Tomorrow I go in for my ileostomy reversal

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Rockovage
Posts: 128
Joined: Wed Apr 24, 2013 10:38 pm
Location: Cali

Tomorrow I go in for my ileostomy reversal

Postby Rockovage » Tue Jul 16, 2013 11:08 am

I`m a little scared but I think I`m pretty well prepared . I found some very good old threads searching the forum . I have the calmosepetine , depends , for the hospital and immodium and metamucil when I get out . I`m going to keep a food journal when I get out of the hospital to see what works and doesn`t work . I`ve been doing kegel`s and exercising everyday so I think I`m ready to go !

Please send me some positve vibes and any tips for an easy recuperation are appreciated .

Thanks, Mark :)
52 M
Colonscopy 2/13, DX stage 1 rectal cancer
open LAR 3/13 12in. colon / rectum removed
temp ileo
reversal 7 /13

Great day to be alive

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mysweetgrace
Posts: 318
Joined: Wed Apr 25, 2012 8:15 am

Re: Tomorrow I go in for my ileostomy reversal

Postby mysweetgrace » Tue Jul 16, 2013 11:15 am

I can't comment personally on tips for recuperation, but I can surely send some good vibes your way.

Hope all goes well and you recover quickly. :)
Dad diagnosed 10/11 (56 y/o)
Colon Resection w/ Temp Colostomy 10/11
Stage 2C t4b N0 M0
Xeloda Feb '12 - April '12
New mass 4/12
Folfox 8/12 - 2/13
Resection & Reversal 3/19/13
Clean Scan 7/13 & 10/13
http://reachingoutwheninneed.blogspot.com/

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Tomorrow I go in for my ileostomy reversal

Postby BrownBagger » Tue Jul 16, 2013 11:25 am

Here's some positive vibes, Mark.

If you're like me, you should be fine for a few days post-reversal, as your colon slowly fills up. Then, look out! Best to park yourself near a bathroom for a few days when that happens, so you can get there in a hurry when your guts start to rumble. That usually means you have about 20 seconds to get on the can.

Good luck! It's tough for some, but I think most people get through it OK. Just being free of the bag is sufficient reward, at least early on.

Don't be afraid to ask your surgeon for a script for Lomotil if the Imodium can't cut it.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

concernedrelative
Posts: 322
Joined: Tue May 17, 2011 1:33 pm

Re: Tomorrow I go in for my ileostomy reversal

Postby concernedrelative » Tue Jul 16, 2013 11:29 am

Wishing you the best and a speedy recovery!
Crgvr to 37 y.o. DW
3/11 Dx IV w mets lungs, xeloxi/avastin
8/12 switch irino/avastin
4/13 2nd line failed
6/13 imprime pgg trial failed
7/13 stivarga started/failed
9/13 folfiri+erb
Lost her valiant and noble fight 022114

ab123
Posts: 120
Joined: Tue May 21, 2013 12:25 pm
Location: Boston

Re: Tomorrow I go in for my ileostomy reversal

Postby ab123 » Tue Jul 16, 2013 12:57 pm

As I mentioned elsewhere, ileostomy reversal wasn't too hard for me - so you might be just fine. Also if you have your anal sphincter in-tact and are in decent shape you very well may not have incontinence - most people don't according to my surgeon.

You will wipe frequently, though, so you may want to invest in some flushable wipes for comfort. I like the fragrance-free, hypoallergenic ones they make for kids - Kandoo brand. I also bought the softest Charmin toilet paper. The other thing I recommend after a couple weeks of healing is Metamucil to thicken things up. It really made a difference for me in terms of consolidating the clusters of BMs - sticks the poop together. You'll have to experiment with food, of course, but probably stay away from fibrous fruits and veggies in any quantity for a while. Meats, white bread, pasta, cheese, yogurt, ice cream work for me. Doesn't sound like the healthiest diet ever but I tend to eat mostly veggies, beans, and whole grains unless I try not to.

The thing that I was really focused on in the first couple of days was getting out of the hospital, and they would only let me leave after I had a BM or gas. So make sure you walk a lot. It will help wake up your colon and get things moving. There's no better way. Walk as much as you can and eat at least something on a regular schedule. Eggs with cheese or yogurt, maybe some white toast, were good things for me to start with.

Good luck!
Aug 2012: RC DX Stage IIIC, T3N2M0 by MRI - 38M
Fall 2012: Chemorad
Nov 2012: LAR - Path report: 0/13 LNs, tumor reduced to "microscopic foci"
Jan-Apr 2013: 8 rounds FOLFOX
May 2013: Ileostomy takedown, port removal
July 2013 (and since): NED!

jean60
Posts: 427
Joined: Sun Sep 02, 2012 3:47 pm

Re: Tomorrow I go in for my ileostomy reversal

Postby jean60 » Tue Jul 16, 2013 1:31 pm

Mark,
I've been thinking of you, knowing this was coming up soon. I think some of the best advice I got was to keep a sense of humor for more than one reason. Everyone's experience is so different and it sounds to me as though you are prepared in terms of good things to take with you.
I guess I am about a month and a half out now and while there are improvements I would like to see, overall I have come nowhere near some of the horror stories I read about this. Right now some forethought is good if I am going to be out for the day. So is lomotil. I certainly do not miss "Ramone."
Let us know how you are doing when you can!

Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

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Rockovage
Posts: 128
Joined: Wed Apr 24, 2013 10:38 pm
Location: Cali

Re: Tomorrow I go in for my ileostomy reversal

Postby Rockovage » Tue Jul 16, 2013 1:40 pm

Thanks for all the positve vibes ! I hoping my journey is fairly easy I didn`t have any chemo or radiation so that might help . On the other hand I was in the hospital for 11 days after my LAR because my intestines wouldn`t wake up so who knows . I`m a vegeterian so finding things to eat is going to be fun . I`ll do eggs rarely and cheese but no meat . I try some how soy meat products and see how I react. I`ve got the MD anderson bowel management program saved on my computer too . Lots of exercise , fragnance free wipes ,soft toilet paper , maybe lomotil .... check !

Thanks for checking in jean , I`m feeling positive and I have my wife to help me with the humor . Glad your reversal is coming along good .


Thanks again for all the good vibes :D

Mark
52 M
Colonscopy 2/13, DX stage 1 rectal cancer
open LAR 3/13 12in. colon / rectum removed
temp ileo
reversal 7 /13

Great day to be alive

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Tomorrow I go in for my ileostomy reversal

Postby skypup » Tue Jul 16, 2013 1:43 pm

Chewing gum at least three times a day for ten minutes or more gets the guts moving faster after surgery. Average release from the big house is one day earlier. Good luck!

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Rockovage
Posts: 128
Joined: Wed Apr 24, 2013 10:38 pm
Location: Cali

Re: Tomorrow I go in for my ileostomy reversal

Postby Rockovage » Tue Jul 16, 2013 1:49 pm

Skypup wrote:Chewing gum at least three times a day for ten minutes or more gets the guts moving faster after surgery. Average release from the big house is one day earlier. Good luck!


Good tip , I read about this awhile back but had forgotten it .I`ll try ANYTHING to avoid the NG tube . :cry:

Thanks skypup
52 M
Colonscopy 2/13, DX stage 1 rectal cancer
open LAR 3/13 12in. colon / rectum removed
temp ileo
reversal 7 /13

Great day to be alive

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cecioboe
Posts: 597
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Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Tomorrow I go in for my ileostomy reversal

Postby cecioboe » Tue Jul 16, 2013 3:44 pm

Wishing you a quick recovery! After surgery, walk, walk, and walk some more. I cooked a low residue diet for Jim for the first few weeks and very slowly reintroduced the fiber. He is over a year out now and doing well.
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16

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chemo sabe
Posts: 444
Joined: Fri Mar 09, 2012 9:01 pm

Re: Tomorrow I go in for my ileostomy reversal

Postby chemo sabe » Tue Jul 16, 2013 5:45 pm

If your hospital is not going to let you go home until your insides are working - remember that the pain meds that they make available will slow up your intestines. Try to avoid - sometimes you cannot - but the stuff will slow you up.
64 year old male
Diagnosed Stage 3 Rectal Cancer - T3N1M0 - Oct 2011
28 radiation treatments with xeloda
Colon resection with ileostomy Feb 2012
8 Rounds of Xelox completed Sept 2012
Ileostomy reversal surgery Oct 2012
Incisional Hernia Repair Nov 2013

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Bev G
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Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Tomorrow I go in for my ileostomy reversal

Postby Bev G » Tue Jul 16, 2013 7:05 pm

Hello Mark,

Wishing you all good luck tomorrow, and smart docs and nurses, with great skill, a decent sense of humor, and great vibes to get you home ASAP.

We'll leave the lights on for you!

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Rockovage
Posts: 128
Joined: Wed Apr 24, 2013 10:38 pm
Location: Cali

Re: Tomorrow I go in for my ileostomy reversal

Postby Rockovage » Tue Jul 16, 2013 7:25 pm

I`ve got the low residue diet info saved on my favorites and I love to walk . thanks cecioboe

Good point about the opiate pain killers ,i`ll try wean my self off of them as quick as possible , thanks chemo sabe

Thanks for the well wishes Bev . I`m praying for your husband .

Mark
52 M
Colonscopy 2/13, DX stage 1 rectal cancer
open LAR 3/13 12in. colon / rectum removed
temp ileo
reversal 7 /13

Great day to be alive

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Tomorrow I go in for my ileostomy reversal

Postby teachpdx » Wed Jul 17, 2013 4:40 pm

Hey Mark,

Best of luck. Hopefully you're now in the hospital waiting for the gut to move. Too bad you don't eat meat. I ate some nasty turkey and it moved my gut just fine - out in two days. My new best friends are potatoes and bread. Veggies not such a good idea in the beginning and Immodium is good too. I'll be thinking of you. Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Tomorrow I go in for my ileostomy reversal

Postby justin case » Wed Jul 17, 2013 6:54 pm

Hey Mark,
May your reversal go as well as mine did, so you will be happy you said goodbye to your constant companion :wink:
Regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012


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