Need recommendations for a cream for neuropathy

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Chloe
Posts: 4
Joined: Thu May 25, 2023 11:31 am

Need recommendations for a cream for neuropathy

Postby Chloe » Tue Mar 19, 2024 5:18 pm

Hello!

I underwent 12 sessions of FOLFOX regimen 8 years ago. Neuropathy first appeared after the 11th session, but then disappeared, and I was strongly advised to go through with the last session. I was told that since neuropathy appeared so late in the treatment, it will disappear again. But when it returned after the 12th session, it refused to go away.

Burt's bees honey & bilberry foot cream which I read about on this forum helps with my hands (although perversely not with the feet, but then nothing helps with the feet), but now the company has discontinued this product, and their other products don't help me. I also use Devil's club soothing rub which helps my hands somewhat, but not as well as Burt's. I was recommended capsaicin, but it only made my symptoms worse.

I wonder if anybody knows of a soothing cream that helps with neuropathy?

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CRguy
Posts: 10482
Joined: Sun Feb 10, 2008 6:00 pm

Re: Need recommendations for a cream for neuropathy

Postby CRguy » Wed Mar 20, 2024 3:49 pm

You may wish to peruse some of the posts in this search result from the forum

search.php?st=0&sk=t&sd=d&sr=posts&keywords=cream+neuropathy

Best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

PainInTheAss
Posts: 678
Joined: Tue Jul 02, 2013 3:08 am

Re: Need recommendations for a cream for neuropathy

Postby PainInTheAss » Fri Apr 05, 2024 4:54 pm

Chloe wrote:Hello!

I underwent 12 sessions of FOLFOX regimen 8 years ago. Neuropathy first appeared after the 11th session, but then disappeared, and I was strongly advised to go through with the last session. I was told that since neuropathy appeared so late in the treatment, it will disappear again. But when it returned after the 12th session, it refused to go away.

Burt's bees honey & bilberry foot cream which I read about on this forum helps with my hands (although perversely not with the feet, but then nothing helps with the feet), but now the company has discontinued this product, and their other products don't help me. I also use Devil's club soothing rub which helps my hands somewhat, but not as well as Burt's. I was recommended capsaicin, but it only made my symptoms worse.

I wonder if anybody knows of a soothing cream that helps with neuropathy?


I don't, but I remember hearing that you can start developing neuropathy and it can get worse for up to three months after your last chemo treatment, so I don't know why they told you that.

Mine got worse after my last treatment.

I never used any cream or medication, but it's still been slowly improving each year. It's pretty much gone in my hands now.

I'm sorry it's still bother you!
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

Deb-o
Posts: 11
Joined: Mon Sep 13, 2021 7:55 pm

Re: Need recommendations for a cream for neuropathy

Postby Deb-o » Thu Apr 18, 2024 8:59 pm

It takes time to get better. My neuropathy started occurring in my hands & feet on the last round of Folfox (9 rounds total). At first it was just a tingling sensation in my finger tips and my feet. It spread to my whole hands and up into the calf of my legs. Mine got worse, before improving. Now 3.5 years after my last chemo treatment my hands are kinda numb feeling, but no painful tingling. It only effects my feet and my legs are totally normal feeling.
I have used Blue Stop as a rub on my hands and feet.
DX 1/17/20 CRC
3C T3N1M0
3/20 6 wks radiation & Xeloda
5/27/30 Resection LAR robotic surgery, ileostomy placed
7/13/20-11/25/20 9 rounds of Folfox
CEA at DX 29.7
4/21 1.3
8/21 0.9
12/21 0.9
4/22 0.9
10/22 0.8
4/23 0.9
10/23 1.0
4/24. 1.1
CT, colonoscopy, MRI
1/20
CT of lungs & liver 2/20 NED
CT:
7/20 NED
1/21 NED
8/21 NED
4/22 NED
4/23 NED
4/24 NED

Deb-o
Posts: 11
Joined: Mon Sep 13, 2021 7:55 pm

Re: Need recommendations for a cream for neuropathy

Postby Deb-o » Thu Apr 18, 2024 8:59 pm

I also have used neurop away.


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