Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December /2023

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 31/2022

Postby CRguy » Sat Jan 21, 2023 6:18 pm

... and if EVER there was a quotable fellow ...
it would have to be Yogi :shock: :mrgreen:

because as we all know here :
" When you come to a fork in the road, take it, 'cos It ain't over till it's over. "

Cheers and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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edinaman
Posts: 1108
Joined: Wed Oct 26, 2005 10:15 pm
Location: Minnesota

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 31/2022

Postby edinaman » Sun Jan 22, 2023 5:50 pm

I don't come here often anymore, but I'm glad to read you are doing well.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 31/2022

Postby CRguy » Mon Jan 23, 2023 11:31 pm

Thanks homie ...
energizer bunny here, just keepin' on ... keepin' ON !

Hey don't you be a stranger here :shock:

Cheers backatcha'
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ May 1/2023

Postby CRguy » Mon May 01, 2023 5:13 pm

Just completed what I feel may be my last full CT scan CAP... knock on wood (( hitting my head as we speak :mrgreen: ))

Doctor and I decided this one more full scan just to correlate with all the xray/ultrasounds
AND ......then will probably just do what is indicated with what we find down the road.

Results will be shared here once I have the Doctor's feedback.

Cheers and Harmony to ALL on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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waw4
Posts: 847
Joined: Sun Sep 12, 2010 8:44 am
Location: Durham, NC

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ May 1/2023

Postby waw4 » Thu Jun 22, 2023 7:43 am

Wow CRguy—you have weathered a lot of storms!
& to do so with such a caring, philosophical and humorous attitude is quite impressive!
Thank you for all you contribute to our community!
Over 10,000 posts in 15 years is nothing to sneeze at!
Continued Best Wishes,
Bill
Bill's Colonoscopy 6/29/10; Dx Stage I or II
Surgery 7/15/10; Dx Stage III,15/32 lymph nodes
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
2021 dx MSH6 Lynch Syndrome positive
(as are my brother, sister & son, but not daughter)
Grateful for 2nd Chance NED time!

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ May 1/2023

Postby CRguy » Thu Jun 22, 2023 9:53 pm

Hey Bill
Cheers and MEGA Harmony backatcha bro'

Yes, as you yourself know, this is quite a ride and I could not have done it
without being here with friends like you !

We are ColonTalkers and we kick BUTT and take names :mrgreen:
Don't be a stranger now

CRguy on the Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ November /2023

Postby CRguy » Sun Nov 26, 2023 12:42 am

AND soooooo ...... :shock:

As promised, an update from my last imaging and bloodwork :
all bloods are OK with the ongoing, borderline impaired glucose metabolism issues :twisted:

Seems like every time I get my glucose under control they change the goalposts !!!
A work in progress and not a main concern of mine.

Last CAP contrast CT scan in May all looked good ... BUTT ...
a new CT radiologist wanted a repeat scan 6 months later, which is NOW.

I am GOOD with new Docs wanting more info and more imaging ...
It was, in fact HOW we found my lung met back in the day.

SO : just had a follow up chest/abdomen CT scan today
Info goes to my Doc and I will meet with her in a week or so for follow up.

Am I freaked out? ... NO
Am I OK to wait for results ? ... YES

Whatever is on the repeat scan =>>>> whatever is on the repeat scan !
I know I have a bunch of "lung thang gang" debris hanging around since the last decade
AND this new imaging center only has some of the historical imaging for reference :shock:

I will work through this transition like I have since 2006

KICK BUTT and take names :mrgreen:

Anyhow, will let y'all know how this latest chapter in the CRguy Journey turns out

Cheers and Harmony to ALL
on the Journey

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

roadrunner
Posts: 446
Joined: Sun Jan 12, 2020 8:46 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ November /2023

Postby roadrunner » Sun Nov 26, 2023 11:38 am

Good luck with the scan results, brother!
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp benign)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy for radio resistant met 7/7/23

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ November /2023

Postby CRguy » Sun Nov 26, 2023 2:16 pm

Thanks homie !!!!
I will keep ON ... KEEPIN' ON :mrgreen:
Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December /2023

Postby CRguy » Thu Dec 07, 2023 5:27 pm

AND soooo ...
repeat CT report confirms stable 2mm calcifying debris from my past
Lung Thang Gang exploits
2 calcified granulomas in the left lung are unchanged.
No new lung abnormalities are seen.
No mediastinal, hilar or axillary lymphadenopathy is seen.
No intra-abdominal metastatic disease or tumor recurrence is identified.

Gonna take that as a win and keep ON ... Keepin' ON

Best wishes to all on the Journey
and sending Mega Posi-Vibes your way.

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

roadrunner
Posts: 446
Joined: Sun Jan 12, 2020 8:46 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December /2023

Postby roadrunner » Thu Dec 07, 2023 8:31 pm

Awesome! You continue to blaze a trail up the mountain for us to follow if we can. A BIG win!
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp benign)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy for radio resistant met 7/7/23

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December /2023

Postby CRguy » Fri Dec 08, 2023 12:25 am

Hey I hear you coming up, right there with me.
Meet you at the top !

Cheers and Harmony comin' backatcha
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

tater
Posts: 133
Joined: Wed Jul 19, 2017 5:53 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December /2023

Postby tater » Wed Jan 17, 2024 6:43 pm

Thanks for the update and that you are doing well.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

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CRguy
Posts: 10471
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December /2023

Postby CRguy » Fri Jan 19, 2024 7:46 pm

Thanks tater
Sending my best wishes and Mega Harmony to you and your DW.

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3813
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December /2023

Postby DarknessEmbraced » Sat Jan 20, 2024 4:37 pm

That's wonderful news! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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