Catdylan1 Sounds like you are stressed enough. Please don’t let RP1954 create more stress/anxiety. Your doctors know what they are doing, listen to them. RP isn’t a doctor and his medical advice is not accepted by any national cancer guidelines. Don’t believe everything you read on the internet. Th...

My local oncologist said drs are sometimes more willing to treat/do surgery if they meet you in person and see that you are in good health. I definitely believe this. The demand from patients to see Dr. Kemeny is intense. Perhaps the gatekeepers (if you will) are trying to winnow the cases down to ...

That makes sense while treatment is happening. I'm wondering what happens post treatment when the pump is still in the body but ONLY getting flushed. That's what I am not quite understanding. Ah, OK. I thought you were making a distinction between the two weeks with FUDR, vs. the two weeks without,...

I think it is just a matter of not taxing the liver with anything "extra" to process. Which makes sense while you're going through chemo, certainly. What doesn't make sense to me is not drinking when you are just flushing it with saline every two weeks after chemo is done. That is somethi...

Well, if it's the case that her attitude has been cultivated by the fact that a large percentage of her patients are in a weak and desperate situation, e.g. "unresectable", then I have even less respect for her as a human being (not as an HAI FUDR expert) than I already have. I'm going to...

I agree that communication could be better. There's a lot that could be better. We are in a much more desperate situation than yours, though, so we'll forgive more. We also feel we have no choice. It appears you do (in that you don't absolutely need HAI). In any case, you are a bulldog and I do admi...

And seriously, after being told by a number of people that she DOES appreciate questions -- she sure has had hour and even hour and half long time for particular patients and their questions -- now, a week before surgery and this rather irritating experience with Dr. K, to say the least, someone ha...

Congrats, Amy! And thank you. Thank you so much. You could have left this all behind you, but have stuck around to share your story, to provide hope for so many of us. Thanks to you and other posters, I learned about HAI for my wife. We would have never known about it otherwise. We are undergoing tr...

A couple of followup points: -- Sorry to say, there are no more Codmans left, not even for Dr. Kemeny's trial. -- We consulted with both City of Hope and MSK for the HAI pump last year. Our first choice was Dr. Kemeny and MSK. If she didn't accept us as patients, our backup was City of Hope. Can fu...

A couple of followup points: -- Sorry to say, there are no more Codmans left, not even for Dr. Kemeny's trial. -- We consulted with both City of Hope and MSK for the HAI pump last year. Our first choice was Dr. Kemeny and MSK. If she didn't accept us as patients, our backup was City of Hope. Can fur...

Would appreciate hearing from folks who have had experience with cimetidine (Tagamet). Looking for tips on usage/dosage for liver surgery (pre and post).

As well, any other supplements I should look into. Thanks in advance for any help!

He is quite active on the various CRC groups on Facebook. Still doing well, and now serving (iirc) as an advocate via Colon Cancer Alliance. The groups are well worth joining for information and networking. I'm not a fan of FB at all, and wouldn't be there if it wasn't for those groups. Feel free to...

Semi-pro tip: Ask all your questions with Sandy. She's Dr. K's buffer, but more importantly, she knows best how to communicate those questions to her. Now, there's no guarantee you'll get an answer (let alone one that satisfies you), but we've found that this works more often than not. More than any...

I will echo what so many others have said already: Please research HAI and Dr. Nancy Kemeny ASAP. Based on your sig line, your husband profiles well for the treatment and could potentially benefit greatly from it. Dr. Kemeny is the ideal, but MSK is not the only facility that does HAI (although it's...

Congrats on being resectable! Both recommendations sound reasonable, with DF being more aggressive. I would also encourage you to seek another opinion at MSKCC, where they do the HAI pump. In your case, I would guess (and that's all it is, you do need to consult with them to find out for sure) that ...