I noticed in the days after my first infusion that whenever my hands got the slightest bit chilled, they would freeze up. They didn't hurt but I had to use my other hand to curl or uncurl my fingers. A blast of cold wind hit me in the face the other day and my eyelids stopped working. I literally couldn't see for a few minutes because I couldn't get my eyes to open back up.
I was fully expecting the tingling fingertips, cold sensitivity and first bite pain, but the paralysis was a bit of a surprise. Fortunately, at 5 days post-infusion it now seems to be significantly better. Did anyone else have symptoms like this early on? Were you able to continue with the full Oxilaplatin regimen? Any lasting ill effects?
FYI, I'm doing XELOX, so apparently my dosage for each infusion is a bit higher than it would be with FOLFOX.
Last edited by lpas
on Tue Feb 10, 2015 10:21 pm, edited 1 time in total.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & Celebrex
2/19 clean scope
5/19 clean-ish CT (watching a new 4mm lung thingie--likely mucus plug)
Ongoing celecoxib, cimetidine & other targeted supplements
Mom to a 5 & 7yo