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by O Stoma Mia
Sat Aug 24, 2013 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help
Replies: 17
Views: 3436

Re: Need help

...they did the c- scan they found a tumor on his left kidney. He went thru 6 weeks of chemo F5U and radiation fun fun. He [had surgery last week] LAR and [removal of] one kidney. He will have a temp bag and after recovery 4 months chemo ... The rectal surgeon I'm a little confused he said the chem...
by O Stoma Mia
Sat Aug 24, 2013 4:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone use Folfiri w Erbitux with good results?
Replies: 4
Views: 1231

Re: Anyone use Folfiri w Erbitux with good results?

Traveler001 - I don't have any information on the effectiveness of Erbitux, but here are some links to Erbitux side effects, in case you are interested: Erbitux Side Effects http://cancerinfo.cancer.iu.edu/cancerportal/public/treatment/Cetuximab.php#5 http://www.drugs.com/sfx/erbitux-side-effects.h...
by O Stoma Mia
Sat Aug 24, 2013 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help
Replies: 17
Views: 3436

Re: Need help

... We have a nurse coming every 2 days for 3 weeks to train and help us... Hi llupp - Here are two things you might keep in mind when you meet with the ostomy nurse this week: 1. Stoma dermatitis - When the stoma wafer is changed, be sure to check if there is any redness of the skin underneath, an...
by O Stoma Mia
Sat Aug 24, 2013 3:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hernia surgery update
Replies: 1
Views: 645

Re: hernia surgery update

Janet, Any new developments with your husband's health situation? How is he doing now?
by O Stoma Mia
Sat Aug 24, 2013 1:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pelvic discomfort
Replies: 10
Views: 1266

Re: Pelvic discomfort

For the past little while I've had some pelvic discomfort...What could it be? Recurrence? Scar tissue? Bladder infection? ... Cb75 - For your information, the Mayo Clinic has an on-line Symptom Checker that you can use. You just enter your symptoms into the system, and it will give you a list of po...
by O Stoma Mia
Sat Aug 24, 2013 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st Time Poster - 26 yo w/ upcoming colonoscopy (scared!)
Replies: 3
Views: 1289

Re: 1st Time Poster - 26 yo w/ upcoming colonoscopy (scared!

... She recommended having a colonoscopy (scheduled for 9/20) but said the risk of anything serious is very low.... Hopefully it is just hemorrhoids or a stomach ulcer since I do not have many other symptoms... Any advice on keeping this type of stress under control? Hi Therèse -- Welcome to the Fo...
by O Stoma Mia
Fri Aug 23, 2013 9:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help
Replies: 17
Views: 3436

Re: Need help

... We do have an appt. with the nurse on the 16th so I'm sure I will receive info then... Hi llupp - How did your appointment with the nurse go on the 16th? What kind of information did you receive? Did you receive training on how to fit and change a stoma bag? Who is going to change the stoma bag...
by O Stoma Mia
Fri Aug 23, 2013 3:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to Board
Replies: 6
Views: 982

Re: New to Board

I wonder .. if I should hold out for my next colonoscopy, which is scheduled in a few months. Leegwen - If I were in your position, I would not wait until December. For peace of mind, I would try to obtain an expert opinion, perhaps from a different doctor or with a different scanning method. Also,...
by O Stoma Mia
Thu Aug 22, 2013 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Your stories - Anyone with Stage 3 decided against chemo?
Replies: 28
Views: 3493

Re: Your stories - Anyone with Stage 3 decided against chemo

Voxx66 wrote:...obviously if I could have a do over I would take the chemo.


Voxx66 -- I note from your posts that you are going to be starting Chemo on 8/26/13. Which treatment regimen have you decided to use?
by O Stoma Mia
Thu Aug 22, 2013 8:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Which chemo?
Replies: 13
Views: 1668

Re: Which chemo?

Thanks everyone. Just to confirm - the options are: 1) Xeloda (pill) - 2 weeks on, 1 week rest 2) FFOX - Flourouracil, Folinic Acid, Oxaliplatin - Day 1 is infusion at hospital (3 hrs), then 48 hrs with a pump at home, then 11 days rest Hi healingintent - Have you decided which chemo option and whi...
by O Stoma Mia
Thu Aug 22, 2013 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: chnaged from flofox to flofiri
Replies: 1
Views: 598

Re: chnaged from flofox to flofiri

So, after last infusions reaction to the Oxi, I am now on flofiri. ... I am hoping to tolerate the new meds well ... Debbi - If you are on FOLFIRI now, then here are some links to FOLFIRI side effects in case you want to start monitoring how well you tolerate them. FOL-F-IRI FOL - Folinic acid (Leu...
by O Stoma Mia
Thu Aug 22, 2013 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally got a date for surgery
Replies: 3
Views: 630

Re: Finally got a date for surgery

Hi everyone, well I saw my liver surgeon today... Surgery will be on the 26th of August. It's going be the longest 4 weeks of my life... Hi Lisa - Is your liver surgery still on for the 26th? We'll be thinking about you and trusting that the surgeon will make the right decisions in this difficult o...
by O Stoma Mia
Thu Aug 22, 2013 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC Surgery Getting Close! Scared! Questions!
Replies: 19
Views: 4251

Re: HIPEC Surgery Getting Close! Scared! Questions!

... Not to add worry, but as with most colon surgeries there is always the chance of a colostomy (I wound up with one). Talk to the surgical management person about this to be sure. One thing they do is mark a spot on your abdomen where it would be for you, based on how your clothes fall. I wish I ...
by O Stoma Mia
Thu Aug 22, 2013 2:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pain
Replies: 5
Views: 1116

Re: pain

Hi Everyone, I had my second round of chemo on Thursday and on Thursday night I was writhing in all over body pain . ... Has anyone else experienced this? Cherie, It looks like you are on the FOLFOX regimen. (I was on a different one -- XELOX -- so I don't have much to say that's directly relevant ...
by O Stoma Mia
Wed Aug 21, 2013 6:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Which chemo?
Replies: 13
Views: 1668

Re: Which chemo?

healingintent wrote:... The other option is (2) 5Fu + Folinic Acid as pills I think...


Hi healingintent, would you be able to clarify what your Option #2 is? What is the name of the product, how often is it to be administered and for how long? Is it Xeloda that they are talking about?

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