For Stage III's: NED for how long now?

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itsfineimanurse
Posts: 5
Joined: Wed Apr 29, 2020 6:49 pm

Re: For Stage III's: NED for how long now?

Postby itsfineimanurse » Thu May 20, 2021 12:12 am

Not a huge milestone compared to a lot of you (well done!!) BUTT I graduated from every 3 month scans and labs to every 6 months! Clear colonoscopy last week and clear scans today!

I had to share somewhere where people knew the EXACT feelings that come with news like this! Thanks for "listening" :)

God bless xx
Diagnosed at 34- 2 kids (now 4 and 2)
Dx. T3b N1a RC 01/2020
FOLFOX 01-05/2020
Xeloda + Radiation 06-07/2020
LAR/Diverting Ileostomy 9/2020- Pathological Complete Response!
Clear Scan 11/2020
Ileostomy Reversal 02/2021
Clear Scan 02/2021, 05/2021- graduated from 3 to 6 month scans/labs

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John72
Posts: 344
Joined: Fri Jan 28, 2011 3:06 am
Location: Los Angeles

Re: For Stage III's: NED for how long now?

Postby John72 » Fri May 21, 2021 11:13 pm

I don’t know if this really deserves its own thread, so maybe put it here and people can follow his career. I’m a huge baseball fan. In 2019 Trey Mancini of the Baltimore Orioles had a great season after a couple years showing great promise. Then last year at 27 or 28 years old he was diagnosed with Stage 3 colon cancer and missed the whole season. He passed the one year mark a couple months ago and is currently leading the American League in RBI’s, a strong hitting measurement.
7/13/10 CC
7/23/10 -3C RC, 7cm,15/33 lymph nodes
8/31/10 5 1/2 weeks of radiation + Xeloda
11/12/10 6 rounds Oxy + Xeloda
3/25/11 Finished chemo
6/15/11 Colostomy reversal followed by infections
9/05/14 Clear CT scan

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dianetavegia
Posts: 2728
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: For Stage III's: NED for how long now?

Postby dianetavegia » Sun May 23, 2021 8:13 am

Daryl Strawberry had colon cancer which spread to his kidney way back in 1998 AND 2000.

In 1998, Strawberry was diagnosed with colon cancer and had surgery to remove 24 inches of his colon. When doctors learned the cancer had spread to a nearby lymph node, he underwent chemotherapy, returning to the field in 1999. The cancer returned and spread to his kidney and lymph nodes in 2000, and he underwent more surgery.
With his new book Turn Your Season Around: How God Transforms Your Life publishing next week, Strawberry’s mission to spread his faith and tell others about the lessons he learned through his battles is taking the spotlight.

“[Strawberry’s] new book, coming out Jan. 12, 2021 … deals with everything: the drinking, the addiction, the jail time, the two bouts of colon cancer,” The New York Post‘s Mike Vaccaro writes. “And here Darryl still is, a traveling minister teaching kids the evils of opioids. May he do that for years to come.”

https://www.survivornet.com/articles/fo ... g-miracle/
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

12 years since dx and 9 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

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John72
Posts: 344
Joined: Fri Jan 28, 2011 3:06 am
Location: Los Angeles

Re: For Stage III's: NED for how long now?

Postby John72 » Sat Jul 24, 2021 5:04 pm

11 years post surgery. I can’t even remember the exact surgery date anymore. I think it was the 22nd.

Actually have to check with my primary care physician and see if I am due for a colonoscopy.
7/13/10 CC
7/23/10 -3C RC, 7cm,15/33 lymph nodes
8/31/10 5 1/2 weeks of radiation + Xeloda
11/12/10 6 rounds Oxy + Xeloda
3/25/11 Finished chemo
6/15/11 Colostomy reversal followed by infections
9/05/14 Clear CT scan

TiredandTroubled
Posts: 27
Joined: Sat Jul 10, 2021 7:11 am

Re: For Stage III's: NED for how long now?

Postby TiredandTroubled » Sat Jul 31, 2021 4:14 am

Bumping because I need more good news.
29F DX 7/19
CC Sigmoid Colon
Adenocarcinoma
5.2 cm x 2.4 cm
G2
T3N2aM0
Stage III
5/15 positive LN
Baseline CEA: 16
LVI, PNI present
Clear margins
MSS
Sigmoid Colectomy

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Jacques
Posts: 600
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: For Stage III's: NED for how long now?

Postby Jacques » Sat Jul 31, 2021 6:36 am

TiredandTroubled wrote:Bumping because I need more good news.

The good news is this: If you are Stage III and if you diligently adhere to the "Three Pillars of Survivorship", then you are highly likely to finish the 5-year follow-up period in "complete remission". There are many Stage III's here who have successfully taken this path.

O Stoma Mia wrote:There are three pillars of cancer prevention:(1) Regular exercise, (2) Healthy, well-balanced meals, and (3) Stress reduction program. You would need to develop a program to follow in each of these three areas. For you, development of an effective stress reduction program may be the most important, because long-term stress can lead to an impaired immune system, and this is what can encourage cancer to come back:

...Secondary prevention (maintaining a healthy body weight and active lifestyle) is recommended...."

Reference: Follow-Up Care, Surveillance Protocol, and Secondary Prevention Measures for Survivors of Colorectal Cancer:
American Society of Clinical Oncology Clinical Practice Guideline Endorsement

https://www.ncbi.nlm.nih.gov/pubmed/24220554

RickMurtagh
Posts: 90
Joined: Fri Feb 26, 2010 1:32 pm
Location: Randolph, NJ

Re: For Stage III's: NED for how long now?

Postby RickMurtagh » Sat Jul 31, 2021 9:44 pm

I dunno. 10 years maybe. Maybe the little bio thingy at the end of my post will tell me. After all thees years all my doctor appts, etc have been wiped from my calendar on my phone and computers, I still have the CAT scan, MRI , PET scan, fluoroscope, X-ray, ultrasound, etc on my phone "just in case."
Rick, 61
DX III two tumors Feb 09
Chemo/rad March 09
Ileo June 09
FOLFOX July 09
Takedown April 10
Mets to the sacrum and presacral area March 11 - NOT
Chronic infection of sacrum that looked like cancer (including a blockage)!
Permanent ileo April 11


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