Does it get harder??

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Does it get harder??

Postby Jenniferskc » Fri Feb 27, 2015 3:29 pm

My mom just completed her 6th treatment. Scan showed the tumors are shrinking, and up until this most recent round, she was handling it okay. She was able to control her nausea and barely had any mouth sores. Now she is struggling. Vomited all day the day after treatment, now has diarhea, she looks so beat down. Horrible mouth sores.
Is this pretty typical? I think they have her slated for 6 more treatments so she is feeling very discouraged.
DD of mother with Stage IV CC (diag 11/19/2014)
Mets to liver
Folfox and avastin
Just finished 8th Chemo treatment
Now off oxaliplatin - neuropathy was awful.

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Re: Does it get harder??

Postby juliej » Fri Feb 27, 2015 4:17 pm

The chemo does build up, Jenniferskc, so side-effects often get worse. Sometimes, though, it's a roller-coaster, bad one cycle and then not-too-bad for the very next cycle. So you never know. Make sure your mom is staying hydrated to flush the excess chemo from her body. Also, get her a prescription for "magic mouthwash" to help with the mouth sores. It may be called something different, but ask her oncologist for a script for mouthwash with lidocaine.

Things that have helped others with mouth sores:

Hydrogen peroxide. Swish and leave in mouth for 10+ minutes.
Kefir (a probiotic drink similar to a yogurt shake). Hold in mouth for a few minutes before swallowing.
Switching to Biotene toothpaste.
Orajel Mouth Sore Gel:
Gum Cancer-X Gel:

If it gets really bad, reducing the chemo dosage might be a good idea, especially if it allows her to continue treatment when it otherwise would have to stop. I'm happy to hear her tumors are shrinking! :D Tell her to stay strong and hopefully she'll be ready for a liver resection soon!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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Re: Does it get harder??

Postby drebay » Fri Feb 27, 2015 4:56 pm

Magic Mouthwash is what my pharmacy put on the label
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

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Re: Does it get harder??

Postby canadiandaughter » Fri Feb 27, 2015 8:24 pm

My dad just finished 12 rounds. We get the scan results on Monday. He has been doing great, but getting frustrated with his lack of energy. He gets diarrhea pretty bad the week of chemo and lately has been a bit more nauseated. He has pills to help with that, if we can get him to take them. He had a few mouth sores but nothing too bad. At chemo class they suggested to start using a alcohol free mouthwash right away to help with that and that is what we did with him before he even started treatments, not sure if that helps or or he has just been very lucky. He actually gained 5lbs the past month, but is being a bad boy with his eating. Mom usually watches him like a hawk with his diabetes but has slacked up since he got cancer. Also less exercise I would think. I hope your mom's side effects don't get any worse.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

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Treatment for mouth sores

Postby O Stoma Mia » Fri Feb 27, 2015 9:33 pm

Jenniferskc wrote: .... Horrible mouth sores...Is this pretty typical?

Jenniferskc -

There are several threads on this Forum on the topic of mouth sores:

Mouth Sores - 15 posts

What to do about mouth sores - 13 posts

Canker sores in mouth - 11 posts

Treatment for mouth sores caused by cancer treatment

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Re: Does it get harder??

Postby chrisca » Fri Feb 27, 2015 11:34 pm

There are medications for nausea. Ask your doc to see what's recommended. Something to try is cannabis tincture or the pill form, Marinol or the generic version. These helped me a lot with nausea. I was lucky and had only mild mouth sores. The magic mouthwash helped. Avoid all spicy and crunchy foods with mouth sores.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 10 years

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