Utwo wrote:CRguy, do you still need these annual scans considering that (to the best of my knowledge) you are more than 10 years NED?
Hey homie,
NEED as in SOC = probably not
NEED as in ... I am CRguy and this is MY life, SOOOOO
we do things MY WAY ... then YES!
Probably need to refer to my "Journey Journal" here ... BUTT
I have told my Docs two things :
1.
"You will miss more for NOT LOOKING ... than not knowing." = quote from my Medicine Prof at Vet school
2. I would rather die from too much radiation ... than a cancer you missed because YOU WERE NOT LOOKING FOR IT
I realize I am in a novel position, being a retired Vet with 40 years in practice, and then a patient in the CRC world.
I speak to doctors with my voice, from many years, of doing what they do.
Doctors who listen and talk WITH me ... I keep.
Doctors who talk AT me ... I don't.
SO Far so GOOD !
Hence my own monitoring protocol, developed since being released from the official cancer agency I dealt with.
It was always about having MORE eyes on the prize
More imaging modalities
More feedback from more specialists.
The xray / U/sounds instead of CTs was only after I was released from follow up from the cancer agency.
Less radiation, more imaging, more "eyes"
My GP family Doc was 100% on board with the plan.
WHY did I start this ???
I had a few CT scans after resection and "normal" follow ups.
ALL good.
Started my xray / U/sound personal plan 6 months later ...and...
WHOOPEE SHIT
On a survey xray a very GOOD radiologist picked up a possible lung met, so
the rest is MY HISTORY :
resection
follow ups via cancer agency ... after I basically found the met
and NOW my follow up imaging plan as I see it ... BECAUSE THEY DID NOT SEE IT !!!!
WORD !
mike drop
CRguy on the Journey
" I did it MY way !!! "