My Current Protocol——-All Thoughts/Criticism Welcomed

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beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sat Jan 15, 2022 6:14 pm

Ah, Artmenisin, sweet wormwood. I have researched it extensively. Supposedly according to one impressive study it was found to kill cancer cells with great active success. Builds natural killer cells, ect. Anti- parasitic, anti-cancer and other ailments. Good choice probably!
What is your administration dosage/time schedule for the 21 days?
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 320
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sat Jan 15, 2022 10:27 pm

beach sunrise wrote:Ah, Artmenisin, sweet wormwood. I have researched it extensively. Supposedly according to one impressive study it was found to kill cancer cells with great active success. Builds natural killer cells, ect. Anti- parasitic, anti-cancer and other ailments. Good choice probably!
What is your administration dosage/time schedule for the 21 days?


Artemisinin Protocol Version One:

Version one uses liposomal artemisinin from Healthy Drops and artesunate from Hepalin:

Each morning for 21 straight days swallow two tablespoons of liposomal artemisinin (1,200 mg) from Healthy Drops.

Chase the liposomal artemisinin with 200 mg of grapefruit juice, 2 capsules of sodium butyrate and 1-2 capsules of piperine.

As well, take 500 mg of artesunate on a pulse basis along with the liposomal artemisinin meaning that you take the artesunate for 3 days with the lipsomal artemisinin and then take four days off of the artesunate (but keep taking the liposomal artemisinin).

Note that on this version you should take 20-30 mg of a heme based iron with 500 mg of vitamin C every other night with your evening meals before taking the liposomal artemisinin.

All credit to Curt Michael Graydon
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

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beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sat Jan 15, 2022 11:00 pm

Thanks! I will check it out. Powerful stuff!
Was going to mention iron as enhancer but you already know :)
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 320
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sun Jan 16, 2022 11:51 am

beach sunrise wrote:Thanks! I will check it out. Powerful stuff!
Was going to mention iron as enhancer but you already know :)


Am I crazy for even hoping that all this alternative stuff can get me to remission?
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

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beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sun Jan 16, 2022 12:27 pm

Just my opinion here: Nope, not crazy at all. It seems people do better when they advocate for themselves with personalized treatment. So, you are on the right track for sure.
Really, by going personalized, pulling in an ND and intergrative would reveal more set targets to block pathways involved in spread.
All the things you have mentioned that you are trying are things I have had discussions of with ND and intergrative.
Example: For me, we closely watch certain pathways (3 of them) that my cancer tries to spread to while keeping an eye on other ones to make sure they don't become out of balance. With cancer, it tries every way it can to set up camp using several ways if needed. Concentrating on one protocol might be good idea for you if you only have one pathway cancer keeps trying to break through but for me I have to use several different protocols based on different pathways out of range to bring them back into range. So far nothing to report "on scans" but CEA is still out of range and bloodwork shows something is going on. I am trying to beat it to death slowly over time I guess is the best way to say it by using several different protocols at the same time.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 320
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sun Jan 16, 2022 12:34 pm

Thoughtful, as always, Beach Sunrise.

Thank you.

My new oncologist (Dr Formenti) asked me what I do/did.

My answer was “ Well, for the past two years Ive been a cancer researcher.” She kinda chuckled.

But it’s the sad truth.

Here’s hoping your bloodwork improves this year.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sun Jan 16, 2022 12:43 pm

I got tickled at that truth too!
Being an active researcher is great, but sucks too.
Do you know your weak pathways?
Artemisinin from what I've read targets several which is why is it so good to have in the arsenal. Common dose I've seen a few times is 450-600mg B.I.D. along with low dose iron.
Are you still on the other protocol also? The one with DMSO and grapefruit juice?
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 320
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Mon Jan 17, 2022 9:18 am

beach sunrise wrote:I got tickled at that truth too!
Being an active researcher is great, but sucks too.
Do you know your weak pathways?
Artemisinin from what I've read targets several which is why is it so good to have in the arsenal. Common dose I've seen a few times is 450-600mg B.I.D. along with low dose iron.
Are you still on the other protocol also? The one with DMSO and grapefruit juice?


Currently doing 1900 mg fenbendazole dissolved in dmso/2000 mg curcumin/50mg cbd oil, split doses of cimetidine, tablespoon black seed oil, tudca, serrapeptase, nattokinase

The serrapeptase and nattokinase are an attempt to dissolve internal scar tissue which has really negatively affected my mobility and ability to exercise.

I do 6 clicks of ivermectin dissolved in vodka every fourth day.

I will start the above artemisinin protocol feb 1 in advance of march 14 scans in nyc.

If doctors decide to delay treatment/rescan, I will hit them with 45 day rso, and tri weekly iv vitamin c.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sat Jan 22, 2022 7:19 pm

IVC is a good idea! It is the top thing I do to stay sable and kill cancer. So much research documented about it on orthomolecular.org
How are your liver counts with using grapefruit juice and dmso?
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 320
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sun Jan 23, 2022 7:57 am

beach sunrise wrote:IVC is a good idea! It is the top thing I do to stay sable and kill cancer. So much research documented about it on orthomolecular.org
How are your liver counts with using grapefruit juice and dmso?


I take tudca before bed for liver support.

No problems so far.

Very nervous, leery about scans in march.

I really do not want to start treatments.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sun Jan 30, 2022 5:24 pm

I feel ya on scans. Surgeon says if nothing shows up in March we will move to 6 month scans instead of the 3 month ones we have been doing. He and onc think maybe something else is going on because of CEA and nothing found in 2 1/2 years except the primary tumor. I'm not convinced at all and argue the point with both of them that mCRC can hide for up to 10 years+ then BAM you are stage IV with limited standard options or find your own path.
I have Signatera next week and scan in March also.
A big expanded blood panel next week too.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 320
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Mon Jan 31, 2022 11:40 am

beach sunrise wrote:I feel ya on scans. Surgeon says if nothing shows up in March we will move to 6 month scans instead of the 3 month ones we have been doing. He and onc think maybe something else is going on because of CEA and nothing found in 2 1/2 years except the primary tumor. I'm not convinced at all and argue the point with both of them that mCRC can hide for up to 10 years+ then BAM you are stage IV with limited standard options or find your own path.
I have Signatera next week and scan in March also.
A big expanded blood panel next week too.


Here’s hoping/praying that somehow, some way we both get some good news.

I think I am/will be at inflection point in march.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

prayingforccr
Posts: 320
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Mon Jan 31, 2022 1:49 pm

prayingforccr wrote:
beach sunrise wrote:I feel ya on scans. Surgeon says if nothing shows up in March we will move to 6 month scans instead of the 3 month ones we have been doing. He and onc think maybe something else is going on because of CEA and nothing found in 2 1/2 years except the primary tumor. I'm not convinced at all and argue the point with both of them that mCRC can hide for up to 10 years+ then BAM you are stage IV with limited standard options or find your own path.
I have Signatera next week and scan in March also.
A big expanded blood panel next week too.


Here’s hoping/praying that somehow, some way we both get some good news.

I’m most worried about the primary recurring because that would be lights out for me.

I asked if I should get colonoscopy/anoscopy after my latest ct, but was told no.

I think I am/will be at inflection point in march.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Mon Jan 31, 2022 10:00 pm

Recurring is always a worry.
Keep immune system high and inflammation (markers) low.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 320
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Feb 01, 2022 6:56 am

“ There is nothing in those modalities to indicate that we are suspicious of that. ”

I’ll take it. I guess.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.


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