The Colon Club

Hi

For those of you who have done multiple rounds are you on 5fu...? I had a complete response first round ned...it's back in liver so I start again in oct...5th just wanted peeps experience....tx

Thanks

I was always working toward a liver resection (which I was able to have after getting the HAU pump.). Is the liver tumor(s) resectable?

Cynthia

I'm on Xeloda. Have been for years. I also get bi-weekly infusions of Erbitux and Iriontecan.

[quote="Jack&KatiesMommy"]I was always working toward a liver resection (which I was able to have after getting the HAU pump.). Is the liver tumor(s) resectable?

Cynthia[/quote

Hi I have had them go in they where gonna cut out what they saw in may and I was NED so they closed me up now they will not even say it is a possibility I wanted the hai...and I had micro peri on dx wanted hipec and they just keep telling me chemo works right now so no go I got that in oregon and wa. So sad cause I know I could take aggressive treatment I am in good health.

My wife started her chemo two years ago on FOLFOX and after two rounds of that added Avastin. After completing the 12 rounds of FOLFOX, she continued on 5-FU, Leucovorin, and Avastin, every other week for 12 weeks, then from then on afterwards its been every three weeks, maintenance therapy. She is stable as far as anyone can tell via CT scan. Monday when she goes in for her Avastin Infusion and get her 5-FU pump she will meet with her oncologist to go over her CT results from Wednesday. We don't expect anything will have changed. Tumors on her liver have calcified, the one on her spleen they can't see anymore, and they suspect the small spots showing on her lungs are not Mets, as they haven't changed in two years.

My wife tolerates this treatment very well, and if you didn't know any better you would not likely even suspect she was fighting Stage IVb cancer. Her oncologist after her last CT scan mentioned, that he was going to talk to the other members of the practice/tumor board, and see what they might think about some possibility of ablation or surgery to further reduce those calcified liver Mets. The jury is still out on that as the liver surgeon and interventional radiologist, will have to review everything. He may have more to say about that Monday.

So - you never know. For my wife, this 5-FU/Avastin is working well long term. Its not debilitating, she works and plays much the same as before, with the exception that she can't really train for trail runs, as the treatment week, results in a back slide for any endurance work. That was too frustrating for her so she has pretty much given up running. Still she works her dogs in the field, rides horses, and judges field trial events.

Hopefully, you can find a formula/Plan that will work for you, and that it can hold things together/at bay until we have more and better options such as immunotherapy, new drugs to keep thing "STABLE". We will take Stable any day of the week, though of course it would be nice to be NED or god forbid, Cured!

Best regards,
GrouseMan

Wow thank you for the encouragement.....I pray this will happen for me

Not really long timer, but dad has had a full year of folfiri, He had a ct scan on Friday, hopefully results on Monday at his appt. He last scan showed everything was still shrinking except the liver, so I am a bit anxious about these results. I know a year is not that long in the scheme of things, but guessing he will be a chemo for life candidate to so this topic is of interest to me.

Just found out I will have the chemo for life, until it stops working. Mets on both lung, hoping for RFA determination next month, but it is doubtful. Would love to hear responses on this thread.

Sorry frustrating to hear

My sweet husband did chemo for life for a lost 7 years. He had a good quality of life until the last 6 months when chemo stopped working. There are lots of new immunotherapies so keep fighting.
Hugs
Bill

Hi Jillbugs,

Similar to GrouseMan's wife, I did 15 rounds of FOLFOX 14 of them with Avastin. From there went to every other week maintenance of Avastin and 5-FU, continued to see liver met shrinkage on the maintenance. When the liver was clear, we went to every three weeks and then started to see some progression, so back on the Oxili. Did 4 rounds of that and just scanned this past Thursday and waiting on the report. If all is good, we'll likely go back to the every other week maintenance, if not we head to the as yet to be determined "Plan B". The positive is that the recurrence was not in the liver.

Now after all of these MRI's over the past two years if I could just get my nose to stop pointing to magnetic north.

Thank you for all the kind encouragement I an gonna get my big girl panties on and fight to the death or the immunotherapy lol...I have two small kids....I have to for them.