPEC as early as next week?? Whaat!!!
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46470
Week after HIPEC (August 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=43305
HIPEC scheduled for the 29th (July 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=42893
Back to reality - and HIPEC question (April 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=41469
HIPEC-Is it always all or nothing? (January 2013)
http://coloncancersupport.colonclub.com/viewtopic.php?t=39326
HIPEC (November 2012)
http://coloncancersupport.colonclub.com/viewtopic.php?t=37834
Radiation VS HIPEC (September 2012)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=36324
HIPEC question (April 2011)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=21397
If you've had HIPEC, please help (November 2010)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=16029
New to Forum – HIPEC concerns (November 2008)
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=5149
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You are SO awesome, OSM...so kind with your time! Have I thanked you lately? THANK YOU!!!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
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michellecairn
- Posts: 80
- Joined: Wed Dec 23, 2015 7:09 pm
- Facebook Username: Michelle Pulera
- Location: Kenosha, Wisconsin
Re: Surgical opinion options?
I just want to thank everyone for all the links and information you have given me! I've been going through them all carefully.
I've just been frustrated because my cancer was found on a CT scan in the ER, and a confirmed with a diagnostic laparoscopy 2 days later as peritoneal carcinotomas which tested positive for signet ring cell in all the biopsies. They think it stemmed from the colon, and that's why they say my primary is colon cancer, yet no one has been able to say there's a tumor or mass in the colon. I think there may be since there is a spot where I have a twinge of pain if I press on my abdomen, but that may just be in my head ha ha.
My upper abdomen is distended, bloated, and swollen to the point I look 9 months pregnant. It shrinks a bit overnight, but depending on what I do/eat/drink I'm quite tight by the end of the day. It impacts my movement in bending and such. Not sure if it's coming from the spread on the perinotneum or what.
A lot of posts/stories I have read people are diagnosed and have surgery immediately and that was not offered to me. I was offered basically no hope by the first dr, and although I love the bedside manner of my current dr, I feel she may not have enough experience in dealing with colon cancer. My first scan after diagnosis is next week so I'm keeping my fingers crossed that I don't get really bad news.
I just want as much of the cancer out of my body if possible. I'm willing to travel to wherever I need to go, obviously financially it'll be a stretch, but hoping it'll be worth it in the long run. My dr will not authorize me to go back to work, I haven't worked since the end of September. I feel good enough to work on restricted duty and hours, but she's just saying I shouldn't work because of the germ factor.
Once again I appreciate all of the information and links. I hope everyone is doing well and keeping positive.
I've just been frustrated because my cancer was found on a CT scan in the ER, and a confirmed with a diagnostic laparoscopy 2 days later as peritoneal carcinotomas which tested positive for signet ring cell in all the biopsies. They think it stemmed from the colon, and that's why they say my primary is colon cancer, yet no one has been able to say there's a tumor or mass in the colon. I think there may be since there is a spot where I have a twinge of pain if I press on my abdomen, but that may just be in my head ha ha.
My upper abdomen is distended, bloated, and swollen to the point I look 9 months pregnant. It shrinks a bit overnight, but depending on what I do/eat/drink I'm quite tight by the end of the day. It impacts my movement in bending and such. Not sure if it's coming from the spread on the perinotneum or what.
A lot of posts/stories I have read people are diagnosed and have surgery immediately and that was not offered to me. I was offered basically no hope by the first dr, and although I love the bedside manner of my current dr, I feel she may not have enough experience in dealing with colon cancer. My first scan after diagnosis is next week so I'm keeping my fingers crossed that I don't get really bad news.
I just want as much of the cancer out of my body if possible. I'm willing to travel to wherever I need to go, obviously financially it'll be a stretch, but hoping it'll be worth it in the long run. My dr will not authorize me to go back to work, I haven't worked since the end of September. I feel good enough to work on restricted duty and hours, but she's just saying I shouldn't work because of the germ factor.
Once again I appreciate all of the information and links. I hope everyone is doing well and keeping positive.
Age: 39(38 at dx), married, mom of 2
Stage IV
DX: 10-7-15 colon cancer (signet ring cell)
CEA: 10-4-15: 9.5, 2-8-16: 42.5, 3-7-16: 22.6, 5-26-16: 18.8, 7-27-16: 14.3, 10-20-16: 21.1
abnormal MSH6 and BARD1
KRAS: wild type
MSI High
Lynch positive
11-16-15: 1 round Folfirinox/5FU, 5 rounds folfox/5FU , 4 with Avastin
2-8-16: Chemo not working
3-7-16: back to folfox/Avastin/5FU
3-24-16: Keytruda
2-23-17: FAILED Keytruda
3-2-17: Erbitux
3-30-17: Erbitux + Irinotecan
5-25-17: FAILED Erbitux + Irinotecan
Stage IV
DX: 10-7-15 colon cancer (signet ring cell)
CEA: 10-4-15: 9.5, 2-8-16: 42.5, 3-7-16: 22.6, 5-26-16: 18.8, 7-27-16: 14.3, 10-20-16: 21.1
abnormal MSH6 and BARD1
KRAS: wild type
MSI High
Lynch positive
11-16-15: 1 round Folfirinox/5FU, 5 rounds folfox/5FU , 4 with Avastin
2-8-16: Chemo not working
3-7-16: back to folfox/Avastin/5FU
3-24-16: Keytruda
2-23-17: FAILED Keytruda
3-2-17: Erbitux
3-30-17: Erbitux + Irinotecan
5-25-17: FAILED Erbitux + Irinotecan
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O Stoma Mia
- Posts: 1709
- Joined: Sat Jun 22, 2013 6:29 am
- Location: On vacation. Off-line for now.
Re: Surgical opinion options?
If you're looking for some survivor stories, here are two recent ones -- one for HIPEC and one for Signet Ring Cell carcinoma.
SkiFletch (HIPEC 2010):
Dori W (SRC 2008)
SkiFletch (HIPEC 2010):
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
Dori W (SRC 2008)
47 years old
Stage IIIC, high grade signet ring, 14 out of 18 nodes affected
Colon resection 5/15/08
FOLFOX 6/08 - 11/08
Mom to a great 11 (!!) yo girl
Currently NED
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