I am now 15 months since my right hemi colectomy and removal of the 23+ lymph nodes and all vessels. My surgery was a result of a rare tumor found during a 'routine' appendectomy. The tumor was a cancer, an Appendiceal Carcinoid that was 2.5cm in size. Things were going alright, I was getting used to my new normal, having learned that I have to run to the bathroom within 20 minutes max. I am also a brain cancer survivor and during my last visit to my neurosurgeon they did some labs as a result of some issues I'm having and found that i am severely Vitamin D deficient. I started the therapy for that, 50,000 units weekly for 3 months. In the last month I have started having an inability to control my bowels no matter what I eat, I can barely make it to the bathroom if I make it at all. I have even woke up in bed having messed myself. I did some blood tests today as well as stool tests, and I see my doctor on Monday to hopefully get some answers. I just don't know what to do...I a, 37 years old and I refuse to give in to this disease, but do not know what to do! I have had no chemo, radiation, or anything else, other than surgery. Any ideas would be great!
Jill