For Stage III's: NED for how long now?

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PainInTheAss
Posts: 678
Joined: Tue Jul 02, 2013 3:08 am

Re: For Stage III's: NED for how long now?

Postby PainInTheAss » Fri Apr 05, 2024 4:07 pm

Pagola44 wrote:it seems a lot of people had reoccurrences :(


Not me!!

Going on 11 years NED.

When I was diagnosed, I was told I was as close to a stage IV as you could get without actually being a stage IV.

The radiation oncologist told me my chances were 50/50.

It was very scary and for months I believed I was going to die. Obviously, I was wrong.

My oncologist told me after surgery that he believed I would be cured based on my response to chemo-rad. I didn't have a complete response, but I had a "pretty good" response with just trace cancer cells left.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

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horizon
Posts: 1678
Joined: Tue Apr 12, 2011 10:10 pm

Re: For Stage III's: NED for how long now?

Postby horizon » Wed Apr 10, 2024 9:04 am

PainInTheAss wrote:The radiation oncologist told me my chances were 50/50.

It was very scary and for months I believed I was going to die. Obviously, I was wrong.


Can't imagine how scary that was. I told mine not to give me statistics because I knew I would obsess over them!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

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John72
Posts: 351
Joined: Fri Jan 28, 2011 3:06 am
Location: Los Angeles

Re: For Stage III's: NED for how long now?

Postby John72 » Sun Oct 20, 2024 5:56 pm

horizon wrote:
PainInTheAss wrote:The radiation oncologist told me my chances were 50/50.

It was very scary and for months I believed I was going to die. Obviously, I was wrong.


Can't imagine how scary that was. I told mine not to give me statistics because I knew I would obsess over them!


Same thing for me. Oncologist told me 50-50.

Someone at the time posted a calculator used by one of the major cancer centers and it was more like 30-70 and not in my favor, due to node involvement and another poor prognosticating factor.

One the plus side, the radiation doctor said “we want you to live 40 or 50 more years but I do need to let you know about the possible risks with radiation”

I do notice that survival rates are pretty drastically increased since I was diagnosed.

Anyway, July was 14 years post surgery so a pretty good run so far. For those that don’t know, I believe Horizon was also 3C and began posting here within a few months of when I did back in 2010 or 2011.

For a little additional hope, I’m 52 now, I’ve gotten married since diagnosis and treatment(wife and I just celebrated our ten year anniversary in Las Vegas), I re found God and Jesus, I’ve promoted 2 times more at my workplace of 24 years, and with any luck I’ll be going Friday to watch my beloved Dodgers with my dad who is 82.
7/13/10 CC
7/23/10 -3C RC, 7cm,15/33 lymph nodes
8/31/10 5 1/2 weeks of radiation + Xeloda
11/12/10 6 rounds Oxy + Xeloda
3/25/11 Finished chemo
6/15/11 Colostomy reversal followed by infections
9/05/14 Clear CT scan

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horizon
Posts: 1678
Joined: Tue Apr 12, 2011 10:10 pm

Re: For Stage III's: NED for how long now?

Postby horizon » Sat Nov 02, 2024 9:56 am

John72 wrote:Anyway, July was 14 years post surgery so a pretty good run so far. For those that don’t know, I believe Horizon was also 3C and began posting here within a few months of when I did back in 2010 or 2011.


I'm so pitiful I don't even remember my exact staging! It was stage 3 with lymph node involvement, but the smallest amount possible I think. Glad we're both still around and doing well!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?


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