For stage 2's Ned for how long?

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justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: For stage 2's Ned for how long?

Postby justin case » Mon Jul 04, 2016 6:07 pm

Sometimes I don't know where these old threads even come from.. I never saw this one before ! 5 years out from diagnosis this month :roll:
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: For stage 2's Ned for how long?

Postby Thetoad » Mon Jul 04, 2016 6:46 pm

Yes. I wonder if any of the posters from 3 or so years ago check on this topic. Would be interesting to see how they are getting on these days... :?:
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

weisssoccermom
Posts: 5979
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: For stage 2's Ned for how long?

Postby weisssoccermom » Mon Jul 04, 2016 7:04 pm

I actually just opened this thread, only because I get notifications because I posted to it three years ago.
Just 'celebrated' 10 years from my cancer diagnosis and right now, unlike ten years ago, I am enjoying my 4th of July week vacation. Ten years ago, I was miserable, crying and all around very unhappy.
Getting along just fine. Very few issues to speak of.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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Hyfija
Posts: 36
Joined: Sat Feb 02, 2013 8:42 am
Location: Amsterdam, The Netherlands

Re: For stage 2's Ned for how long?

Postby Hyfija » Tue Jul 05, 2016 2:21 am

I'm stage 2A. Diagnosed in Januari 2013. Had no chemo. Feel fine.
DX CC - 2013/01/21; Age 61 - Left Hemi colectomy
Stage IIA - T3N0M0
20 lymph nodes
Well/moderate diff adenocarcinoma
No chemo
Preoperative CEA: 30
Postoperative CEA ~3-6 mnths: 1.6; 1.5; 1.3; 1.0; 1.2; 1.5; 2.0; 1.3; 1,6; 1.0.
Daily medicine: Rivaroxaban 20 mg.
Supplement: Vitamin D3

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O Stoma Mia
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Joined: Sat Jun 22, 2013 6:29 am

Last post

Postby O Stoma Mia » Thu Oct 04, 2018 2:19 am

As of today, six years in remission (T4bN0M0).

Tomorrow I will be starting my 7th year -- and it seems to me that this would be a good time for me to think about going on sabbatical ... :D :D :D

I would like to spend some time now organizing my travel photos and creating proper photo albums. I want my family to have good memories of these last 6 years.

ӧʂɱ
Last edited by O Stoma Mia on Wed Oct 10, 2018 3:08 am, edited 1 time in total.

Beckster
Posts: 434
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: For stage 2's Ned for how long?

Postby Beckster » Thu Oct 04, 2018 4:48 am

Stage IIA with surgery in Nov 2016.....2 years out from surgery in 4 weeks. So far...so good!
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7 6/21 2.9
Clear Colonoscopy 10/17, 11/19 :D

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: For stage 2's Ned for how long?

Postby susie0915 » Thu Oct 04, 2018 8:31 am

3 years NED as of September 9, 2015. I did do 6 rounds of preventative chemo after surgery. Doing pretty well for the most part. Just dealing with after affects of treatment, digestive issues and some neuropathy. So thankful and grateful to be living life.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: For stage 2's Ned for how long?

Postby Deb m » Fri Oct 05, 2018 1:01 pm

My husband is just under 8 years out from surgery. He did 12 hits of folfox. Doing very well with very few side effects remaining from the surgery and chemo. His official stage was IIbT4a.

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Hyfija
Posts: 36
Joined: Sat Feb 02, 2013 8:42 am
Location: Amsterdam, The Netherlands

Re: For stage 2's Ned for how long?

Postby Hyfija » Fri Oct 05, 2018 1:31 pm

Hyfija wrote:I'm stage 2A. Diagnosed in Januari 2013. Had no chemo. Feel fine.


Now, two years later. Still feel fine and completely NED.
DX CC - 2013/01/21; Age 61 - Left Hemi colectomy
Stage IIA - T3N0M0
20 lymph nodes
Well/moderate diff adenocarcinoma
No chemo
Preoperative CEA: 30
Postoperative CEA ~3-6 mnths: 1.6; 1.5; 1.3; 1.0; 1.2; 1.5; 2.0; 1.3; 1,6; 1.0.
Daily medicine: Rivaroxaban 20 mg.
Supplement: Vitamin D3

lakeswim
Posts: 227
Joined: Sat Mar 31, 2018 9:37 am

Re: Last post

Postby lakeswim » Wed Jan 02, 2019 10:12 am

O Stoma Mia wrote:As of today, six years in remission (T4bN0M0).

Tomorrow I will be starting my 7th year -- and it seems to me that this would be a good time for me to think about going on sabbatical ... :D :D :D

I would like to spend some time now organizing my travel photos and creating proper photo albums. I want my family to have good memories of these last 6 years.

ӧʂɱ


I am meeting with my surgeon tomorrow (getting all my post-neoadjuvant scans THIS AFTERNOON!) and was searching for posts from O Stoma Mia (because she is so knowledgeable and has provided me with so much info this past 8 months that I am now appreciating more than ever) and I happened upon this post.

I admit, I am not as active on this board as I'd like, but I am sad that I missed her "Peace Out" post. Is she truly retired from the board? (She deserves it - so not judging - just confirming.) THANK YOU, O STOMA MIA! WE WILL MISS YOU!
Female - RC dgns @ 49 y
Adenocarcinoma
10-11 cm from anal verge ("large")
Stage 3a - T4N0M0
FOLFOX May -Sept 18
Capecetabine + Radiation - 28 sessions - Oct - Nov 18
Jan 19 - MRI & flex sig show tumor gone, Chest/ab CT no change
Feb 19 - MRI & flex sig show tumor gone
W&W (must travel)
May 19 - flex Sig - looks good
Sept 19 - Chest/ab CT no change, MRI no change, flex Sig looks good
Jan 19 - flex sig - looks good
*grateful*

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Last post

Postby LPL » Fri Jan 04, 2019 11:01 am

lakeswim wrote:
O Stoma Mia wrote:As of today, six years in remission (T4bN0M0).

Tomorrow I will be starting my 7th year -- and it seems to me that this would be a good time for me to think about going on sabbatical ... :D :D :D

I would like to spend some time now organizing my travel photos and creating proper photo albums. I want my family to have good memories of these last 6 years.

ӧʂɱ


I am meeting with my surgeon tomorrow (getting all my post-neoadjuvant scans THIS AFTERNOON!) and was searching for posts from O Stoma Mia (because she is so knowledgeable and has provided me with so much info this past 8 months that I am now appreciating more than ever) and I happened upon this post.

I admit, I am not as active on this board as I'd like, but I am sad that I missed her "Peace Out" post. Is she truly retired from the board? (She deserves it - so not judging - just confirming.) THANK YOU, O STOMA MIA! WE WILL MISS YOU!

Oh I agree with you lakeswim!!
I have saved many many of O Stoma Mia’s posts.
So A BIG THANK YOU from me too <3
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

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teacher49
Posts: 184
Joined: Sun Aug 14, 2011 10:34 am

Re: For stage 2's Ned for how long?

Postby teacher49 » Wed Aug 11, 2021 9:43 pm

Thought I'd stop by and add my 2-cents worth. 10 years NED. Lost my dear husband 5 years ago, and my mother 1 year ago so now it's just me and my little dog. Grateful for all the years we had and even grateful for all the not-so-nice treatments that I had. Peripheral neuropathy is still an issue for me. Hate to tell you newbies that. I think they are finding that 8 FOLFOX is enough to maximize benefits and minimize side effects. Had 10 rounds of full FOLFOX and then just one more 5FU. But it's just a part of my life now....it's just in my toes. I spray them every night with OTC Aspercreme w/lidocaine. Takes the "buzz" out of them so that I can get to sleep. But I'm still working part-time/teaching online. Keeps me busy and I don't need to get dressed and go anywhere.

Hang in there everyone and take one day at a time. Live in the present and be grateful for every day you get to look out the window in this life.
F, 62,CRC, Adenoca, mod diff
cT3N0M0 Stage IIA May 2011
chemorad
APR on 9/27/11 Margins & Nodes Neg
comp.after surg/2 pelvic abscesses/Sepsis/Hosp 40 days
10th FOLFOX 6/6/2012 feet went numb
5FU to finish
NED 8/11/2021

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O Stoma Mia
Posts: 1672
Joined: Sat Jun 22, 2013 6:29 am

Re: For stage 2's Ned for how long?

Postby O Stoma Mia » Mon Oct 04, 2021 1:15 am

Just dropping by to say that this week will mark the beginning of my 10th year in remission. I just finished nine years with CT scans clear and CEA always hovering around 1.5 ng/mL. This year my follow-up 5-year colonoscopy was a "virtual colonoscopy" because I'm too old to have the ordinary kind.

I just got my Covid passport updated, so now I'm all set to leave on another extended vacation!!

Meanwhile, y'all take care and keep safe !

I_will_fight
Posts: 85
Joined: Mon Jun 29, 2020 3:38 pm

Re: For stage 2's Ned for how long?

Postby I_will_fight » Mon Oct 04, 2021 9:11 am

Thanks for this thread. It is encouraging.

So happy for all of you!
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

Grace14
Posts: 418
Joined: Mon Oct 24, 2011 7:42 pm

Re: For stage 2's Ned for how long?

Postby Grace14 » Tue Oct 05, 2021 1:21 pm

How crazy is it that I haven’t been on here for a very long time and I come on and see a post of mine! Well I’m still here 11 years later and doing well!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8


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