Surgery Monday UPDATE

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Location: Dayton, Ohio

Re: Surgery Monday

Postby Rasputin » Sat Mar 07, 2015 5:31 pm

Cathy, been following you with high hopes and best wishes, as you are about 6 weeks ahead of me on the same tx.
Dec 07 50 y/o 'scope dx CRC
Jan 08 surgery took 7" colon 7" in. T1N0M0 NED
09-13 'scopes NED
Nov 14 CT thumb sized mass near surgery outside colon
Dec 14 PET, biopsy dx malignant, no mets
Jan/Feb 15 25X Xeloda, radiation
4/9 LAR, perm. ostomy, cancer remaining?
5/22 start 8X XELOX

Nik Colon

Re: Surgery Monday

Postby Nik Colon » Sat Mar 07, 2015 5:39 pm

ritz75 wrote:
MamaN wrote:Good luck with your surgery. I found chap stick helpful too. And yes walk , walk , walk that's all they want you to do. I also never seen people so happy that you pass gas ! Here is to a speedy recovery.

there is a thread some where about the whole swinging chickens thing, somewhere . It explains everything butt I can't remember it so good!

I guess I'll try to search, thx :)

I found this link on one of the threads. Interesting. ... ?referrer=

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Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Surgery Monday

Postby Delinda2 » Sat Mar 07, 2015 9:00 pm

Swinging chickens for you dear. I'm sure all will be fine & will be thinking of you. Please let us know how you are as soon as you are able. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

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Joined: Thu Feb 20, 2014 7:08 pm

Re: Surgery Monday

Postby shade » Sat Mar 07, 2015 9:44 pm

Best of luck on Monday. An important step forward...

I brought a cell phone and a paperback. I didn't want to bring much because I didn't want to stay long. I did smuggle in a couple of Ambiens, which helped me sleep better at night. They probably would have given me some if I asked, but I like being in control - not easy in a hospital.
Stage IV rectal
10/12 Cancerous polyp removed
1/14 Local recurrence
3/14 Chemorad
6/14 LAR and resected liver met, temp ilio
12/14 finished FOLFOX / Avastin
1/15 ilio reversed, LARS
57 y/o dad

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Joined: Sat Nov 08, 2014 3:36 pm

Re: Surgery Monday

Postby cathy123 » Sat Mar 07, 2015 11:34 pm

Thanks so much far all the good advice and support! This forum is wonderful.

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

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Facebook Username: teddimcfarland

Re: Surgery Monday

Postby Teddi » Sun Mar 08, 2015 1:34 am

I hope your cocktail party tomorrow isn't too miserable, and best wishes for your surgery on Monday.

I was glad I brought my kindle, phone, chargers, and a tin of Altoid smalls. Always hate the weird taste of getting meds pushed through my iV. Honestly, I just wore their clothes and socks ~ why worry about getting mine bloody or soiled? I can't remember if you are getting a temp ostomy, but if you are bring something to video record your first changing lesson with, so you don't forget anything. Drugs will do that :)

Here's to the next step on your path to NED!
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

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Re: Surgery Monday

Postby MrsOssie » Sun Mar 08, 2015 2:35 am

You will walk after surgery because you'll be high as a kite. I also had in a walking epidural plus morphine so could have run laps.
In the first week after surgery, I struggled to read without feeling nauseous (side effect for me of anathaesia). I recommend Audi books or podcasts. There's a great series called "Serial" that you can down load for free. If you're a bible reader, get an Audi bible so you can lay back and listen.

In addition to the things people have mentioned:
- 2 piece sleep clothes (once catheter is out) - makes you feel better, especially if you get visitors
- eye mask
- ear plugs for noisy night nurses
- ask Dr for night time sleep meds or tell them what you are taking
- ask nurses to not wake you for night observations or turn on light when they come in or really engage you. They can rake your temp and BP using light from open doorway/hallway or with flashlight. Sounds harsh but you will sleep better
- spend time in your chair (not just bed) each day
- walk a little further each day, a couple of times per day
- sign up for lots of free samples of ostomy products and they'll be delivered to your house in the coming weeks so you can find products that work for you

Praying all goes well

Stage IV - 2 +ve lymph nodes & liver mets
32 F - Dxd Oct 2012
FOLFOX Dec 2012-Aug2013 (12 cycles)
Liver & colon resections, ablation, radiation & ileostomy Feb-Jun 2013
Ileostomy reversal Sept 2013
2nd Liver resection Feb 2015 - 1 met

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Location: England

Re: Surgery Monday

Postby purplekangaroo » Sun Mar 08, 2015 10:33 am

Good luck for tomorrow, I hope everything goes to plan. I definitely recommend ear plugs - bliss!
LAR 29/10/13
Leak, temp ileo 5/11/13
Stage 3cc aged 31 4\20 nodes
6 months xelox 24/12/13
1 clear CT 5/7/14
Genetic test negative for lynch
Ileo reversed 18/11/14
Colonoscopy 6/2/15 normal
Second CT 6/2/15 ??
Trying to resume some sort of normality??

Posts: 343
Joined: Wed Jan 14, 2015 6:09 am

Re: Surgery Monday

Postby plastikos » Sun Mar 08, 2015 5:27 pm

The fact that you're a candidate for surgery is a good thing. Hoping for the best for you.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED

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O Stoma Mia
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Joined: Sat Jun 22, 2013 6:29 am

Hospital packing list

Postby O Stoma Mia » Sun Mar 08, 2015 6:12 pm

cathy123 wrote:... Also is there anything helpful to have with me at the hospital other than books, ipod etc to keep me occupied...

Last edited by O Stoma Mia on Fri May 26, 2017 1:17 pm, edited 1 time in total.

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Joined: Wed Nov 23, 2011 10:46 pm

Re: Surgery Monday

Postby hart2hart » Sun Mar 08, 2015 10:53 pm

Cathy -

We will be thinking aboutcha tomorrow ----Here's to a Speedy Recovery and Remember
to Walk-Walk-Walk and Hydrate lots! OSM gave you a great list - you rock OSM, just saying......
Pretty soon it will be spring (hopefully!) and you can do your walking outside! Here's to you Cathy!

Julie and Pete
Stamford, CT
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2020
Hai Pump/Port Removed - 1/2020

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Re: Surgery Monday

Postby TheLadySkye » Mon Mar 09, 2015 9:05 am

Prayers and good thoughts for a successful surgery, a speedy recovery, and a comfy bed. Also, the chickens and I will sneak in during shift changes for a little extra luck :)
Stage 2b (T4N0M0) small intestine (jejunum) 8/13
Small bowel resection 9/13
CT 10/13 - NED
FOLFOX chemotherapy 11/13 - 4/14
CT 6/14 - NED and my nemesis (the power port) out!
Clean colonoscopy and endoscopy 9/14
CT 12/14, 6/15 - NED!!!

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Re: Surgery Monday

Postby TheLadySkye » Mon Mar 09, 2015 9:15 am

Oh! And the biggest thing I needed/wanted at the hospital was one I didn't even bring myself - the nurses at Roswell made it for me. After surgery, you will do a fair bit of coughing. And of course the regular sneezing and such. And after abdominal surgery, those simple things hurt like a mofo. The nurses had a thin blanket they folded into a square, med taped that way, and drew a smiley face on. Every time I had to cough or sneeze, I was told to hold that as tight as was comfortable (in other words, not very tight!) against my abdomen. This helps limit movement during coughing/sneezing and helps with pain and the possibility of tearing the surgical site. Honestly, that silly thing was a lifesaver for me after surgery. Especially when I would get up to walk, coughing seemed inevitable for awhile.

I also really appreciated popsicles and those silly mouth swab things before the NG tube came out. Lip balm if you're allowed. I found I couldn't really read or text or watch movies while I was eyes were totally non-cooperative. But music was nice. A favorite stuffed animal. Pretty flowers to remind you of outside (where you will soon be). Someone sent me an amazingly fragrant bouquet while I was there, and I really appreciated that it covered up the other hospital smells. To this day, I have a traumatic response to the smell of hand sanitizer.
Stage 2b (T4N0M0) small intestine (jejunum) 8/13
Small bowel resection 9/13
CT 10/13 - NED
FOLFOX chemotherapy 11/13 - 4/14
CT 6/14 - NED and my nemesis (the power port) out!
Clean colonoscopy and endoscopy 9/14
CT 12/14, 6/15 - NED!!!

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Re: Surgery Monday

Postby Ajane » Mon Mar 09, 2015 3:28 pm

Thinking of you, swinging chickens, and praying that your surgery went well and that you're up and out of there in four.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

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Re: Surgery Monday

Postby lpas » Mon Mar 09, 2015 3:38 pm

Hope all went well today, Cathy! Please let us know when you're feeling up to it.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

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