Who are the longest stage 4 survivor's on here?

[PersephoneInLA]

I'd like to hear how many and how long for those who haven't had surgery. My husband is at the 20 month mark - no surgery for Stage 4 RC. he's had to skip the irinotecan since December due to low platelets (lowest was 52) but I put him on papaya leaf extract for the last two weeks and they've risen to 76 but since we are off to London next month, our onc didn't wanted to compromise his immune system any further so he did just Avastin and will stick with Xeloda. Scanxiety this week as well as awaiting his CEA results on Monday. He hit a new low last visit at 11.3. Luckily it's a very good marker for him. Should be interesting to see what that is doing with the lack of the iri.

Cat

[NedPlease]

Nothing to brag about- close to three years for me. I've never entertained much beyond three years, but I now have more hope. Thanks for this post.

[tawni's mom]

This is sooo encouraging! Thanks for posting all the possitives, and hopeful outlooks.

[Kathryn in MN]

I'm no where near the longest, but I'm at 3 1/2 years now.

[tytiff]

Tyler will be 2yrs NED in March 2013, was diagnosed Aug 09. We're not at the top now, but shooting for it! Congrats on your longevity!

Tiff

[pabl]

I am not so long---but since 2009. 4 years ago I was diagnosed stage 3 but for a small lung met that went unnoticed till Dec. '11 (thus stage 4). Now I am clear since having VATS surgery then with no additional chemo. Scanning again soon in Feb., so hoping I will still be clear (over 1 year by then).

I have to add that taking NAC (n-acetylcistein peptide supplement) since last few months has helped my digestion issues immensely. I used to think psyllium was the answer...now I suggest looking into NAC for bathroom issues. Supposedly it kills the h-pylori bacteria. Another thing about peptides like NAC is that they help our bodies increase glutathione levels (the body's main antioxident) and they reduce inflammation which has been implicated in metastisis (I learned this from a researcher that I know).

--Pam

[skypup]

I've made it over 4.5 years. Considering that I haven't had much NED time, that's not too bad. And I'm still percolating along...

[pabl]

I started this stuff in '09. I either had a recurrence or it was always there--lung met removed last year (they had seen it ever-so-small on the previous scan 6-8 mos. earlier). I will soon see if I am 1 year cancer free sometime in Feb. when I get scanned. Early on, I remember thinking that I look forward to someday looking way far back on this stuff.

[Ashlee H.]

I'm a baby in this group...but sure would have like to have seen this thread when I was DX 3 1/2 years ago....and considering I was only given 6 months, I'm very happy to still be here. Still in the race, but still here.

[wwroam]

http://www.colonclub.com/the-2009-colon ... mber-2009/

Quite probably Todd Collitti, Mr. November 2009 Colondar Model.

[mungo]

Congratulations -great news ! I celebrated reaching 6 years this December. Some ups and downs along the way but NED at recent scan.

[mjkelley]

This week marked my three year since diagnosis.

I have NOT had any surgery. I have multilple (un-numerable stated on my scan report) mets in my liver. I have been on Chemo all along, and am so fortunate that it's keeping my tumors stable.

[tdsamal]

Dang this post is making me feel really happy! It's great to see how many of you have a lot of years past your dx. I am 3 1/2 years from my dx, which I felt like was the end of my life. Now I feel a little better with each Dr appt that I will be here another 5. I don't feel real good some of the time (chemo did a number on my body) but I am still here and enjoying each and every day.
Tammy

[mich]

There was a lady who was already 9 or 10 years living with stage 4 who had a article on line about her journey...I dont remember her name,but I really want to find that article again. She was kind of famous to the CC world,and I may have initially got her name off this board.
I remember she was writing about quality of life , and wanted people to know her truth about the journey of living with stage 4 CC.
Does anyone remember her name?

[SoConfused]

There was a lady who was already 9 or 10 years living with stage 4 who had a article on line about her journey...I dont remember her name,but I really want to find that article again. She was kind of famous to the CC world,and I may have initially got her name off this board.
I remember she was writing about quality of life , and wanted people to know her truth about the journey of living with stage 4 CC.
Does anyone remember her name?

Suzanne Lindley?