Positive news for new people

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mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Positive news for new people

Postby mymom » Wed Aug 20, 2014 6:48 pm

We have not had a lot of great news lately on this board. I saw that someone said it would be good to hear some positive news. And for those that are new to this board, just diagnosed, I think it is important. Although my mother is Stage 4 she is doing very well at the moment. Her next scan results are September 10 (yes I am nervous). She had her three year cancerversary this past May. She is currently NED since October 2013 and off treatment since December 2013. She is NED (no evidence of disease) but living her life as if she is cancer free at the moment. She had a very busy summer.....Trip to Washington DC with myself and grandkids, a week long trip to ocean city Maryland. Day trips to the Bronx zoo (where she ran through the zoo to get to the gorillas before they closed. she did this once before to get to the monorail and almost beat me), day trips to blueberry picking, the local beach, watching the grandkids, dinner parties, etc. She is living and enjoying life. It was nice she had a clean scan beginning of the summer. We hope for the best on her next scan. There is hope. She has had some long NED stretches. But again, my heart goes out to all for those that have not been as lucky and I think of everyone often.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Positive news for new people

Postby midlifemom » Wed Aug 20, 2014 8:47 pm

Thanks for the positive news, always appreciated. Hope your mom continues to enjoy each day. You too!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

dreamweaver
Posts: 7
Joined: Tue Aug 05, 2014 6:27 pm

Re: Positive news for new people

Postby dreamweaver » Wed Aug 20, 2014 8:59 pm

I needed to see this today. Thank you.
L - Concerned sister-in-law of patient
Stage 4 Colorectal
Age 50
Diagnosed 8-5-2014

User avatar
Icesk8tr
Posts: 1068
Joined: Sat Apr 30, 2011 11:37 am

Re: Positive news for new people

Postby Icesk8tr » Wed Aug 20, 2014 8:59 pm

So glad your Mom remains in NEDsville. Thanks for sharing the wonderful news. Happy she is enjoying her busy summer!

Christine
Stage IV CC 2010

Delinda
Posts: 402
Joined: Sat Jul 12, 2014 8:39 pm
Location: Washington state

Re: Positive news for new people

Postby Delinda » Wed Aug 20, 2014 9:44 pm

Sounds like an amazing summer with mom. And I predict you will have a fantastic fall, enjoying the Connecticut foliage. Hugs to you and mom. XXOXO, Delinda
62 yo wife & mom
4/14 dx stage IIIC colon cancer
4.5cm tumor, 9/28 nodes
temp colostomy, take down 6/14
7/14 start FOLFOX, 6 mo

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Positive news for new people

Postby Stanfordmom » Wed Aug 20, 2014 9:53 pm

Glad to hear your mom is doing great! Thanks for the positive news.
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

Sharona
Posts: 187
Joined: Sun May 19, 2013 3:06 am
Facebook Username: Sharon Rauch

Re: Positive news for new people

Postby Sharona » Thu Aug 21, 2014 3:21 am

So glad to hear the positive news! Praying that the next scans are good. Continue to enjoy each and every moment!
Sharon
Dx CRC mets to lung, brain
Craniotomy 11/12
CyberKnife 12/12
colostomy
FOLFIRI, FOLFIRI, avastin, Zaltrap
Stivarga
Multiple brain mets.
WBR and pallative pelvic radiation
Hospice 1/21/15
http://www.caringbridge.org/visit/sharonrauch

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: Positive news for new people

Postby canadiandaughter » Thu Aug 21, 2014 6:52 am

Thank you for sharing!! It sounds like your mom is living each day to the fullest!! Perfect!!! It is great to see a spark of hope when things are so bleak. Best wishes for a good scan for her.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

joaniebc
Posts: 2
Joined: Sun Aug 24, 2014 3:28 am

Re: Positive news for new people

Postby joaniebc » Sun Aug 24, 2014 4:53 am

:D thank you! YOU by posting that may have just given someone with little or no hope a reason to smile again. I know you did it for me!
God Bless

mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Positive news for new people

Postby mymom » Sat Aug 30, 2014 12:35 pm

thank you for all of the kind words
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

shade
Posts: 157
Joined: Thu Feb 20, 2014 7:08 pm

Re: Positive news for new people

Postby shade » Sat Aug 30, 2014 2:33 pm

I appreciate your sharing this news. I needed a boost today.
Stage IV rectal
10/12 Cancerous polyp removed
1/14 Local recurrence
3/14 Chemorad
6/14 LAR and resected liver met, temp ilio
12/14 finished FOLFOX / Avastin
1/15 ilio reversed, LARS
57 y/o dad


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