Forgive me if I'm re-posting here as well as Re:
News on the 'other' anti PD-1: Nivolumab. Immunotherapy, as I feel this is an important trial to let everyone know status on.
Update on status of Hubby entering into Los Angeles
Ipilimumab and Nivolumab combo clinical trialAs noted, we were told in LA that hubby might be excluded for his
Microsatellite status (he is
MSI-S or stable),
they also told us that they were not yet recruiting. We were ahead of the recruitment status and had made an appointment anyway to perhaps gain a waiting place in line. Like camping out in front of stores at Christmas
I sent several emails off to
San Francisco (who is now listed as recruiting) and asked for
clarification as to whether indeed MSI status would be a factor. Here is there answer:
"
The arm for patients with MSI stable is currently on hold at this time. I will know by the end of June when it will be open. I'm currently out of the office so I will check for a status update upon my return on 6/23. I'm sorry for the inconvenience."
I had been told by another person running a clinical trial that t
hey sometimes pause trials while they compile data, or an
event making them take pause & a hard look occurs. I'm hoping it is the first, or perhaps they are just getting the teams in place and totally informed prior to starting the trial in a new clinic, or a new "arm" (segment). I will let everyone know when I find the answer.
I did look thru these postings and noticed
Busymommaof3 may also be trying out for this same clinical trial. Hopefully she does too and we can both give updates to pave the path for anyone behind us or at least share notes of how each is holding up/ side effects/ or
Woo-Hoo moments. I also LOVE to hear is
Anyone is in consideration or enrolled currently!
We are also waiting for Cat Scan to let us know hubby's status of the small trial he is currently in. It is the two month trial status update to check against baseline tests prior to starting the trial. I am praying he does well, but am looking forward as usual to determine the next move. There is always a mandatory wash out period (2-3 weeks to allow any previous treatments to clear out of his system, before a new one gets introduced). I also have to take into consideration the other 4 trials that ARE currently available in LA, that are geared towards his
HIGH expressions in CMET and VEGFR2As many of you can attest to,
ANYTHING to do with Cancer is stressful. For us, it intensified as soon as he finished 3 lines of standard care and we ventured into the "
Clinical Trial World". Here you are faced with forks in the road, minimal or unknown responses/ side effects, often times less info available (for even the most avid researchers).
I greatly appreciate ANY news I get here from anyone. It is what spurs me on, and
keeps HOPE alive under our roof at night.
MANY heartfelt THANKS!!!!!
Best Wishes,
Wife of Mike,
Vicki