Thank you for your thoughts on this, Rp. Much appreciated. I see sinister things fixing to happen within the next year mostly likely due to increasing profit over patient scenarios. Hands swiping hands.
BCBS also sent thr letter to my onc so our appt will be interesting.

My small one at dx showed up but not lit up. I have PET/CT scan every year. They didn't light up until the 3rd one, 3 1/2 yrs later. And even then only the 5 mm met lit up at 1.3 SUV. Went to Germany, had all 4 taken out and 3 were mets even though just one lit up. I have 3 CT scan per yr (3 month s...

Playbook answer per SOC is what you got. It's not them so of course they are not worried. I would push for 3-6 month scans and bloodwork. What is you CEA? Any panels high or low? I carried a lung met for 3 1/2 yrs (day 1 of dx) before it grew to 5 mm and by that time I had 3 more, One turned out to ...

OK, I got a letter from BCBS stating they put my capcetibine under review and it will be under review every year provided it be rx'd with in network provider. So, are they planning to exclude certain doctors outside of SOC? My onc is intergrative. I can see trouble coming with several scenarios for ...

Supplements that support thymus function according to TCM dr that I take are; Zinc, Selenium (3 brazil nuts per day), vitamin C, vitamin D as DAK with extra K2 supplement, vitamin E and Rieshi mushroom is very good for T cells as well. Not much info about the Thymus on the net but TCM dr impressed m...

TCM dr told me about thymus tapping. He wanted me to trry it twice a day, tapping counter clock wise for 20 seconds or so.
Interesting after researching it.
Just thought I'd pass along this info if anyone wants to research the benefit of thymus tapping.

Hey Dennyp, any updates?

Reading your post and comments I believe you are on the right track. For surgery I will say vitamin D levels drop dramatically so think about that. Inflammation can and most likely sky rocket so keep that in mind too. Both of these are important for recovery. I went to Germany for Rolles laser lung ...

This is such great news!!! I needed good news today
Celebrate the milestone.

Could it be a vitamin deficiency because of chemo he's on. If so, then I would suggest liverworst. It is full of b vitamins, folate, all the things good for healthy RBC's. I take it when Inotice mine are getting low and it brings it up. Tastes terrible but works in about 2-3 weeks you will see resul...

Thanks for the support, Sunny and utahgal! It's exhausting day in day out but as you know we got to do what we got to do. To add, I broke my wrist and fractured 2 bones in the my arm plus a hip fracture 3 weeks ago. I tripped over a cord in the metal shop and bam the concrete floor was right there. ...

Thank you. R_R! I was confused for sure.
Report from Germany is in. They see absolutely nothing on my recent PET/CT scan. Whew I am so happy about that!!!!

Hi skimom, from what I have been reading and watching on youtube about histotropsy is that if liver or ther approved organs are targeted that for now thought is it generates a huge immune response (a wake up call to reconize) to go after other mets such as lungs. I watched a video about it and they ...

Geez Louise! Welcome to the new world of mSOC.
My xeloda rx went from $100 to $165 to now at 260.00 all with in a few refills of each other. I've thought about contacting Germany to see if they could offer cheaper and see if it would cross the border or not.

My CEA was weird after second lung surgery. 3weeks I believe after surgery it was 3.x, then a few weeks later 2.1, then in 3 months time it now sits at 8.x This tells me my body is not abnormally producing CEA because it did get low now high again. Also tells me it will show up again on scan, just w...