For Stage III's: NED for how long now?

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wwroam
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Re: For Stage III's: NED for how long now?

Postby wwroam » Tue Nov 17, 2009 1:00 am

Also Stage IIIa ( 1 lymph node). Resection date 25th August 2007. As of last Friday, still doing OK ( rocksteady CEA).
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

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CaliforniaBagMan
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Re: For Stage III's: NED for how long now?

Postby CaliforniaBagMan » Tue Nov 17, 2009 10:44 am

Dx as Stage III in July, 2007. Surgery in November, 2007 and NED thereafter.

Just had a scare (Oct '09) caused by a new 2x3 cm mass found on a routine CT scan. Pet was inconclusive, biopsy showed dead tissue as an aftermath of radiation treatments from almost 2 years ago. So, whew, still NED.
CT guided biopsy on mass - still NED !!!
CT scan finds new 2x3cm mass on 10/09
APR surgery 11/07; NED thereafter
Folfox/radiation 9/07-10/07
DX Stage III rectal cancer 7/07

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eitter
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Re: For Stage III's: NED for how long now?

Postby eitter » Tue Nov 17, 2009 10:59 am

Liz Dennis Reporting in and Reporting in NED since Oct 2006. And I am wondering if I am the only Stage III to not have Chemo after surgery. am I?!
Blessings,
Liz DENNIS
Tempe,AZ
DX 05/06 Rectal
6 Weeks radiation with 5FU
LAR 10/06 Stage III
Temp Ileo, reversal failed in 05/07 after 1m in hospital came out with a permanent colostomy
http://www.runlizrun.com

dynx
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Re: For Stage III's: NED for how long now?

Postby dynx » Tue Nov 17, 2009 11:50 am

dx Aug 2004 stage lll 1/3 LN sigmoid area removed CEA 2.5 CT read normal
Sep 2004 emergency surgery removed some transverse and some small intestine appendix ovary illeostomy weight 86 lbs
Oct 2004 Small repair surgery on stoma
Jan to July 7 2005 Folfox gained weight on chemo
Dec 2005 take down surgery

I was told Stage 3 has to be 5 years from last chemo treatment so I am 4 years 4 months NED. My CEA is back up to 2.5 on my last blood test which is in normal range. I don't know if I will ever feel really cured.
CT scan=ok CEA=2.6
Aug 2004 colonscopy couldn't get probe past cancer
1-Dx Stage 3 1/3 LN
Sep 2004 2-Emergency lost some transverse colon,ovary,appendix and some small intestine
Jan 2005 weight 86 lbs
Jan 2005 - July 2005 Folfox
Dec 2005 3-takedown

Dori
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Re: For Stage III's: NED for how long now?

Postby Dori » Tue Nov 17, 2009 12:58 pm

I was NED after surgery in May 08' and I finished chemo in late November 08'. I was still NED at my last scan about six weeks ago, and I have another scan coming up at the end of the year.

I'm still quite terrified because of all my 'negative prognostic factors', but I am doing better (mentally) all the time.

Dori
47 years old
Stage IIIC, high grade signet ring, 14 out of 18 nodes affected
Colon resection 5/15/08
FOLFOX 6/08 - 11/08
Mom to a great 11 (!!) yo girl
Currently NED

sbstantial
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Re: For Stage III's: NED for how long now?

Postby sbstantial » Tue Nov 17, 2009 2:01 pm

NED AS OF 09/09 FROM COLON 3, THYROID 1 AND BREAST 1. BREAST WAS 07, THYROID 08? AND COLON 09.

BIG, BIG TESTS COMING 2 WEEKS BEFORE XMAS, NOW I AM GETTING TO PUT UP DECORATIONS DAY AFTER THANKSGIVING INCASE I GET BAD NEWS AND IT RUINS MY XMAS, BOO, HOO.

I AM HAVING A 2 FOR 1 XMAS GIFT PACKAGE. MY COSTA RICAN ENDOSCOPIC BIG DOCTOR IS GOING TO PLACE A TUBE IN MY RECTUM AND A TUBE DOWN MY THROAT. WHEN THEY MEET IN THE MIDDLE WE WILL ALL SING JINGLE BELLS (not!!!!). JUST A LITTLE HUMOR.

GLORIA ANN
MY BATTLE WITH CANCER BEGAN IN 2006. BREAST 1. THYROID 1, COLON 3 AND NOW LIVER 4. HAVE BEEN ON FOLFOX SINCE LAST YEAR. I NOW AM STARTING MY 5TH YEAR IN 2011. I HAVE BEEN TOLD THAT I MIGHT GO ON FOR 3 MORE YEARS. IT IS IN GOD'S HANDS.

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Bob Bones
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Re: For Stage III's: NED for how long now?

Postby Bob Bones » Tue Nov 17, 2009 3:50 pm

Rapidly approaching the 4 year mark. No idea if I'm still NED because in the UK then stop all scans after the first 2 years. So here's hoping I still NED and looking forward to reaching the magic year 5
Sigmoid Tumor 5cm T(3) , 11/23 nodes
Stage IIIC at age 37, Poorly differentiated
Surgery 23/01/06 ( Laparoscopic )
Converted to Formal because of my anatomy!
6 months of Xeloda
NED 10 years (touch wood)
Lynch Syndrome MSH2

Lee
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Re: For Stage III's: NED for how long now?

Postby Lee » Tue Nov 17, 2009 5:08 pm

sbstantial wrote:I AM HAVING A 2 FOR 1 XMAS GIFT PACKAGE. MY COSTA RICAN ENDOSCOPIC BIG DOCTOR IS GOING TO PLACE A TUBE IN MY RECTUM AND A TUBE DOWN MY THROAT. WHEN THEY MEET IN THE MIDDLE WE WILL ALL SING JINGLE BELLS (not!!!!). JUST A LITTLE HUMOR.

GLORIA ANN


My husband gets those 2 for 1 specials also. He does not have cancer, but does have Barrett's disease, which means he has a higher chance of developing cancer in certain areas.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Guest

Re: For Stage III's: NED for how long now?

Postby Guest » Tue Nov 17, 2009 5:19 pm

Diane, i don,t think it,s survivors guilt, or boredom, me I don,t post as often now as I,m just trying to move on and not think of cancer 24hrs a day.
I think I,m NED, except for a liver nodule which is still there but stable. Next CAT scan, jan 2010. As everyone says..the fear is still there.
janey

perks007
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Re: For Stage III's: NED for how long now?

Postby perks007 » Tue Nov 17, 2009 5:57 pm

Stage 3a -

NED for 2 hours now. Was just unhooked from my 5FU pump 2 hours ago. PET scan two weeks ago was all clear. I look forward to the day I can say I'm NED for 5 years.
DX 4/17/09 Rectal cancer - age 41
Stage IIIa - T1N1MO
LAR 4/29/09
12 rounds 5FU started 6/11/09
6 Rounds Oxaliplatin -Stopped at 6 because of neuropathy
4 Rounds irinotecan - in place of Oxi

JAZZToo
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Location: New York City

Re: For Stage III's: NED for how long now?

Postby JAZZToo » Tue Nov 17, 2009 7:49 pm

Almost 6 1/2 years NED from Stage III

NED since Surgery Stage III colon cancer with 2+nodes 6/2003
Chemo ended 2/2004

Sally1898
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Re: For Stage III's: NED for how long now?

Postby Sally1898 » Tue Nov 17, 2009 8:50 pm

Jan 2010 will make 12 yrs. for me-- not sure exactly when 'Ned' became part of my world . . .
Dx:St. 3 rectal ca. on 1-8-98 at age 31. Perm. colostomy,friends refer to it as 'Pedro'.Favorite sentiment:Poop happens!!!

Ron50
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Re: For Stage III's: NED for how long now?

Postby Ron50 » Wed Nov 18, 2009 1:34 am

Stage 3c 6/13 nodes Jan 2010 Will also be 12 years for me,cheers Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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dianetavegia
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Re: For Stage III's: NED for how long now?

Postby dianetavegia » Wed Nov 18, 2009 2:51 pm

This is very inspiring. 8)
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

NWgirl
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Re: For Stage III's: NED for how long now?

Postby NWgirl » Wed Nov 18, 2009 3:04 pm

Diane - when I had my CT scan this August, I finally got up the courage to ask my oncologist if there was a chance I might actually live. He said yes - with each clear CT, the chances become more in my favor; though I'm certainly not out of the woods yet. That was almost 2 years from my intial diagnosis - and the first time in two years that I actually considered I might live. Before then, I was too afraid to even ask the question. I'd focused the past 2 years on dying - and all the things I should process in my mind around my death. That said, I would also tell myself "someone has to make up those survival stats - why not me?"

You're right - it is very encouraging to read all the posts from survivors - especially those who have survived longer than you have! Yeah! One day at a time......
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model


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