jsbsf wrote:Thank you prs. You were inspirational, and I followed your story not expecting to ever make it to W&W. I told him about your side effects and how you mentioned later how you felt after recovery. How important it is to stay the course.
It seems like he’s one of very few, stage 4, to be given the W&W option. The doctors seem pretty convinced his cancer is gone.
He’s supposed to go in for quarterly checkups, I believe for the next 2 years. The rectal surgeon mentioned that this is not the normal standard of care, but they are not bound to that. After the 2nd year, he continues his checkups semiannually until the 5 year mark.
I know it’s not a done deal, but it’s the first time in over a year where we can both relax and think of all the other things in life.
I look forward to reading that many others have the news we received Friday.
Peter, November is right around the corner, and I’ll be thinking about you. Staying positive was truly half the battle.
roadrunner wrote: . . . . Resting at home after today’s transanal excision (“TAE”) and can report the following: The op itself was short, with generally mild post-op pain so far, mostly from the anus getting “stretched” to accommodate the instrument tube (I have a suspicion that they ran a mobile rocket launcher or bridge suspension cables up there just to see if they could) . . . .
roadrunner wrote:Figured I’d update this group (that I keep trying with all my might to join): WARNING: I’m going to try to keep this post lighter — unlike my usual overly loquacious and sober posts — in part to keep the ol’ chin up, but it involves lots of references to a number of distressing bodily functions, so beware!
Resting at home after today’s transanal excision (“TAE”) and can report the following: The op itself was short, with generally mild post-op pain so far, mostly from the anus getting “stretched” to accommodate the instrument tube (I have a suspicion that they ran a mobile rocket launcher or bridge suspension cables up there just to see if they could). I should also note that when your morning starts off on your bedroom floor at 4 a.m. with two self-administered enemas, and that’s the *highlight* of the day, you need to take stock of things in a serious way.
I did have a really poor response to the general anesthesia, though, which involved tons of vomiting, including about a liter of liquid into a grocery bag on the way home (My poor, poor wife — though I guess I got her back for puking (mostly) out of the passenger door of my car 20 years ago whilst dressed as Gene Simmons (it’s a long story — we were dating, a Halloween party was involved, and she did make a really cute Gene Simmons, so . . .. Anyway, I told you the enemas were the pinnacle!)). This laudatory experience has seemed to generate lots of heart palpitations or arrhythmias (or maybe it was the massive dehydration, the opioids, the pepcid on a long empty stomach, stress, the anesthesia itself, the vagus nerve (irritated perhaps))? This stuff seems to be improving, but I will continue to watch it closely.
So now I will await the pathology. Currently, the score is: rad onc: “cCR”; biopsy: negative; MRI: negative (but with a tiny bit of grey); awesome, internationally known surgeon: “I still don’t like the look of it” (flat red scar where the tumor used to be) — “you are really in a grey area”) So who knows? It will be interesting for sure. I will update this group, though I don’t promise to try to be funny again!
prs wrote:Hi Jolene,
I too am keeping my fingers crossed for you, and will be very happy when you hit that two year milestone in January! Hopefully that will help take some of the stress out of your mind, knowing the chance of a recurrence continues to decrease.
This pandemic for sure isn't helping any of us overcome our worries and periods of depression. In fact depression is just as much a disease as rectal cancer, there is no need at all to feel you've failed any kind of test. The stresses we all go thru during radiation and chemo are just as debilitating as the physical pain. I know for sure the physical effects of our treatment last for years, it's not surprising the mental effects also can last for years after treatment is over.
I very much agree with your spouse and cannot understand at all why you should feel guilty about going to see your counselor again. You made the brave decision to go on W&W, now take another brave decision and make that appointment.
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