CRguy wrote:
there have been many long term survivors who elected to have ostomies in order to STAY alive
with a quality of life, to see them through to the next stage of their Journey.
Many of us have had temporary -ostomies to get us through what we needed to get through.
Please don't reject or give up on anything which could help
Jogey wrote:Just to summarise off the top of my head the lifestyle changes that Dr Fuchs of Yale University mentions in the article to help improve survival chances for patients who already have colorectal cancer.
1) Daily low dose aspirin (although this needs to be done under medical recommendation and supervision due to risks of internal bleeding)
2) Vitamin D
3) Reduce sugary drinks
4) Eat tree nuts (but not peanuts which are not a tree nut)
5) drink four coffees per day
6) Omega 3 intake such as found in oily fish
7) In general have a diet high in fruits, vegetables, legumes, fish, poultry, and whole grains and lower in red meat, carbohydrates and refined grains.
Don't have a sedentary lifestyle: I have seen a video from a doctor at Memorial Sloane Kettering which recommends an hour long walk a day
I actually literally follow all of these recommendations. So far I have not had a recurrence on my watch and wait program at 17 months after radiotherapy. However it is impossible to say if these lifestyle changes have helped or not. I like to think they do. Certainly they have made me feel very well which is great.
I am not complacent as I am aware that the future is extremely uncertain but so far so good.
Hope this helps,
Jogey
prs wrote:Annie50 wrote:Hi Peter, thanks so much for your prompt reply .. roll on June then as that’s my 2 years .. is that for local and distant? Xxx
Annie, looking back at my treatment history, I had whole body CT and PET scans periodically during the first two years. After that it's been six monthly rectal MRIs and annual colonoscopies only. From this I have to assume the risk of distant metastasis is pretty much gone after two years.
We'll be breaking out the champagne for you in June, and that's not very far away at all.
prayingforccr wrote:Congratulations on the progress so far!!!
Because my tumor involves the sphincter, barring a ccr, I have been told that any surgery would leave me with a colostomy bag with which I am unwilling to live.
If I were given your husband’s options, I would opt for surgery if it did not involve an ostomy.
I will opt for any surgery that doesn’t leave me with an ostomy.
skb wrote:Hi,
I am a wait and watcher who avoided radical surgery when the disease was diagnosed in 2017. I was disease free for two years.
In 2019, a solitary metastatic nodule was discovered in my right lung and it was removed with a VATS wedge resection. There was mp chemo afterwards.
It is now one year after my lung surgery and I am fortunately still cancer free. I have scans every few months.
Just wanted to update this forum
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