Pet Scan Results

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vancouver eve
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Pet Scan Results

Postby vancouver eve » Mon Aug 19, 2013 9:19 pm

I had a Pet Scan last week because I still had back pain and my CEA had gone up once more. I informed the Onc. when I was informed the previous Cat Scan did not show any cancer, that I did not believe the results. The Onc. ordered a Pet Scan that showed I had a soft tissue anterior to the left illiac artery that is consistent with a metastases and may represent nodual disease. What a shock. I have chosen to have sterotactic radiation, but this time it is a little risky as the bowel is so close. I do hope this is the only problem and nothing else pops up in six months. I am scared of this recent find, but what can I do but take the treatment. The treatment would be for ten days and will start in three weeks.

skypup
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Re: Pet Scan Results

Postby skypup » Mon Aug 19, 2013 10:31 pm

Good for you for pushing for the PET scan. Hoping the radiation takes care of the little monster.

weisssoccermom
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Re: Pet Scan Results

Postby weisssoccermom » Tue Aug 20, 2013 10:47 am

Eve,
I know this must really be a shock! You've gone so long with such good results. Although this isn't what you wanted to hear, you did the right thing by being so persistent and pushing for the PET scan. At least you caught this early and can deal with it. You're a 'pro' at the stereotactic radiation thing so feel confident that you won't be bothered by the treatments this time. Keep us informed how things go. Since your CEA is a really good indicator for you....here's hoping that the radiation treatments bring that CEA down once more and eradicate that nasty little nodule.
Take care.
Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
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CRguy
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Re: Pet Scan Results

Postby CRguy » Tue Aug 20, 2013 11:00 am

Sorry you are facing a new challenge Eve, but very good for you that you pushed the issue !
Was it with "our" Onc ?
I know sometimes we have to push, but he will give in eventually.

Sending best wishes for getting things sorted out and taken care of !
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Ashlee H.
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Location: Southern California

Re: Pet Scan Results

Postby Ashlee H. » Tue Aug 20, 2013 11:09 am

Not happy news, but sounds like you are handling it well and gearing up for treatment. So glad you pushed for the scan. A reminder to all of us that if we feel something isn't right, to push for what we feel we need, even if the doctors don't agree. It's our peace of mind we are dealing with. It is our bodies. Hope this is just a bump in the road and the treatment kills those cancer cells.
Stage IV w/liver met dx 7-1-09
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga
LIVE LIFE!

vancouver eve
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Location: Vancouver

Re: Pet Scan Results

Postby vancouver eve » Tue Aug 20, 2013 12:27 pm

CRguy, no this is not our guy. I don't go to him until October for three months.

NWgirl
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Location: Battle Ground, Washington

Re: Pet Scan Results

Postby NWgirl » Tue Aug 20, 2013 2:15 pm

As Gaelen used to remind us, this is a marathon, not a sprint. My money's on you Eve. I'm so sorry to hear this news, but take a deep breath, stay calm and carry on. You can do this.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

SkiFletch
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Location: Buffalo, NY

Re: Pet Scan Results

Postby SkiFletch » Tue Aug 20, 2013 3:39 pm

Glad you got it figured out. Hope the treatment goes well Eve. At least you don't need any of the "sauce"
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

vancouver eve
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Location: Vancouver

Re: Pet Scan Results

Postby vancouver eve » Wed Aug 21, 2013 6:35 pm

Belle, I am getting the stero rad. in a few weeks. I had the mould made today. The thing that worries me is that one of the other nodes could be involved, but not showing yet. I am wondering whether I should take more chemo. What a thought.

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O Stoma Mia
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Re: Pet Scan Results

Postby O Stoma Mia » Fri Sep 13, 2013 9:32 pm

On Tue Aug 20, 2013, vancouver eve wrote:...The Onc. ordered a Pet Scan that showed I had a soft tissue anterior to the left illiac artery that is consistent with a metastases and may represent nodual disease. What a shock. I have chosen to have sterotactic radiation, but this time it is a little risky as the bowel is so close. I do hope this is the only problem and nothing else pops up in six months. I am scared of this recent find, but what can I do but take the treatment. The treatment would be for ten days and will start in three weeks.


Hi Eve - It has been about 3 weeks since you posted this, and I was wondering whether you have started your ten-day treatment yet...

nicola smith
Posts: 1040
Joined: Thu Oct 07, 2010 9:06 am

Re: Pet Scan Results

Postby nicola smith » Fri Sep 13, 2013 9:43 pm

I missed this first time around. Here's hoping the intervening weeks have brought you more positive news.
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP :D

vancouver eve
Posts: 1507
Joined: Fri Jan 18, 2008 3:04 pm
Location: Vancouver

Re: Pet Scan Results

Postby vancouver eve » Sat Sep 14, 2013 4:14 pm

Thanks for all the support. I have now finished my sterotactic radiation treatments. I will be scanned at the end of October. The treatment went well. I only required 5 treatments as the Rad. Onc. discovered that there was more room than he initially thought. I therefore had 5 intensive treatments instead of 10.

Jonanner
Posts: 7
Joined: Sat Sep 14, 2013 11:05 am

Re: Pet Scan Results

Postby Jonanner » Sat Sep 14, 2013 6:27 pm

vancouver eve wrote:I therefore had 5 intensive treatments instead of 10.


That's great! :)
7/13 DX RC at age 45
T2N0M0?
8/13 Lower anterior resection
Nope! It's Stage IIIb T3N1cM0
Radiation and chemo to follow

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chrissyrice
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Location: Atlanta, Georgia

Re: Pet Scan Results

Postby chrissyrice » Sat Sep 14, 2013 6:46 pm

Happy to hear the update... Healing and prayers.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months


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