Calling ALL Colorectal CANUCKS !

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
CRguy
Posts: 10291
Joined: Sun Feb 10, 2008 6:00 pm

Happy Canada 'EH !!!

Postby CRguy » Wed Jul 01, 2020 11:44 am

Wishing all Colorectal Canucks and those who love us

HAPPY CANADA DAY ... 'eh !!!!

Cheers and best wishes
Stayin' Covid SAFEREST !!!!

Harmony
on the Journey

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
CRguy
Posts: 10291
Joined: Sun Feb 10, 2008 6:00 pm

COVID vaccine rollout for Colorectal CANUCKS !

Postby CRguy » Mon Mar 08, 2021 8:11 pm

Topic has been too quiet .... SO
what better way to re-activate it than with a COVID discussion :shock:

DIL getting first Pfizer today at last minute notice. She is a Nurse / Nursing Admin and in/out of all kinds of hot spots so :
I agree = first liner in the medical profession gets the vax.

My mother 92 yr old, has to phone for a reservation, phone lines all clogged / crashed
for some future date, waiting to hear back ... yada yada yada

typical gov't political bullshit = make appearances to make it LOOK GOOD
and deal with the fallout later when the backlash dies down AFTER the screw up...
EXCEPT HERE, what may die down are the folks who ALSO need the vax the most NOW !
:twisted: :twisted: :twisted:

Any good vax rollout stories are more than welcome from north of 49

Cheers everyone and “Let's Be Careful Out There.”
CRguy

(( bonus points if you can name that quote ... WITHOUT a search engine :twisted: :mrgreen: ))


UPDATED :
after being on the phone at 7 am and getting robo recall messages back thru the entire day
there was actually a connection to a REAL LIVE PERSON :shock:
AT
wait for it ......
5 PM

at least we are moving FORWARD here
painful as it may seem
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
GrouseMan
Posts: 857
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: COVID vaccine rollout for Colorectal CANUCKS !

Postby GrouseMan » Thu Mar 11, 2021 1:52 pm

CRguy wrote:Topic has been too quiet .... SO


Cheers everyone and “Let's Be Careful Out There.”
CRguy

(( bonus points if you can name that quote ... WITHOUT a search engine :twisted: :mrgreen: ))


Hill Street Blues my friend. And no I didn't use a search engine. I was a fan of the show.

Anyway, something I read today is that its important for Cancer patents to get their booster shot of the Pfizer vaccine. The first jab protects them less than the general population. So although you got the first shot - please be vigilant still until after you receive the second at which point you should have about the same levels of protection it appears. I don't have a link it was something that came across one of my news feeds and now I can't find it again when I want to. Maybe someone else has seen this and can add a link to the article? I don't think its publish trial results yet.

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

User avatar
CRguy
Posts: 10291
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Thu Mar 11, 2021 2:19 pm

Correct you are buddy !!!!
Congrats !

The sub-populations who "may" not respond as per clinical trial cohorts are ALSO problematic,
so thank you for bringing that up as well. I understand that real world data IS what is needed for vaccine follow ups
BUTT ....
The practice of delaying the second Pfizer dose up here is NOT backed by any real science IMO.
It appears political : "get as many doses into as many arms ASAP" kind of thing
WITHOUT the science behind it. I am not a happy camper about this.

Still lots to be ironed out it seems

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
Green Tea
Posts: 367
Joined: Mon Oct 24, 2016 10:48 am

Re: COVID vaccine rollout for Colorectal CANUCKS !

Postby Green Tea » Thu Mar 11, 2021 2:28 pm

GrouseMan wrote:
Anyway, something I read today is that its important for Cancer patents to get their booster shot of the Pfizer vaccine. The first jab protects them less than the general population. So although you got the first shot - please be vigilant still until after you receive the second at which point you should have about the same levels of protection it appears. I don't have a link it was something that came across one of my news feeds and now I can't find it again when I want to. Maybe someone else has seen this and can add a link to the article? I don't think its publish trial results yet.

GrouseMan

https://medicalxpress.com/news/2021-03-pfizer-biontech-dose-cancer-patients-insufficient.html

User avatar
CRguy
Posts: 10291
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Fri Mar 12, 2021 4:21 pm

Thanks for that update info.
They are leaving up to 4 months between doses as a new "plan" here and I am 100 % against that idea even for non cancer patients :twisted:
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Dionca
Posts: 48
Joined: Sat Dec 02, 2017 2:04 am

Re: Calling ALL Colorectal CANUCKS !

Postby Dionca » Sun Mar 14, 2021 4:50 pm

Here's another link that was posted by a doctor on the Ontario Vaccine Task Force (Dr Isaac Bogoch) he seems to be the only one concerned about this. It seems crazy to go from the recommended 3 weeks between shots to 16 weeks - that seems like too much of a stretch, even for a healthy individual, and it seems like too many people could be left unprotected. The Ontario vaccine rollout has been a real shambles so far (websites crashing and unanswered phones, etc.). Leaving major medical decisions to politicians and the army is not such a great idea.

https://www.kcl.ac.uk/news/delaying-sec ... able-virus
stage 3b T3 N1b MX 2/27 nodes (surgery 4/2015)
moderately differentiated
PNI - positive
LVI - positive
Folfox 12 sessions (w/out oxi for 11 & 12)
Neulasta with 3-12 due to low WBC count
CEA at diagnosis 8.6
CEA after surgery 1.2
CEA during chemo 4.6 / 3.3 / 2.3
CEA after chemo 1.5 / 1.2 / 1.2 /1.2 /1.2 / 1.4 / 1.1 / 1.2 / 1.9 / 1.3 / 1.6 /1.4 /1.5
neuropathy
recurrence in left lung (surgery May 2020)

User avatar
CRguy
Posts: 10291
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Mon Apr 12, 2021 1:57 pm

Just a quick update :
Received the Pfizer vaccine today with the potential recall for second dose by July 13,
which puts it at 3 months not 4 !

I am good with that for now.

Cheers all and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
CRguy
Posts: 10291
Joined: Sun Feb 10, 2008 6:00 pm

Re: Calling ALL Colorectal CANUCKS !

Postby CRguy » Tue Apr 13, 2021 11:04 pm

Wife just got Moderna today so ...
I guess we can just do our own in house research comparison with N=2 ! :shock:

So Far
all good for both of us

Stay safe and Cheers to ALL
On The Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 3 guests