mariane wrote:So happy to see all the amazing stories!
I am reaching 8 years myself.
Thank you cptmac whom I probably own my life. I found her post on a forum and pursued her line of treatment. Thank you Cynthia! You encouraged me at the beginning of this road. I followed you to MSKCC where Dr Kemeny took a good care of me.
I have been doing well. Since 2021 I go once a year for checkups. My HAI pump got removed in the middle of Covid 2 years ago. My twins are 14 this spring and going to high school soon.
All the best!
Woo Hoo!!! Thank you so much for the update and for sharing YOUR amazing story. It gives people sooo much hope!!!