Consult with radiologist tomorrow

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jeffrc5890
Posts: 24
Joined: Wed May 06, 2015 5:45 pm

Consult with radiologist tomorrow

Postby jeffrc5890 » Tue May 19, 2015 6:25 pm

So I have my initial consult with radiologist tomorrow AM. They didn't really tell me what to expect, but from what I've seen it will be an exam, review of scans and such. I think then a second appointment will be a "mock" meaning preparing for the first "real" rad session. Any input is appreciated.
very low RC
Diagnosed 4/2015
stage II/III
45 yrs old Albany, NY

bjones1128
Posts: 43
Joined: Tue May 12, 2015 12:07 pm
Facebook Username: barbslife
Location: South Carolina

Re: Consult with radiologist tomorrow

Postby bjones1128 » Tue May 19, 2015 6:41 pm

What are you having radiated? Depending on what it is, a lot of times they will make a mold. I always had them do it at the same appointment so I wouldn't have to come back for a "mock." :wink:
Single mom of two wonderful boys
Dx June 2014 Stage IVB Colon (sigmoid) @ age 38
Mets in brain, lungs, adrenal gland, nodes, ovary
July 2014 stereotactic radiosurgery to brain
July 2014 craniotomy, brain met removed!
Aug 2014 Folfiri
Feb 2015 Xeloda & Avastin didn't work
May 2015 mets to spine & knee, more mets to lungs, airspace disease
May 2015 Folfox, Avastin, Zemota
May 2015 radiation to knee

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Consult with radiologist tomorrow

Postby cathy123 » Tue May 19, 2015 8:26 pm

My first appt with the radiation onc was just to go over treatment, ask questions etc.

At the mapping appt they set me up in the radiation machine, did some scans which they used to set up my radiation protocol, made very small tattoos on my hips which were used each time to make sure I was aligned correctly, and made a mold for my legs which was on the table for each radiation treatment. Radiation treatments started about a week after that.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Consult with radiologist tomorrow

Postby JudeD59 » Tue May 19, 2015 11:17 pm

It's painless, easy, and nothing to worry about. The most important thing is to hold still. They will adjust you by pulling the sheets under you and you just have to be dead weight and not try to help. I think it took about 45 minutes for me. They use a needle to give you small dot tattoos on both hips and on your tailbone. The hip ones didn't hurt at all and the tailbone one just stung for a minute. Then when you go in for your regular treatments, they line you up using those tattoos so they send the radiation to the right spot every time.

My first appt was to hear what the radiation oncologist had to say and to ask questions, so make a list and take it with you. The second one was for the planning session where they mold plastic around your legs and give you the tattoos. They also do a CT scan then. Then the actual treatments start about a week later. Every time you go in for a treatment, your plastic mold will be on the table and it keeps your legs in the right position. It's not uncomfortable at all. At my hospital, they do a CT scan every Mon, Wed, and Fri to make sure the alignments haven't changed. It only adds a couple of minutes to the session. The technicians that do me are angels--really friendly and supportive. They also try to leave me a shred of dignity by keeping my butt covered as best they can during the whole process. They get you all set up, which only takes a couple of minutes, then they leave the room during the actual treatment, then they come back in to help you off the table.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

jeffrc5890
Posts: 24
Joined: Wed May 06, 2015 5:45 pm

Re: Consult with radiologist tomorrow

Postby jeffrc5890 » Wed May 20, 2015 2:15 pm

They actually scanned and tatted me up today. One less visit. Start treatment a week from today. The facility is less than a mile from my house and they were able to schedule most of my appointments late in the afternoon, so I can just drop in on the way home from work. Wonderful people there too!
very low RC
Diagnosed 4/2015
stage II/III
45 yrs old Albany, NY

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Consult with radiologist tomorrow

Postby JudeD59 » Wed May 20, 2015 3:32 pm

Glad you have that taken care of and can get your treatment started.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

DarknessEmbraced
Posts: 3465
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Consult with radiologist tomorrow

Postby DarknessEmbraced » Wed May 20, 2015 4:09 pm

Glad you have everything scheduled and that the facility is nearby. Good luck! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Consult with radiologist tomorrow

Postby JudeD59 » Thu May 21, 2015 8:31 am

Plus...now you can brag that you have bad azz tatts!!!
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

User avatar
kbedz
Posts: 37
Joined: Tue Apr 16, 2013 10:39 pm
Facebook Username: kristinbednarz
Location: Lubbock, Texas
Contact:

Re: Consult with radiologist tomorrow

Postby kbedz » Thu May 21, 2015 9:07 am

Hi. Kristin, here. I don't post much, but I read/lurk. I want to get involved more, so here I am, posting to your thread! I had radiation for my "bad ass" following my 12 rounds of chemo, mainly due to where my tumor was located. It was a fairly easy procedure. Like what was mentioned here, I had the "tats" and the scans. I had the cans weekly. I guess shrinkage can occur due to weight loss and they needed to make sure because they do such a small area.
Kristin Bednarz
Lubbock, Texas

DX 04/13
1 tumor, 1 node
stage 3c
surgery 4/13
24 chemo oxy/5fu completed 11/2013
radiation 11/13
completed radiation 2/14
scans clear 5/14
scans clear 9/14


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