For those who have NOT had recurrance whatever the stage

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pmterra
Posts: 599
Joined: Fri Jul 01, 2011 6:12 pm

Re: For those who have NOT had recurrance whatever the stage

Postby pmterra » Sun Dec 30, 2012 6:49 pm

Husband diagnosed 3C in June, 2008 - 4 1/2 years NED - no recurrence!!! Still check in b/c I feel a connection here but as Ski said I'm hoping 2008 was a bump in the road! Everyone says, I'll believe it when I see it - it should be..When you Believe you will see it :)
caregiver to survivor husband
Stage 3C - Colon
surgery June, 2008
6 mo. chemo/FOLFOX & Avastin
June 2015 - 7 year survivor :)

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Bev G
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Location: Quechee, VT

Re: For those who have NOT had recurrance whatever the stage

Postby Bev G » Sun Dec 30, 2012 9:02 pm

Diagnosed stage IVa 12/09, no new cancer since diagnosis. Here all the time...just because, and because, and because. Had colon resection, liver resection, fair amount of chemo, but nothing like many of my pals around here have had. Also, type 1 diabetes since 1966 (age 11). Also, some other stuff. Also, husband has stage IV lymphoma since 1/12, going back in to kick some malignant lymph node ass next week.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

BrendaB
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Location: Minnesota

Re: For those who have NOT had recurrance whatever the stage

Postby BrendaB » Sun Dec 30, 2012 9:12 pm

Diagnosed 10/11 stage III, had an early scan just to be sure a couple of spots on my liver weren't growing and they weren't. So, finished chemo June and still NED and knocking on wood.
I feel like cancer has left my constant thoughts but still check in to see how everyone is doing and for up to date info.
10-27-11 Diagnosed CC
11-15-11 Colon resection, complete hyst.
Staged T3N1a, one out of 33 lymph nodes
12-11 Started Oxali and Xeloda, 8 rounds
6-8-12 Very last dose of Xeloda!
6-26-12 CT scan results, NED!
7-26-12 Ilieo. reversal, port out

guest321
Posts: 15
Joined: Sat Nov 21, 2009 10:52 pm

Re: For those who have NOT had recurrance whatever the stage

Postby guest321 » Sun Dec 30, 2012 9:22 pm

My husband, Matt, was diagnosed IIIC in April of 2009. He completed 12 rounds of FOLFOX. As a family we completely changed the way we eat and live (we all excersize more). We are vegetarian and juice daily. Matt just had his annual semi annual CT scan and also a PET scan ( his Dr. wanted to do one due to the fact that he had not had one since his inital diagnosis). Both scans were done in December and both were NED. I pray for all on the CC board. Never lose hope!
Hsbd dx @ 37 IIIC CC 8/29LN
HNPCC Neg
sig colec 4/09-Finished 12 of Folfox 12/09
CT 5/12 NED

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PGLGreg
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Location: Waimanalo, HI

Re: For those who have NOT had recurrance whatever the stage

Postby PGLGreg » Sun Dec 30, 2012 9:34 pm

No recurrence here. It's 7 years now. I'm on a 6 month schedule of blood tests and followups, and once yearly CT scans. I had a CT scan and blood tests shortly before Christmas -- still all clear.
Greg
stage 2a rectal cancer 11/05 at age 63
LAR 12/05 with adjuvant radiation+5FU,leucovorin 1-2/06
NED for 12 years, cured

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Nanette
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Re: For those who have NOT had recurrance whatever the stage

Postby Nanette » Sun Dec 30, 2012 9:52 pm

Hubby Bruce dx. with stage III December 2008. It's been 4+ year's with no recurrence! I still check in to see how everyone is doing, but don't post as much.

-Nanette
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

Mattie61
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Facebook Username: Sue Ann M Anderson

Re: For those who have NOT had recurrance whatever the stage

Postby Mattie61 » Sun Dec 30, 2012 10:24 pm

I have not yet had a recurrence. Jan 2013 marks 2 year NEDs. No progression or new disease for almost three years. Stage IVb.
4/10 Hysterectomy, appendectomy, colon resection, 13/16 LN
DX stage IV CC @ 49, Follow up Pet/CT: 1.4cm liver Met, 2-4 active LN
5/10-11/11 Folfox/Xeloda/Avastin
4/13 Resect return of Liver and Pelvic node

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Rob in PA
Posts: 2005
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: For those who have NOT had recurrance whatever the stage

Postby Rob in PA » Sun Dec 30, 2012 10:59 pm

Diagnosed November 2007. NED since July 8) . I come and go in waves on this site. I've learned so much from so many folks on this site. Sometimes it brings me down a little bit when I see so much sad news, but I know at least a couple of folks that I was able to help out by sharing my experiences and that really makes me feel good. I figure if I gotta go through all this, then hopefully something good can come out of it whether it be participating in clinical trials or sharing my experiences.

Rock on 2013!

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

lydia123
Posts: 771
Joined: Sun Jul 04, 2010 11:23 am

Re: For those who have NOT had recurrance whatever the stage

Postby lydia123 » Mon Dec 31, 2012 7:13 am

So far, so good. Next drs appointment will be three years.

Initial diagnosis inMay 2010.

I know how much I needed to read posts by people who were back to living life and not living through chemo, so I try to stay.

I certainly feel like my husband's treatment days are long past, but he is not and probably will never be "past" some of the physical side effects of treatment: neuropathy, easily fatigued, and the struggles of life with a radiated digestive tract. I have my own health issues, and we have fewer resouces for dealing with that than we used to. We're living our lives, in some ways better lives, but cancer remains more than a bump on the road for us.

L
lydia123
caregiver to husband dx stage III colon/rectal cancer 5/10
6/10 surgery
7/10: FOLFOX began -- became nausea management expert
12/10: Chemo-radiation ended, scans clean.
NED since, but some scans required follow-up

Peloton

Re: For those who have NOT had recurrance whatever the stage

Postby Peloton » Mon Dec 31, 2012 9:06 am

Diagnosed with stage 3c rectal cancer in August 2010. LAR was nearly two years ago to the day (1/4/2011). Treatments ended in June 2011.

NED ever since and still check this site at least two times a week. Although heartbreaking at times, the CC is an incredible resource and I am very thankful for it.

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CaliforniaBagMan
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Location: California

Re: For those who have NOT had recurrance whatever the stage

Postby CaliforniaBagMan » Mon Dec 31, 2012 9:22 am

Dx Stage III in July 2007, surgery in Nov 2007. Pathology showed T4 tissue invasion but no positive nodes. Two nodes were suspicious pre-surgery but rad might have fixed that. Chemo and rad before surgery, chemo after except it was aborted due to side effects. I was thankful to get to NED but I had more severe side effects than probably anything I have read anywhere else. My onc said "if it affects you that strongly, it also affects the cancer that strongly." Barely made it through.

5 year checkup was this year, doc said "cured, now get out of my office." Actually that was kind of nice to hear, of course.
CT guided biopsy on mass - still NED !!!
CT scan finds new 2x3cm mass on 10/09
APR surgery 11/07; NED thereafter
Folfox/radiation 9/07-10/07
DX Stage III rectal cancer 7/07

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Jimswife
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Joined: Fri Nov 18, 2011 9:53 am

Re: For those who have NOT had recurrance whatever the stage

Postby Jimswife » Mon Dec 31, 2012 9:27 am

My husbands been pretty lucky really , no post surgical / treatment issues that are too bad ... Of course he still has the numbness in his hands and feets but a small price to pay to be cancer free .... Hoping to remain forever cancer free but as Lydia said this will never be as small a a bump in the road for us , it's conpletly changed out life's and affected us all as a family .
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Karen32
Posts: 180
Joined: Wed Oct 27, 2010 10:38 am
Location: Buffalo, NY

Re: For those who have NOT had recurrance whatever the stage

Postby Karen32 » Mon Dec 31, 2012 10:52 am

I was Diagnosed stage IIIC in September 2010. Completed 12 rounds of Folfox and all with Oxali. I still have neuropathy in my feet, but thats a small price to pay if I continue to stay in NED-land. I still visit everyday to every other day, but have never been a huge contributor. Usually by the time I log in questions have been answered and responses posted. I rarely have anything to add at that point.

Despite the fact that I am not a major contributor, I know most of your stories and pray for all, swing chickens for all, grieve for many, and shed both tears of sadness and celebration. I am in awe of the many people here who attack cancer for themselves and their loved ones with the spririt they do.

Wishing you all the very best for the New Year!
dx at 37 YoA
9.9.10 Dx Stage IIIC Colon Cancer
9.9.10 Temp colostomy
12.3.10 Started Chemo; Folfox
2.18.11 Negative for HNPCC
4.29.11 Pet results show NED!
9.22.11 Clean scope! :)
11.7.11 Reversal failed
CT Scan results show NED: 8/11, 3/12, 3/13

adina91
Posts: 490
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Facebook Username: Adina Jewett
Location: Los Angeles, CA
Contact:

Re: For those who have NOT had recurrance whatever the stage

Postby adina91 » Mon Dec 31, 2012 12:13 pm

Thanks for posting this Victoria! What a great and inspirational thread. I am also 3 years post dx and NED. I come here every day still to check in but post much less frequently. It is very hard to come here and not see the names of those who have passed away. My next scan is in two months. Again, this thread has really made me feel more hopeful and at peace then I have in a long time. Cheers to ALL of us!
Adina 42 yo, mom of 2 sons (5,9)
11/2009 - DX-2B CC-Sigmoid resect/colostomy
Lynch Synd MSH2
1/2010 - FLOX chemo
5/2010 - Subtotal colectomy/hyster/ileostomy
Stage 3A - 1/42 LN +
8/2010 - Chemo done
10/18/2010 - ileostomy takedown
2010 - 2015 - NED
5/1/15 - "suspicious" area in liver on CT
5/14/15 - follow up PET says no metastatic disease
6/19/15 - MRI - NED!

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GreenLakeGirl
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Joined: Mon Jan 18, 2010 5:55 am
Location: Pacific NW

Re: For those who have NOT had recurrance whatever the stage

Postby GreenLakeGirl » Mon Dec 31, 2012 2:36 pm

I'm another stage IIIer who's been disease free since surgery and chemo. It was a long treatment road though (five surgeries plus chemo over the first two years), and I'm still dealing with the fatigue—and probably depression, although I'm not ready to admit that out loud. Like many of my fellow oldtimers, I don't post often anymore. My treatment memories are fading, but I do try to jump in if I see questions about IBD, j-pouches, abscesses, or parenting toddlers while going through treatment. I think we all have special topics we watch for. :)
2009, age 37 with a 2yo: CC, IIIB (T4N1M0). IBD history
2010-11: FOLFOX, 12 rounds. 5 surgeries (3-step Ileal j-pouch, infection, VATS)
Currently NED.
Mom, you can go the hard way if you want, but the easy way is much easier. ~my 3yo


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