Time for hospice

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vilca11
Posts: 730
Joined: Fri Feb 14, 2014 11:19 am
Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: Time for hospice

Postby vilca11 » Sat Jun 20, 2015 3:58 pm

Beautiful post...The strength of human spirit, the ability to love, the capacity to accept, forgive, carry on.... how such an ugly disease highlights such a beauty in a human being.... this incredibly harmonious nature, directed by the most powerful force in the world that rules Life - Universe - is slowly swallowing us from birth and spits us out again one day... another time.... for another trial... Namaste, Julia... Give him all the love you can, he does not need anything else, just you love and be pain free.... Happiness at the end is holding your hand and hearing your voice..... I wish you the most peaceful and loving time now... I am crying with you, love... heartbreaking... Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Time for hospice

Postby Delinda2 » Sat Jun 20, 2015 4:16 pm

Holding you both & sending love. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

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Phuong
Posts: 1500
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: Time for hospice

Postby Phuong » Sat Jun 20, 2015 4:44 pm

I'm sorry that this is the part of the journey you have reached, but know that you are certainly not alone and that we are here for you. Sending you both peace and love. And lots and lots of virtual hugs.
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Time for hospice

Postby Steph20021 » Sat Jun 20, 2015 5:21 pm

I am so sorry, i can only imagine what you an your family is going through.. Sending good vibes
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

Danieljt
Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Time for hospice

Postby Danieljt » Sat Jun 20, 2015 6:16 pm

I'm so sorry you are this part of the journey. Let hospice do it's job, and you do your job of loving your dear husband. I wish I could take the heartache away.
Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Time for hospice

Postby Val*pal » Sat Jun 20, 2015 6:34 pm

I am so sorry that you and your dear husband have reached this stage. From what I've read from your previous posts, I know you're both very strong people.

We are all here for you. (((Hugs)))
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

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ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: Time for hospice

Postby ziggymonster » Sat Jun 20, 2015 6:35 pm

I'm so sorry to hear this sad news,wishing you both peace....and comfort.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Mattie
Posts: 74
Joined: Fri Mar 07, 2014 1:06 am

Re: Time for hospice

Postby Mattie » Sat Jun 20, 2015 6:53 pm

Although we have never spoken, I always read your posts and followed your journey. You are in my thoughts. Your post, so hard to read, but so beautiful too.

Namaste
4/10 debulk surgery, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Rad treatments
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 NED, maintaining Xeloda/Avastin
8/17 NED Dropping Xeloda. Avastin only.
3/21 NED Avastin only.

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Time for hospice

Postby chrissyrice » Sat Jun 20, 2015 8:04 pm

Hospice can be a very peaceful time and you will be able to connect with each other on a much deeper level. I know the time we spent with my dear MIL in hospice was such a comfort for all of us and we could just be together and not worry about taking care of everything.

At the same time you know it is the end of your life together here on earth and each moment is so precious.

We are here for you now and always.

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

MSJC
Posts: 158
Joined: Sun Jan 26, 2014 10:31 am
Location: Ashland City, Tn.

Re: Time for hospice

Postby MSJC » Sat Jun 20, 2015 8:54 pm

So heartbreaking, our thoughts are with you.
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Time for hospice

Postby pfCml73183 » Sat Jun 20, 2015 9:27 pm

Hugs.
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

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Patience
Posts: 834
Joined: Fri Dec 09, 2011 10:26 am

Re: Time for hospice

Postby Patience » Sun Jun 21, 2015 1:58 am

My husband spent a couple of months having Hospice care at home.

Hospice care can bring such support (I am thankful for the Hospice care my husband received), but not all Hospice's are equipped the same. For some of us, the majority of care falls upon the family members. What I learned is to ask for more help if it is needed, and that although Hospice is a wonderful option, sometimes even with them "the squeaky wheel gets the oil". And, their workers can make mistakes too, so if something does not seem right, ask for clarification or ask a superior.

Best of luck during this transition from seeking a treatment to seeking peacefulness and comfort. I believe that sometimes this stage of the journey is not as openly spoken about, since certain aspects of care can be seen as "too personal to blast on the internet about another person". I don't always check in here regularly, but if you think PMing with me would be helpful, I'd can do a more regular job of checking in. I'm sure others who have been caregivers throughout a Hospice experience could offer tips and support about caring for you DH, too.

Peaceful days to you and yours.
"Sweet dreams till sunbeams find you.
Sweet dreams that leave all worries behind you."

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: Time for hospice

Postby Annemiek » Sun Jun 21, 2015 4:59 am

Heartbreaking post, but it sounds like you have gained some peace already. Hope your last days together will be peaceful and will create lasting memories for you to cherish.

Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

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trapbear
Posts: 74
Joined: Mon May 10, 2010 12:53 pm
Facebook Username: bill manning

Re: Time for hospice

Postby trapbear » Sun Jun 21, 2015 9:30 am

I am so sorry to read this. I wish you both peace and comfort at this time. Try to treasure every moment you have together.
Husband Dx with Stage 3 CC in Dec 07
Xelox Jan-July 08
Lung mets Jan 09
Folfiri plus Avastin Mar-May 10
5FU plus Avastin May 10-current
2 liver mets March 13, continue 5 FU & Avastin
liver RFA Oct 13, hospice June 14, at peace Sept 2, 2014

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Time for hospice

Postby Bev G » Sun Jun 21, 2015 9:41 am

Julia, thank you for your stunningly beautiful post, and for sharing what you and Chris are going through now. I am so sorry you two have reached this point. Please let us help you however we can. I suspect there are many astonishing memories yet to be made.

Much love to you,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now


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