what is purpose of this forum?

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Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: what is purpose of this forum?

Postby Lee » Sun Jan 10, 2016 11:36 pm

CRguy wrote:Re: what is purpose of this forum?

JMO

1. to be HERE when nobody else is ...... in your own life
2. to share all the good and all the bad this JOURNEY brings us
3. to educate
4. to commiserate
5. to laugh
6. to cry
7. to LIVE
8. to die
9. to support
10. to BE

Harmony on the Journey
CRguy


Can't find it, BUTT

"LIKE" button says it all.

Agree.agree!!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: what is purpose of this forum?

Postby lpas » Sun Jan 10, 2016 11:48 pm

I'd hope the purpose is to be a source of support and information that enables all of us to live better and longer lives. And that includes people at ALL stages and phases of the journey.

While I value this board tremendously for the kindness, sympathy and encouragement I've received here, I think I value it most of all as an honest source of information that's not always readily available from our medical practitioners. There is absolutely no doubt in my mind that I've improved my odds of winning this battle as a direct result of things I've learned (and continue to learn) from the members here.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: what is purpose of this forum?

Postby CRguy » Sun Jan 10, 2016 11:55 pm

Lee wrote:Can't find it, BUTT
"LIKE" button says it all.
Agree.agree!!
Lee
Thanks Lee
Image
Is all we really need here amongst friends

Harmony
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: what is purpose of this forum?

Postby CRguy » Mon Jan 11, 2016 12:00 am

lpas wrote:There is absolutely no doubt in my mind that I've improved my odds of winning this battle as a direct result of things I've learned (and continue to learn) from the members here.

Despite any episodes of 'drama" ... THIS forum is the most intelligent, supportive and pro-active of ANY I have found on the 'net.
...AND I do not waste much time on the FBooker Twitterverse

HERE is real ....WORD !

Cheers and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Sams wife
Posts: 753
Joined: Sun Jan 11, 2015 2:49 pm

Re: what is purpose of this forum?

Postby Sams wife » Mon Jan 11, 2016 12:54 pm

lpas wrote:
I think I value it most of all as an honest source of information that's not always readily available from our medical practitioners.

There is absolutely no doubt in my mind that I've improved my odds of winning this battle as a direct result of things I've learned (and continue to learn) from the members here.


Exactly.
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5

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O Stoma Mia
Posts: 1709
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

O/T post

Postby O Stoma Mia » Mon Jan 11, 2016 1:48 pm

I think one purpose of this forum is to have O/T posts from time to time...

For example, here is an O/T post of a Pomeranian pooch having fun on a new segment of The Path of the Flood Trail in Western Pennsylvania ... :D
Last edited by O Stoma Mia on Tue Jan 12, 2016 5:08 am, edited 1 time in total.

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Rob in PA
Posts: 2022
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: O/T post

Postby Rob in PA » Mon Jan 11, 2016 10:44 pm

O Stoma Mia wrote:I think one purpose of this forum is to have O/T posts from time to time...

For example, here is an O/T post of a Pomeranian pooch having fun on a new segment of The Path of the Flood Trail in Western Pennsulvania ... :D


Lol! I'm familiar with that.........breed :shock:


Sherlock mia :wink:
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: what is purpose of this forum?

Postby bitchslapped » Thu Jan 14, 2016 6:57 pm

NZJay wrote:I haven't recently read the thread referenced above.

But every time I log on here, I know I can read of dreams, nightmares and (for lack of a better word) miracles. I know my emotions could be tugged in any direction by what I read.

But everything I read is REAL, from real people, who experience the same things as myself. And that's something I cannot find anywhere else. So I accept the ups and downs, as we all must do.


NZ, I really liked your response. The thread referenced was so encompassing of the human experience, including humor, compassion.
It is up to any one individual & one's skill set, if you will, in how they choose to express themselves, just as we choose how to interpret what we read or hear. So what is good for one, maybe not good for another.

CT is not an easy place to be. Our Memorial sticky thread is testimony to that.

It's ok to have differing opinions...keeps the blood flowing. We all get offended/irritated on here...many times I would say...AND we move forward. I've often wondered why some choose not to have signatures...unless there is fear that the system could get hacked & somehow link a dx w/a name/email. I think it's helpful to offer & receive input from those w/a sig, somewhat of a keep out sign w/o one, so more inclined to interact w/those that do.

The most important purpose of this forum is it removes isolation & through that...all the aforementioned benefits you all have mentioned, occur.

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: what is purpose of this forum?

Postby chrissyrice » Thu Jan 14, 2016 7:07 pm

Well said Bitchslappled!
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: what is purpose of this forum?

Postby justin case » Fri Jan 15, 2016 5:04 pm

bitchslapped wrote:
NZJay wrote:I haven't recently read the thread referenced above.

But every time I log on here, I know I can read of dreams, nightmares and (for lack of a better word) miracles. I know my emotions could be tugged in any direction by what I read.

But everything I read is REAL, from real people, who experience the same things as myself. And that's something I cannot find anywhere else. So I accept the ups and downs, as we all must do.


NZ, I really liked your response. The thread referenced was so encompassing of the human experience, including humor, compassion.
It is up to any one individual & one's skill set, if you will, in how they choose to express themselves, just as we choose how to interpret what we read or hear. So what is good for one, maybe not good for another.

CT is not an easy place to be. Our Memorial sticky thread is testimony to that.

It's ok to have differing opinions...keeps the blood flowing. We all get offended/irritated on here...many times I would say...AND we move forward. I've often wondered why some choose not to have signatures...unless there is fear that the system could get hacked & somehow link a dx w/a name/email. I think it's helpful to offer & receive input from those w/a sig, somewhat of a keep out sign w/o one, so more inclined to interact w/those that do.

The most important purpose of this forum is it removes isolation & through that...all the aforementioned benefits you all have mentioned, occur.

BS

I'm with Chrissy on this, well said. I remember one post in particular, that said he was put on the national no credit list, because he had cancer. I really liked that man a lot! As goes with everything, if you pay your bills on time, there probably isn't a list :roll: If you prefer not to have a signature, that is your prerogative, although most people don't have the time, to give a reasonable answer to your question, if they don't know where you are at in your treatments. As far as medical advise, your medical team will gladly give you that information, as that is what you pay them to do. With side effects, we can be quite competent, to relieve some of the anomalies involved with cancer therapy's. No one gets it like we do, and we know how to talk about Pooh :shock: He's my favorite Bear 8)

Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Hapa
Posts: 388
Joined: Thu Jan 03, 2013 2:46 pm

Re: what is purpose of this forum?

Postby Hapa » Fri Jan 15, 2016 6:32 pm

Kathryn created a topic for stage 4 patients only because there are a lot of people who don't want to hear 'negative things'. They were/are a group of people that wanted to talk openly. I read here every day but don't post much. I love reading the good post about NED & other off topic threads. But when there is a problem, y'all are the first people I think of. Collectively, we have been through every possible scenario. For me-this is what this forum is for.

I am sorry that any of us have to be here....
DH Stage 3 RC

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: what is purpose of this forum?

Postby justin case » Fri Jan 15, 2016 6:35 pm

Hapa wrote:Kathryn created a topic for stage 4 patients only because there are a lot of people who don't want to hear 'negative things'. They were/are a group of people that wanted to talk openly. I read here every day but don't post much. I love reading the good post about NED & other off topic threads. But when there is a problem, y'all are the first people I think of. Collectively, we have been through every possible scenario. For me-this is what this forum is for.

I am sorry that any of us have to be here....

Again well said!!!
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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O Stoma Mia
Posts: 1709
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: O/T post

Postby O Stoma Mia » Wed Jan 31, 2024 10:36 pm

O Stoma Mia wrote:I think one purpose of this forum is to have O/T posts from time to time...

For example, here is an O/T post of a Pomeranian pooch having fun on a new segment of The Path of the Flood Trail in Western Pennsylvania ... :D

And does the new segment of "The Path of the Flood Trail" still have the sign with Rob in PA's name on it ? ?

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: what is purpose of this forum?

Postby CRguy » Thu Feb 01, 2024 9:58 pm

I believe the true purpose of this forum IS ...
to bring all of the people who ARE here, have been here and ...
WILL BE HERE ... TOGETHER

wherever we may have come from or are going to ...
whatever we may have or have not survived or encountered ...
whatever we ourselves NEED or what we may have to offer others ...

The purpose of this forum is to bring us all together.

WORD !

Love Peace and Harmony to all on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Rob in PA
Posts: 2022
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: O/T post

Postby Rob in PA » Thu Feb 15, 2024 4:32 pm

O Stoma Mia wrote:
O Stoma Mia wrote:I think one purpose of this forum is to have O/T posts from time to time...

For example, here is an O/T post of a Pomeranian pooch having fun on a new segment of The Path of the Flood Trail in Western Pennsylvania ... :D

And does the new segment of "The Path of the Flood Trail" still have the sign with Rob in PA's name on it ? ?


LOL! It sure does still have my name on it! Great hearing from you.

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED


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