Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

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CRguy
Posts: 10365
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby CRguy » Fri Dec 10, 2021 10:00 pm

and SOoooo here we are !
Annual Doc visit for physical, review recent bloods, set up next years home brewed follow up plan for
... Just another colorectal GUY !

All recent bloods are OK
Have had my flu vax and third Pfizer booster already
setting up to do Shingrix in the spring
setting up follow up regular bloods, imaging and a colonoscopy for 2022
Will be getting a CAP CT scan set up for mid 2022 even though the ultrasounds and xrays have been good monitoring,
we know we needed to get a CT.
My Doc said I am in uncharted waters as a long term follow up patient and there " are no rules here " SO ...
I shall keep ON ... KEEPIN' ON !!!!

so far so good

Cheers and Harmony to ALL on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Blakeacw
Posts: 12
Joined: Thu Nov 05, 2020 12:24 pm
Location: Atlanta

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby Blakeacw » Mon Dec 13, 2021 12:27 pm

Great Update - Always Love to See This !
Colonoscopy 8/2020 - cancer diag. 9cm mass
Colectomy 8/2020 - successful -margins cleared
2 /16 lymph nodes -m1 tumor deposit
Pt3 n1b

Port installed 9/20
Folfox - 10/12 rounds complete

CEA
8.6.20 - 8.7 Prior Surgery
9.4.20 - 3.0 Post Surgery
4.14.21 - 2.7
6.16.21 - 3.0
9.29.21 - 2.3
12.13.21 - 2.1
CT Scan 3/18/21 - NED
Signatera 3/16/21 & 6/16 & 9/16 - ALL NEGATIVE

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beach sunrise
Posts: 581
Joined: Thu Mar 05, 2020 7:14 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby beach sunrise » Tue Dec 14, 2021 1:24 pm

Heck ya! Go with your bad self/good health!
Merry Christmas!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

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horizon
Posts: 1647
Joined: Tue Apr 12, 2011 10:10 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby horizon » Tue Dec 14, 2021 5:30 pm

That is quite a history! Glad that you're a part of this community and doing well.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 10 years NED). Is this real life?

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CRguy
Posts: 10365
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby CRguy » Thu Dec 16, 2021 8:58 pm

Cheers and Harmony homies !!!!!

Gotta just be ME
keeping on ... keepin' ON !

BUTT ... always on the Journey with you all

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3673
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby DarknessEmbraced » Sat Dec 18, 2021 6:37 am

Wonderful update! I hope you and your family have a wonderful holiday season! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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CRguy
Posts: 10365
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby CRguy » Tue Dec 21, 2021 12:54 pm

Thanks DE
Sending all my best to folks and friends and families here
Best wishes for Christmas , holiday season, whatever and however you celebrate !!!

Mega Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

taexali
Posts: 11
Joined: Thu Jul 12, 2012 1:41 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December 10/2021

Postby taexali » Tue Dec 28, 2021 4:00 pm

Best wishes and good luck to you CRGuy.

Taexali
Male 74 yrs.
DX 7/2007 Stage IV Rectal with mets to lung
8/2007 to 9/2007 Chemo (Fufa) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions!
11/2008 Ileo reversal
5/2009 Left lower lobectomy
11/2019 Still NED, 01/21 Skin Cancer!


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