The Colon Club

crikklekay wrote:My husband’s second scan is coming up next month, if it’s clear he will be at 2 years NED! I’m a nervous wreck over it, I know 2 years is an important milestone. I guess technically he has had no signs of disease since surgery early 2018 but he wasn’t given the title NED until after his clear scan the summer of 2018. It gives me hope seeing people with NED in the double digits! Please send well wishes and good luck our way

I hope that all is well in his upcoming scan. I'm still not sure when you measure NED as surgery should get rid of it if it isn't anywhere else. There's also the idea of survival rates and when that starts. I had thought that it was from diagnosis but I'm not sure. It's good to knock down the milestones.

Just passed year ten post resection surgery.

Considering the extensive lymph node involvement I feel pretty fortunate.

10 year mark for me too—so John & I are nearly twins!

I made it home from my surgery the day before my 60th birthday and am blessed and grateful to have just turned 70!

It's been a great bonus decade—both my daughters got married and I've seen the birth of 3 granddaughters, so I couldn't be more content.

I know how concerned and nearly overwhelmed I was when I started this journey, so I hope my story brings a ray of encouragement to others.

The colon club has been a great help to me—so a big shout out of thanks to the members I've known, both present and absent!

-Bill

Congratulations. Great to hear you're through the Big 10, Bill.
And thanks for your insights and longitudinal comments on long term Folfox effects. NMS

It's been a great bonus decade—both my daughters got married and I've seen the birth of 3 granddaughters, so I couldn't be more content.

Just one and 2 g'sons here, so far.

Bumping this thread back to the top for some new folks. It's been awhile & time to bring back.

Lee

Thank you for bumping this topic up for newcomers like me.

I needed to see all these positive stories right now. So anxious about my husbands situation but seeing how well you guys have all done fills me with hope.

Thank you ❤️

Lee wrote:Bumping this thread back to the top for some new folks. It's been awhile & time to bring back.

I'm hoping to bump it next month with good news.

Hello Dear Friends.

I came back here today after a friend asked me for advice on colonoscopy prep. NO PLACE ON EARTH has more to say on colonoscopy prep. I saw this thread and decided to drop in. So I am saying hello. I was lydia123 back then. Y'all were a wonderful resource and source of kindness and support to me back then and I am forever grateful.

My husband's diagnosis was close to ten years ago now. He is alive and well and NED. Never had a recurrence. Took a few years after diagnosis before scans would come back without complications and weirdness (like, hmmm, "that telescoping... could be normal for you, or it could be a recurrance. we'll check again in three months")

A few years back, he graduated from oncology care and just has the occasional colonoscopy.

He still has a sensitive digestive system (radiation burns, and not enough colon), and sometimes this limits our lives, but we'll take it.

Wishing everyone well.

Lydia.

IIIB, sigmoid colon, some lymph nodes positive.
treated with FOLFOX until the Oxi got to be too much, then switched to the pill so he could get radiation.

Celebrated year 13 cancer free in December 2020 from stage IIIb. Blessed and fortunate to have no recurrences, clean scans and colonoscopies.

Hi all
I celebrated 13 years NED last month !
How are all the old timers doing these days ?
Good wishes to everyone, stay safe x

Just popping in to say I "graduated" today. 5 years post chemo, got a clean scan and good CEA. Officially cured and only have colonoscopies on the horizon (currently every 3 years). I remember how important it was to read good news as well as bad here so wanted to offer some hope for those who are just starting this journey.

I was diagnosed 4/2012 and am still cancer free. I have a colonoscopy scheduled for 4/27. Fingers crossed.

It’s really great to hear all this good news for someone just starting this process. I’m IIIA right now and praying for the best.

I am now four years past diagnosis and been NED since 7/31/17. My doc is going to discharge me from MDAnderson in September if everything remains clear. Thanks to you folks here who were absolutely wonderful when I came strolling in knowing nothing about rectal cancer, other than that I had it at age 40!

I began this thread in 2009 when I was Stage III. Three years later I had a dime sized liver met and 80% of my liver removed. In late 2018 my onc discharged me as cured.

I'm doing very well. I go months without thinking about cancer. This is my first time to have a colonoscopy after a 5 year 'wait' so that's a bit freaky, but the only polyp I've ever had was the one in 2009 which was cancerous.

Hang in there, everyone! I had chemo when FOLFOX was just becoming common. I still have loads of side effects from the chemo, but I'm alive and well at age 70!

God bless,
Diane