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Bev G
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Location: Quechee, VT


Postby Bev G » Wed May 06, 2015 11:18 am

Hi Kids,

I was to have what was advertised to be my last "real" onc appointment and "last" CT scan today. My liver resection was 5 years and one month ago, and my onc told me a year ago he would declare me cured today. Uhhhh....not so much. My CT scan showed several large mediastinal masses. He doesn't think they are CRC mets, butt thinks it looks like I have a new primary cancer. He's going to be getting me in for a PET soon, and is referring me to the lung cancer specialist who will do a bronchoscopy very soon. So, I'm back on the cancer fast-track. I guess there's a very small chance it's nothing other than inflamed notes, butt that's not too likely.

I'm sure more news will be to follow.


Last edited by Bev G on Sat May 16, 2015 12:06 pm, edited 1 time in total.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Really??!!??

Postby peanut_8 » Wed May 06, 2015 11:29 am

Pardon my language, Bev, butt that just sucks. I'm hoping it will turn out to be nothing.
Best wishes, peanut
female, diagnosed Jan 14, RC stage 2a, age 56
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Posts: 679
Joined: Tue Mar 27, 2012 11:46 am

Re: Really??!!??

Postby janderson » Wed May 06, 2015 11:33 am

That really sucks.
DX 10-05 stage IV
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs

Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Really??!!??

Postby KWT » Wed May 06, 2015 11:36 am

Bev, I'm sorry to hear this, its just so wrong.

Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Really??!!??

Postby Steph20021 » Wed May 06, 2015 11:38 am

Unbelievable. Sorry you got such unexpected bad news. Im sure it caught you a bit off guard. Im hoping for the best.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
11/18- Beacon trial-encorafenib & cetuximab

Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: Really??!!??

Postby sadysue » Wed May 06, 2015 11:51 am sorry to hear this rotten news. I really hope it is a big bunch of nothing-to-worrry-about. When I saw my onc in March, he said "you are cured" and I was ready to punch him in the nose!!!! I felt like he was jinxing me! Best wishes to you and tons of GOOD LUCK!!!!!!!
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012

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Posts: 618
Joined: Sun Jan 19, 2014 1:19 am
Location: Silverton OR

Re: Really??!!??

Postby exaussie » Wed May 06, 2015 12:01 pm

There are no words ugh! Hope it's much ado about nothing!!!
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

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Joined: Fri Feb 14, 2014 11:19 am
Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: Really??!!??

Postby vilca11 » Wed May 06, 2015 12:03 pm

Oh, Bev... I had my mets 6 years after stage 1, when I already forgot that I ever had cancer.... only 5% have something like that happening and not after 6 years, but sooner... so, s@@t happens, but I think there is still a chance it is not cancer, lets wait for the results of PET and bronchoscopy... Very sorry about such an unexpected bad news, I can't stop being unpleasantly surprised at the tricks cancer has in his sleeves....
Hugs and positive vibes to you, your right - nothing new, back in trenches and dealing with it step by step without morbid associations, fears, despair, anger, just creating a plan of action, doing it the best you can and not thinking or worrying of your cancer until next step in the plan is due. You've done that once, you will do it again....... Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

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Joined: Sat Jan 17, 2015 6:50 pm
Location: Southwest

Re: Really??!!??

Postby rwightman » Wed May 06, 2015 12:06 pm

As I sit here browsing Colon club while I wait for my CT scan, I am just really pissed off for you! Hopefully it is nothing....I'm sending positive vibes.
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU

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Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: Really??!!??

Postby ziggymonster » Wed May 06, 2015 12:06 pm

Sucks big time !!!!!! Sorry to hear this.....again a small chance it is not cancer so still hope here !! Problem is the anxiety train has totally left the station....hoping it goes no where and then returns to the station.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Posts: 3582
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Really??!!??

Postby DarknessEmbraced » Wed May 06, 2015 12:10 pm

What terrible news Bev!*hugs* I hope that it turns out to be nothing! Sending positive thoughts your way.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Location: Minnesota

Re: Really??!!??

Postby edinaman » Wed May 06, 2015 12:15 pm

Bev, I am so sorry you are going through this. I am hoping this turns out to be nothing. Wishing you all the best.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Really??!!??

Postby cathy123 » Wed May 06, 2015 12:31 pm

So very sorry bev. I am hoping for the best for you.

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

Posts: 249
Joined: Sun Mar 02, 2014 11:58 pm

Re: Really??!!??

Postby Regan » Wed May 06, 2015 12:41 pm

I'm physically ill with your post
Anxiety train.....Suffer train...whatever train....GO AWAY!!!!!! STOPPPP
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest

Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Really??!!??

Postby lpas » Wed May 06, 2015 12:42 pm

Oh my God, Bev--wtf?? That's just ridiculous and so unfair. Keeping fingers and everything else crossed for you that it turns out to be nothing.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

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