Update Well its time for a CT Scan

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jumpman50512
Posts: 22
Joined: Thu Jan 10, 2019 10:36 pm

Update Well its time for a CT Scan

Postby jumpman50512 » Thu Apr 01, 2021 10:00 pm

Hello everyone

Well, today I went to the doctor to get the results of my bloodwork, and well it went up from 5.9 to 8.8 in a matter of two months. Which really sucks oh well. Now I have a CT scan scheduled next week and a pet scan which I had anyways to be pushed. The doctor said it could be nothing but who knows. I just think it's weird since I feel fine I feel strong I started lifting weights again I am unsure why it went up now. Well here goes everything. Just wondering if anyone has had a reoccurrence and went and got surgery and was NED for the rest of their life. thanks guys
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
2/1/21 CEA at 5.8
CEA currently at 8.8 (4/1/21)
Clean CT Scan 4/15/21

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beach sunrise
Posts: 418
Joined: Thu Mar 05, 2020 7:14 pm

Re: Update Well its time for a CT Scan

Postby beach sunrise » Thu Apr 01, 2021 10:25 pm

It does put you on edge for sure. Is there anything fishy in bloodwork?
My bloodwork has always been great, scans clear but cea is 10 now. Scans every 3mths. Bloodwork every 2wks.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

jumpman50512
Posts: 22
Joined: Thu Jan 10, 2019 10:36 pm

Re: Update Well its time for a CT Scan

Postby jumpman50512 » Thu Apr 01, 2021 10:28 pm

Yup, it does. I am just hoping if it's anything there is a chance for surgery and not a lot of chemo. And not that I know of he just said CEA is at 8.8 and since my PET scan came out clean 2 months ago he thinks it might be something really small probably less than 1cm since the pet scan did not pick it up.
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
2/1/21 CEA at 5.8
CEA currently at 8.8 (4/1/21)
Clean CT Scan 4/15/21

User avatar
beach sunrise
Posts: 418
Joined: Thu Mar 05, 2020 7:14 pm

Re: Update Well its time for a CT Scan

Postby beach sunrise » Thu Apr 01, 2021 10:42 pm

I bring up exploratory surgery every single time to my surgeon. He just shakes his head and says NOOO, we have to have a target. My response is always lets find it by you putting on your superman glasses and go to surgery. He thinks thats the craziest thing.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

jumpman50512
Posts: 22
Joined: Thu Jan 10, 2019 10:36 pm

Re: Update Well its time for a CT Scan

Postby jumpman50512 » Thu Apr 01, 2021 11:07 pm

haha I like your attitude wish I had the same attitude. Doctor said it could show up in my lungs maybe also but hey who knows. My parent's always telling me to try natural stuff but to be honest in my opinion none of that stuff works.
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
2/1/21 CEA at 5.8
CEA currently at 8.8 (4/1/21)
Clean CT Scan 4/15/21

stu
Posts: 1464
Joined: Sat Aug 17, 2013 5:46 pm

Re: Update Well its time for a CT Scan

Postby stu » Fri Apr 02, 2021 2:42 am

Answering your question on long term survival. Yes my mum had hit a few recurrence bumps on the road and living a good life despite of them . They became less frequent until the stopped .
The last one was removed at 8 mm ! Before it could make an impact really .
Five years clear and attribute it to robust scanning and getting it removed early .
Hope it all goes well ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


DarknessEmbraced
Posts: 3583
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Update Well its time for a CT Scan

Postby DarknessEmbraced » Fri Apr 02, 2021 11:57 am

I hope you get good scans.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

NHMike
Posts: 2527
Joined: Fri Jul 21, 2017 3:43 am

Re: Update Well its time for a CT Scan

Postby NHMike » Sat Apr 03, 2021 5:25 pm

I had an unexplainable rise in CEA through chemo such that my Oncologist ordered a CT scan and found nothing. I believe the rise was exercise-related. I charted the rise in CEA against the number of steps I took and it correlated nicely.

Scans with contrast should find any area with unusual activity.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

boxhill
Posts: 702
Joined: Fri Apr 06, 2018 11:40 am

Re: Update Well its time for a CT Scan

Postby boxhill » Sun Apr 11, 2021 10:47 am

My CEA had risen to just above 8 and now is around 7. My oncologist told me on Thursday that CEA may well be linked to inflammation in general, so my acquisition of RA at some point during the last two years could have driven it up, and the RA treatments could be bringing it down. Through all of this I have been NED. The lowest my CEA has been was at diagnosis/surgery, when I had substantial cancer, and they said it wasn't a marker for me. The whole thing is puzzling! If you recently started weight training, that could well account for a rise.

Hope your scan goes well.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

User avatar
beach sunrise
Posts: 418
Joined: Thu Mar 05, 2020 7:14 pm

Re: Update Well its time for a CT Scan

Postby beach sunrise » Sun Apr 11, 2021 1:05 pm

As for naturals, there are potent ones out there that road block cancer pathways. But, you need a good intergrative or ND or both to determine what works on your cancer.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

jumpman50512
Posts: 22
Joined: Thu Jan 10, 2019 10:36 pm

Re: Update Well its time for a CT Scan

Postby jumpman50512 » Tue Apr 13, 2021 4:39 pm

thanks for the reply everyone

and just got my ct scan with die in it done

now on thursday i get my results....
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
2/1/21 CEA at 5.8
CEA currently at 8.8 (4/1/21)
Clean CT Scan 4/15/21

boxhill
Posts: 702
Joined: Fri Apr 06, 2018 11:40 am

Re: Update Well its time for a CT Scan

Postby boxhill » Tue Apr 13, 2021 8:06 pm

Fingers crossed!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

jumpman50512
Posts: 22
Joined: Thu Jan 10, 2019 10:36 pm

Re: Update Well its time for a CT Scan

Postby jumpman50512 » Thu Apr 15, 2021 1:19 pm

well

CLEAN SCANS!!!

thank you everything i really do appreciate the replys and the postive energy and prayers
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
2/1/21 CEA at 5.8
CEA currently at 8.8 (4/1/21)
Clean CT Scan 4/15/21

DarknessEmbraced
Posts: 3583
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Update Well its time for a CT Scan

Postby DarknessEmbraced » Thu Apr 15, 2021 1:55 pm

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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