I’m surprised that given the good results, it’s not a more common treatment. Trial was 7 years ago now! Is it only offered in very specific, limited cases?
TIL Immunotherapy at NCI
Re: TIL Immunotherapy at NCI
That’s fantastic
I’m surprised that given the good results, it’s not a more common treatment. Trial was 7 years ago now! Is it only offered in very specific, limited cases?
I’m surprised that given the good results, it’s not a more common treatment. Trial was 7 years ago now! Is it only offered in very specific, limited cases?
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11
-
prayingforccr
- Posts: 352
- Joined: Sun Jun 28, 2020 4:44 pm
Re: TIL Immunotherapy at NCI
Claudine wrote:That’s fantastic
I’m surprised that given the good results, it’s not a more common treatment. Trial was 7 years ago now! Is it only offered in very specific, limited cases?
Oncologists are more comfortable with a toxic treatment from 1957 that doesnt work.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy
Re: TIL Immunotherapy at NCI
Hi Celine,
Thanks for the update! It was nice to see your post with that distinctive avatar of yours designed by your children!
For those of you who were not around here back when the news of the success of this trial was first published in the New York Times, The Wall Street Journal and elsewhere, here are links to some of the stories:
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=49736&p=447707#p447707
For those who would like a more recent summary of your journey, here is a link to your recent blogpost update:
http://cancerriot.blogspot.com/2022/02/ ... n.html?m=1
For those interested in the scientific details of the TIL clinical trial that you were on, here is a link to that trial:
NCT01174121
Thanks for the update! It was nice to see your post with that distinctive avatar of yours designed by your children!
For those of you who were not around here back when the news of the success of this trial was first published in the New York Times, The Wall Street Journal and elsewhere, here are links to some of the stories:
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=49736&p=447707#p447707
For those who would like a more recent summary of your journey, here is a link to your recent blogpost update:
http://cancerriot.blogspot.com/2022/02/ ... n.html?m=1
For those interested in the scientific details of the TIL clinical trial that you were on, here is a link to that trial:
NCT01174121
-
prayingforccr
- Posts: 352
- Joined: Sun Jun 28, 2020 4:44 pm
Re: TIL Immunotherapy at NCI
Discussing TIL with Dr Formenti tomorrow.
The fact that she scheduled at telehealth is encouraging.
If it’s an option, I’d start tomorrow.
The fact that she scheduled at telehealth is encouraging.
If it’s an option, I’d start tomorrow.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy
Re: TIL Immunotherapy at NCI
That’s exciting! Please let us know how it goes!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11
-
prayingforccr
- Posts: 352
- Joined: Sun Jun 28, 2020 4:44 pm
Re: TIL Immunotherapy at NCI
Claudine wrote:That’s exciting! Please let us know how it goes!
Not appropriate at this time.
Nodules too small to biopsy.
We are all hoping for stable, then remission.
I love Dr Formenti. Love.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy
Re: TIL Immunotherapy at NCI
This is such great news . I was just thinking of you the other day .
Stu
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
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