For stage 2's Ned for how long?

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Rockovage
Posts: 128
Joined: Wed Apr 24, 2013 10:38 pm
Location: Cali

Re: For stage 2's Ned for how long?

Postby Rockovage » Fri May 17, 2013 10:44 pm

This is a nice uplifting thread ! :)

I`m happy for everyone that is NED
52 M
Colonscopy 2/13, DX stage 1 rectal cancer
open LAR 3/13 12in. colon / rectum removed
temp ileo
reversal 7 /13

Great day to be alive

User avatar
Hyfija
Posts: 36
Joined: Sat Feb 02, 2013 8:42 am
Location: Amsterdam, The Netherlands

Re: For stage 2's Ned for how long?

Postby Hyfija » Sat May 18, 2013 2:32 am

I'm one of the newest on this forum with IIa. Surgery only last January 21. About 4 months now.
DX CC - 2013/01/21; Age 61 - Left Hemi colectomy
Stage IIA - T3N0M0
20 lymph nodes
Well/moderate diff adenocarcinoma
No chemo
Preoperative CEA: 30
Postoperative CEA ~3-6 mnths: 1.6; 1.5; 1.3; 1.0; 1.2; 1.5; 2.0; 1.3; 1,6; 1.0.
Daily medicine: Rivaroxaban 20 mg.
Supplement: Vitamin D3

User avatar
pstolarski
Posts: 242
Joined: Thu Jul 09, 2009 8:28 am
Facebook Username: Paul.stolarski
Location: Grand Haven, MI
Contact:

Re: For stage 2's Ned for how long?

Postby pstolarski » Sat May 18, 2013 5:27 am

4 years on Christmas Eve this year.
Colon Cancer - DX 5/7/09 Age 42 - Right Hemicolectomy
DX: Stage IIA - T3N0M0 0/31 lymphnodes, poorly diff adenocarcinoma
Genetics testing: Negative
Started Folfox 7/22/09
Finish Folfox 12/24/09 8 rounds of Oxi

User avatar
Lena
Posts: 165
Joined: Thu Aug 12, 2010 7:10 pm
Facebook Username: Lenarnc
Location: Kentucky

Re: For stage 2's Ned for how long?

Postby Lena » Sat May 18, 2013 6:33 am

Chemo/rad then Proctocolectomy with Ileo anal pouch anastomoses - November 3rd 2009. Ned since.
Lena
Dx rectal cancer July 30, 2009
Power port placement Aug. 3, 2009
Chemotherapy/Radiation therapy stated August 3, 2009
Chemo/radiation completed October 4th 2009
Proctocolectomy with Ileoanal jpouch November 3, 2009
NED 2014
Stage 2

James65
Posts: 383
Joined: Thu Mar 06, 2008 9:41 am
Location: Exeter, NH
Contact:

Re: For stage 2's Ned for how long?

Postby James65 » Sat May 18, 2013 8:17 am

June 2006 for me. Stage II, latish, rectal cancer. Chemo/rad, full APR, 16 weeks folfox.
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Oops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13. So far so good.
Oops again, one tumor in each lung diagnosed 8/8/16. One too small to deal with and the other resected in late September. Wait and watch for now.
Oops, another lung Met in upper left lobe on edge of previous resection scar 11/11/19.

James65
Posts: 383
Joined: Thu Mar 06, 2008 9:41 am
Location: Exeter, NH
Contact:

Re: For stage 2's Ned for how long?

Postby James65 » Sat May 18, 2013 8:17 am

PS
KNOCK ON WOOD!
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Oops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13. So far so good.
Oops again, one tumor in each lung diagnosed 8/8/16. One too small to deal with and the other resected in late September. Wait and watch for now.
Oops, another lung Met in upper left lobe on edge of previous resection scar 11/11/19.

Grace14
Posts: 418
Joined: Mon Oct 24, 2011 7:42 pm

Re: For stage 2's Ned for how long?

Postby Grace14 » Sat May 18, 2013 2:08 pm

I thought it would be nice! I thought there would be alot more people!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

User avatar
PGLGreg
Posts: 1427
Joined: Sat Nov 04, 2006 12:38 am
Location: Waimanalo, HI

Re: For stage 2's Ned for how long?

Postby PGLGreg » Sat May 18, 2013 4:24 pm

7 1/2 years NED for me.
Greg
stage 2a rectal cancer 11/05 at age 63
LAR 12/05 with adjuvant radiation+5FU,leucovorin 1-2/06
NED for 12 years, cured

emazzetti
Posts: 107
Joined: Sat Jun 11, 2011 11:49 am
Facebook Username: Emily Mazzetti
Location: Orange County, CA

Re: For stage 2's Ned for how long?

Postby emazzetti » Sat May 18, 2013 11:33 pm

I've been NED for 1 year and 3 mos, and hoping for many more to come!
40 yr fem (dx @ 36)
1.31.11 - colonoscopy
2.2.11 - Dx rectal ca stage 2a
2.28.11 - 5 weeks 5FU chemoradiation
6.3.11 - Robot assist LAR, T3N0M0
7.18.11 - FOLFOX-4 rnds
10.11.11 - 5FU only -> Mar 2012
Still NED!
2014 Colondar Model!

User avatar
WorriedWife
Posts: 1125
Joined: Tue Jul 24, 2012 5:41 pm

Re: For stage 2's Ned for how long?

Postby WorriedWife » Sun May 19, 2013 1:33 am

Hubby - Stage 2B Right Hemicolectomy - Opted out of Folfox. Surgery July 5th, 2012...last summer. Several CT scans due to fluid issue, but all clear so NED.

Grace, I think there are plenty of stage 2 members/people that are NED but they are doing great and don't come in much :)

Good luck to you and prayers...and everyone here!
Hubby
CC Stg. 2b
Dx 6/12
surgery & reconnect
opted out Folfox
Pet Scan Aug NED
abscess/fistula for over a year
ongoing Dec 2013
Praying for each and every one of you

lorrainem
Posts: 819
Joined: Tue Dec 18, 2007 2:34 pm
Facebook Username: https://www.facebook.com/lorraineaminogue
Location: NY

Re: For stage 2's Ned for how long?

Postby lorrainem » Sun May 19, 2013 11:54 am

Diagnosed Sep 2007
Chemo/Rad
Surgery Jan 2008
Folfox drop out after four treatments.

I choose my anniversary as September, but going by surgery I am NED 5 years. So happy to see there are many.
Chemorad/Surgery/Chemo
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08

User avatar
Dobe Man
Posts: 75
Joined: Wed Oct 31, 2012 10:47 am
Location: Smyrna, GA

Re: For stage 2's Ned for how long?

Postby Dobe Man » Sun May 19, 2013 6:27 pm

Stage IIa here, no chemo. Had CT scan/ultrasound/colonoscopy the last week of April. 3 small polyps were removed and tested benign. Had follow up with Onc and was good regarding scan and ultrasound, seeing GI Tuesday for colonoscopy follow up, but if there was an issue it would have been relayed last week when she called about the polyp results. So, very thankfully NED @ one year mark post-surgery.
4.2012 Dx @ 48 with CRC
5.2012 resection of 10" sigmoid colon/UR & 20 LNs
T3N0M0 2x1.5x.8 cm Adenocarcinoma low grade tumor
1-YR tests: clear scan, xray, ultrasound
3-small benign polyps removed during colonoscopy
Continued quarterly Onc apptmt

teacher49too

Re: For stage 2's Ned for how long?

Postby teacher49too » Mon May 20, 2013 9:52 pm

Another Stage 2a here. Just had Onc checkup today......all lab values good. CEA 0.3. No complaints except persistent neuropathy. I can drive OK, it's only the bottom of both my feet that have a tingly feel. Gabapentin did not improve it and so I stopped taking it because it made me dizzy.

As I feel relief for good check today......I am saddened by the destruction in Moore, OK today. I remember 2 years ago when I was diagnosed in May 2011 and the terrible tornado that tore thru Joplin, MO that same day. :cry: As I was crying about my diagnosis and uncertainty of all the treatment to come........I was humbled by sudden lives taken in that tornado....in the blink of an eye and I told myself to shape up and deal with it. There will always be worse disasters than what you have to endure.....

So, I'm 2 years out from initial dx, RC, 2a, mod diff. Had 5.5 weeks of chemorad. Rad was brutal towards the end. Then 10 weeks break before surgery in Sept. 2011. Those were the worst for me.......contemplating major surgery - APR. I asked my husband if I could just forget it and say no. Recovery rough. Then 11 rounds of Folfox6. Done in June 2012. Colonoscopy at 1 year was clear. All CEA/Liver enzyme are good......No bowel blockages ever.

Looking forward to getting to 3 years past surgery and chemo tx.

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: For stage 2's Ned for how long?

Postby Thetoad » Mon Jul 04, 2016 5:51 pm

Two years and eight months coming up without any problems. Still nervous, but that's the way I am. 9 monthly visits to specialist, 6 monthly CEA tests and 3 years between colonoscopies. One CT scan after 18 months, apart from the one immediately after surgery. No more scheduled. Have read about the 2 year non recurrence milestone but looking forward to the 3 year mark. Trying to enjoy the present though. Keep fighting everyone!
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

DarknessEmbraced
Posts: 3651
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: For stage 2's Ned for how long?

Postby DarknessEmbraced » Mon Jul 04, 2016 6:04 pm

I was diagnosed as stage 2a. I had my surgery November 20th, 2014. First colonoscopy after surgery was clear, benign polyp removed. CT scan clear. I had ischemic colitis in January and was hospitalized for a week. I've had ongoing issues ever since. I am currently NED knock on wood. I have a colonoscopy on July 7th to try to get to the bottom of what's causing my symptoms. My CEA has always been low even before surgery. My CA 125 was going up but was back to normal during my last blood test. I get blood tests every 3 months and ct scans yearly. Not sure if I will be getting colonoscopies every year because of ischemic colitis. I get my 2 year ct scans in October.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 43 guests