For stage 2's Ned for how long?

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Grace14
Posts: 418
Joined: Mon Oct 24, 2011 7:42 pm

For stage 2's Ned for how long?

Postby Grace14 » Fri May 17, 2013 9:17 am

I know we have a few threads on here for stage 3 and stage 4. I was curious to see how long people have been Ned for stage 2. According to some documents I've read, stage 2 can sometimes be worse than stage 3.

I have been Ned for 2 years and 10 months if you go by surgery! It was 3 years since diagnosis in April!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

mymaria
Posts: 132
Joined: Wed Jan 20, 2010 2:17 pm

Re: For stage 2's Ned for how long?

Postby mymaria » Fri May 17, 2013 9:56 am

Right hemi-colectomy on Dec. 4, 2009, with 54 negative lymph nodes, staged 2A. Been NED ever since :D
Endometrial cancer stage 1B grade 3, July '09 age 43
34 negative l.n.
Radiation Aug. and Sept., '09
Colon cancer T3N0M0, grade 3, Dec. '09
54 negative l.n.
Modified Folfox 6 regime started Jan. 12, '10
Stopped after 3 rounds Feb. 9, '10
Lynch Syndrome

meeko
Posts: 603
Joined: Thu Dec 18, 2008 7:15 pm
Location: Bellingham, Washington

Re: For stage 2's Ned for how long?

Postby meeko » Fri May 17, 2013 10:36 am

I have been NED since oct 2008...almost 5 yrs :D Have scope coming up next month but Onc. doesnt feel he needs to do another CT..mixed feelings about that one!
rectal cancer 9/08
LAR 10/1/08
2nd surgery for peritonitis and abcess 10/08/08 w/ temp ileo
stage 2A (t3) N0/16 M0
total of 8 rounds of 5fu/Leucovoran-- 5/09
Reversal and Hysterectomy 10/09/09
Married, 2 daughters
So far ..so Good!

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Aughhhh
Posts: 221
Joined: Sat Oct 27, 2007 12:35 pm
Location: Portland, Oregon

Re: For stage 2's Ned for how long?

Postby Aughhhh » Fri May 17, 2013 10:43 am

It will be NED 10 years since diagnosis this August for me! Nine years since surgery & completion of chemo. Knock on wood! :D :D
Pam
Stage IIA (T-3,N-0,M-0), sigmoid colon cancer, Diagnosed age 43 on 8/19/03, sigmoid colectomy on 8/30/03, finished 22 rounds of 5-FU & Leukovorin on 6/8/2004. Currently NED!

Grace14
Posts: 418
Joined: Mon Oct 24, 2011 7:42 pm

Re: For stage 2's Ned for how long?

Postby Grace14 » Fri May 17, 2013 10:47 am

Aughhhh-that's great! Thanks guys!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

weisssoccermom
Posts: 5979
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: For stage 2's Ned for how long?

Postby weisssoccermom » Fri May 17, 2013 12:36 pm

Stage IIA - diagnosed 6/06
Surgery 4/20/07 - 6 years ago.
Been NED ever since.

The stats that you are talking about apply to stage IIB - not necessarily all stage II
It is believed that the stats for stage IIB might be worse simply because many do not undergo chemo. It's not as cut and dry as saying stage II are worse.
Also an FYI .....IF you were going to have a recurrence, you are more likely to have one in the first two years. I believe it's somewhere in the vicinity of 80% of those occur in the first two years. THAT IS NOT SAYING THAT THERE IS AN 80% CHANCE OF RECURRENCE IN THE FIRST TWO YEARS. Simply put IF (again IF) you were going to have a recurrence, the first two years is the timeframe when it is most likely to occur. After that, the chances continue to drop. Also, generally speaking, the medical profession starts the clock ticking on NED status from the date of your last treatment....be it radiation, surgery or chemo....generally not just from surgery and definately NOT from dx.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

Grace14
Posts: 418
Joined: Mon Oct 24, 2011 7:42 pm

Re: For stage 2's Ned for how long?

Postby Grace14 » Fri May 17, 2013 12:48 pm

Thanks for the info Jaynee! I always thought it was surgery! Bummer!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

weisssoccermom
Posts: 5979
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: For stage 2's Ned for how long?

Postby weisssoccermom » Fri May 17, 2013 2:04 pm

However....you're still more than two years out from your last treatment (assuming it the FOLFOX in your signature). Even if you didn't start the FOLFOX until say September....I'm guessing you were done by the end of the calendar year 2010. That still puts you past that TWO YEAR mark. Smile....take a breath.....and go on living your life. I wish I had a crystal ball to tell you everything will be ok, but look at it this way....each and every day you get further and further away from your last chemo date is a better sign :)
Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

Grace14
Posts: 418
Joined: Mon Oct 24, 2011 7:42 pm

Re: For stage 2's Ned for how long?

Postby Grace14 » Fri May 17, 2013 2:14 pm

I know Jaynee! Thank you! I hope and pray to be where you are today! I still have a long way to go!
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: For stage 2's Ned for how long?

Postby elise » Fri May 17, 2013 4:11 pm

surgery was on March 13, 2012 so 14 months NED. Though chemo ended in Nov so I say it's actually 6 months.
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

tahiti
Posts: 19
Joined: Mon Nov 05, 2012 5:03 pm
Facebook Username: Tahiti

Re: For stage 2's Ned for how long?

Postby tahiti » Fri May 17, 2013 5:29 pm

Stage 2B here.

I'm about 9.5 months NED from surgery, and 2 months from chemo. Since started chemo, I've had a CAT, MRI (both clean) and surgery (non CC-related - they looked around all my organs while in there and it's all good). I have another (hopefully last - repairing a hernia from my colectomy and again they'll root around and make sure everything's ok).

====================
DX Stage IIB - july 2012 - age 44
partial colectomy - august 2012 - age 45
started chemo 10/1/12
ended 3/13/13
CAT 4/15 NED

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kimmercans
Posts: 364
Joined: Sat Nov 21, 2009 11:38 am
Facebook Username: kimschlagel@msn.com

Re: For stage 2's Ned for how long?

Postby kimmercans » Fri May 17, 2013 7:07 pm

Diagnosed Stage 2a in 10/09. 0 out of only 9 nodes tested. Poorly differentiated tumor. Opted out of Folfox.
NED...clean scan 4/18/13
Kimberly Age 54 Diagnosed at 44
Dx'd rectal ca 10/12/09
LAR,TME 10/14/2009 Stage 2a
Opted out of Folfox.
4/19/12 CT scan clear NED CEA<0.5
10/2019 still NED
Taking curcumin, Celebrex, vitamin d, digestive enzymes, bio identical hormone replacement.
2015 to present. Stopped all surveillance. Living life one glorious day at a time.

rickker20
Posts: 118
Joined: Sat Apr 17, 2010 1:55 pm
Location: Houston Texas

Re: For stage 2's Ned for how long?

Postby rickker20 » Fri May 17, 2013 9:02 pm

Will be 4 years in September. Getting closer to the 5 year mark.
Rectal Cancer 6/09
Stage 1 T2
9 days of 5fu
2 days of Avastin
5 weeks of Radiation
Lar 9/09 failed
Pull thru surgery 10/09
Rectum Removel,38 lymph nodes remove all cancer free
6 weeks of 5fu & Folfox
Bag reversal 6/10 & Port remove
Cancer free

sofarsogood
Posts: 36
Joined: Sun Nov 20, 2011 10:00 pm

Re: For stage 2's Ned for how long?

Postby sofarsogood » Fri May 17, 2013 9:06 pm

2 years 8 months here with surgery only. Have a great Aunt that had a resection in her 50's, she's now 92 and going strong.
Dx Sept. '10, age 49
Surgery Sept."10
Stage IIA
NED so far

tobasco39
Posts: 56
Joined: Wed Feb 06, 2008 4:54 pm
Location: Indiana

Re: For stage 2's Ned for how long?

Postby tobasco39 » Fri May 17, 2013 10:20 pm

Diagnosed October 2007 stage iia colon cancer near cecum. Resection only with 29 lymph nodes removed. No chemo. Last ct scan December 2012 clean. Done with ct's. Will see oncologist yearly now for blood work only! Yippee

Tobasco39


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