The NED thread is a VERY good one... This forum main purpose is SUPPORT, SHARING and EDUCATION... Everything that falls in these categories is very good for all of us, cancer patients. It is a personal preference of the person to read, not read, regret or be grateful, like or dislike, etc the subject and posts.
We all are different personalities, the only thing we have in common is our disease until we form a close cyber relationships with a few, who share our stands, views, energy, chemistry. There are authors here that irritate heck out of me - I just do not read their posts. The same is true for my postings - there are plenty of people here who for sure have resentment to anything I say... But I also have people here who have become my cyber friends, and I consider myself lucky to know them...
So, do not take jalusa's comments personally - it is in her right to express what she feels, and she did it somewhat gently, while I knew that it would be upsetting for NEDers to read it - it was upsetting, therefore, to me too while I am not NED... Technically, NED is no more than a current status... It does not hold a promise - same as a treatment time, it just gives you Hope... Everyone handles their current status in life differently - some screw up what others view as a happy life, some in the worse situations consider themselves lucky and happy... All depends on one's Perception and Interpretation of the Environment, your own Self, Life purpose, etc...
Just my two cents, sweetheart, but I really do not want you to feel bad about the whole thing... I am so glad, that you and others could share their sufferings with us all - everything shared even on the internet that meets understanding on the other side is very gratifying, it helps people to know that they are understood, that they are not alone, that there are others who feel and know their pain. We are humans, mammals- look at the great teacher Nature... Have you seen mammals, and even not mammals, who do not "live" together, who do not need a partner, who do not need friends? I was watching recently on PBS a documentary, fantastic one, about friendships between different types of animals... Gosh, it was something... almost unbelievable... One that touched me the most, was a goat who took care of a blind horse... to the grave... then she died near horses grave too, she was old... The goat - an animal that everyone considers stupid, brainless, stubborn, etc!!!!!... what strength of emotional attachment a human has to have to do what she was doing for the horse for many many years? And some think that animals do not have emotions...
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home