Postby vilca11 » Sat Dec 26, 2015 10:13 pm
Dear Jonathan, I second previous email and advice. Pain is not an easy thing to ignore, it is a very valid symptom for any disease that might cause that pain (not necessarily cancer) and there is something wrong with your body for sure. It might be cancer, it might be diverticulatis that they did not spot on CT, it might be familial polyposis, it might be Chron's disease, it might be twisting of the intestines, etc... For now you do not have any other choice - you have to wait, sweetheart, for Jan 4. It is hard to wait, very hard... but you have to do what you have to do in life... my heart goes to you and all young fellows on this board, who suffer so much... we, the older generation, lived our lives, we loved and had our passions, we brought up our kids, we have results of that lived life, we have our experience and wisdom, we have satisfaction with how we spent our time on Earth... it is not that hard to be ill or die at our age... It is much-much harder for young people.... You do not have the dx of cancer yet and, hopefully, would not have. Meet the New Year in a positive mood - yes, in spite of the pain, in spite of the anxiety, in spite of the racing mind... Your psycho has a lot to do with the pain on a physical level, dear boy... Try not to worry (yes, easier said than done) - it does not help, just increases the sensitivity to pain. Instead, switch to whatever you love doing if you can, take pain killers (bad advice, but needed in such situation), get your gp to Rx you anti-anxiety meds asap, have a drink (if you like it), sleep as much as possible, so that time to Jan 4 flies faster - anything is better than to have feelings and thoughts you have. Soon, we will know what the problem is, colonoscopy, of course, had to be done to begin with - I am so upset that you were "in works" for so long and with so many symptoms they did not do a scope yet... And when we know, it will be much easier to deal with the situation - just step by step needed actions... You do not have anything scary - if it was, CT and MRI would registered it... Some bowel disease is as a good guess, as a non spread cancer (early stage). So, calm down for now, honey - it is very good that you vented here. Venting helps a big time... Please keep us informed, Jonathan. And here is a healthy berries drink to our health - Happy New Year!
Hugs, Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home