Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022

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CRguy
Posts: 10389
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby CRguy » Fri Dec 10, 2021 10:00 pm

and SOoooo here we are !
Annual Doc visit for physical, review recent bloods, set up next years home brewed follow up plan for
... Just another colorectal GUY !

All recent bloods are OK
Have had my flu vax and third Pfizer booster already
setting up to do Shingrix in the spring
setting up follow up regular bloods, imaging and a colonoscopy for 2022
Will be getting a CAP CT scan set up for mid 2022 even though the ultrasounds and xrays have been good monitoring,
we know we needed to get a CT.
My Doc said I am in uncharted waters as a long term follow up patient and there " are no rules here " SO ...
I shall keep ON ... KEEPIN' ON !!!!

so far so good

Cheers and Harmony to ALL on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Blakeacw
Posts: 13
Joined: Thu Nov 05, 2020 12:24 pm
Location: Atlanta

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby Blakeacw » Mon Dec 13, 2021 12:27 pm

Great Update - Always Love to See This !
Colonoscopy 8/2020 - cancer diag. 9cm mass
Colectomy 8/2020 - successful -margins cleared
2 /16 lymph nodes -m1 tumor deposit
Pt3 n1b

Port installed 9/20
Folfox - 10/12 rounds complete

CEA
8.6.20 - 8.7 Prior Surgery
9.4.20 - 3.0 Post Surgery
4.14.21 - 2.7
6.16.21 - 3.0
9.29.21 - 2.3
12.13.21 - 2.1
3.17.22 - 2.0
CT Scan 3/18/21 - NED
Signatera 3/16/21 & 6/16 & 9/16 12/13/21 & 3/17/22 & 6/17/22 - ALL 0.0
CT Scan 3/11/22 - NED

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beach sunrise
Posts: 671
Joined: Thu Mar 05, 2020 7:14 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby beach sunrise » Tue Dec 14, 2021 1:24 pm

Heck ya! Go with your bad self/good health!
Merry Christmas!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

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horizon
Posts: 1654
Joined: Tue Apr 12, 2011 10:10 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby horizon » Tue Dec 14, 2021 5:30 pm

That is quite a history! Glad that you're a part of this community and doing well.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 11 years NED). Is this real life?

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CRguy
Posts: 10389
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby CRguy » Thu Dec 16, 2021 8:58 pm

Cheers and Harmony homies !!!!!

Gotta just be ME
keeping on ... keepin' ON !

BUTT ... always on the Journey with you all

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3701
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby DarknessEmbraced » Sat Dec 18, 2021 6:37 am

Wonderful update! I hope you and your family have a wonderful holiday season! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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CRguy
Posts: 10389
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby CRguy » Tue Dec 21, 2021 12:54 pm

Thanks DE
Sending all my best to folks and friends and families here
Best wishes for Christmas , holiday season, whatever and however you celebrate !!!

Mega Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

taexali
Posts: 12
Joined: Thu Jul 12, 2012 1:41 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby taexali » Tue Dec 28, 2021 4:00 pm

Best wishes and good luck to you CRGuy.

Taexali
Male 75 yrs.
DX 7/2007 at age 60 with Stage IV Rectal with mets to lung
8/2007 to 9/2007 Chemo (Fufa?) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions!
11/2008 Ileo reversal
5/2009 Left lower lobectomy
11/2021 Still NED, 01/21 Skin Cancer- ugh!

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CRguy
Posts: 10389
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022

Postby CRguy » Fri Jul 29, 2022 12:33 am

Just filled in a few details in the topic post.

Some new bloods coming soon ... AND ...
my next monitoring c-scope will be in August :shock:
Also booking the xray / u-sounds when I can

Stay tuned

Cheers on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

stu
Posts: 1573
Joined: Sat Aug 17, 2013 5:46 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022

Postby stu » Sat Jul 30, 2022 2:46 am

Hope it’s all good news .

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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CRguy
Posts: 10389
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022

Postby CRguy » Wed Aug 03, 2022 12:04 am

Thanks Stu
crossing all fingers and toes as I type :shock: :shock: :D

At the point now of trying to fit this stuff in as, and where, I can.

My CRC Doc will be retiring soon and this may be my last c-scope with him.
First one in May 2007 and he has done all my abdominal surgeries, SO ...
I have great faith in his abilities.

In fact it was his own surgery professor who actually did my lung met in 2010,
based on his recommendation and referral.

Cheers and best wishes !!!
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

roadrunner
Posts: 272
Joined: Sun Jan 12, 2020 8:46 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022

Postby roadrunner » Wed Aug 03, 2022 10:45 am

Keep going brother! I am trying hard to stay on your trail (wedged lung met (well, likely another that got SBRT-ed, but we won’t talk about that . . . ; ), now NED). You give people like me HUGE inspiration and I love the good humor!
7/19: Rectal cancer: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (side effects/reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 small growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
CT 3/22: Clear
Thoracic CT 5/19/22 Clear
6/20/22 TAE rectal polyp benign

MadMed
Posts: 166
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022

Postby MadMed » Wed Aug 03, 2022 11:18 am

Thank you for everything CRguy, you are truly an institution on this board, helped numerous people through this ordeal and serve as a guide in this chaos of a diagnosis.
I went to your first post in 2008 and it was immediately helping others! :D
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022

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CRguy
Posts: 10389
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ April 20/2022

Postby CRguy » Wed Aug 03, 2022 12:40 pm

Thank you all for your kind words :oops:

The sharing and caring of this forum was well established when I got here,
and continues to this day with all the folks who were here, are here, and will be here.

Just to do my part, to contribute and support that legacy, is an honour.
Each of us can always do the same and I see that every day with folks like you !

Harmony on the Journey
Always on the Journey with you

Cheers and best wishes my friends
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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