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by mozart13
Sun Jan 28, 2018 11:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306613

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Mozart, congrats on your continued NED, and thanks for posting all the interesting research links! You wellcome. That is great news prs, the further we get from initial response , life will be easier. First couple of years are most critical. You are right about chemo, most likley down the road, it ...
by mozart13
Sat Jan 27, 2018 11:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 28
Views: 4463

Re: Tumor gone, cea level of 1

That is excellent news, tumor is gone. You are on your way to be cured . Chemo I would do, won't be easy, try to start asap after the surgery, results are better if chemo is started right after the surgery. 2 weeks after my chemo/rad, they had hard time finding the spot, if it wasn't for tatoo/ink m...
by mozart13
Thu Jan 25, 2018 3:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306613

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Trial, chemo before chemo/rad, chemo after chemo/rad, we shall see result's before the end of this year. Will be interesting. We have result's chemo/rad than 6 rounds of Folfox. In this trial they are giving 8 rounds of Folfox or 6 rounds of CapeOX. Wonder if anybody on this board is part of that tr...
by mozart13
Wed Jan 24, 2018 11:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306613

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Some interesting pCR(pathological complete response-after surgery) studies: “The patients in group 2–4 received additional 2, 4, or 6 cycles of mFOLFOX6. A comparison between patients who received 6 cycles of mFOLFOX6 and those who received the standard neoadjuvant CRT showed a significant differenc...
by mozart13
Mon Jan 22, 2018 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306613

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My surgeon told me that how we treat rectal cancer will change a lot in 3,4 years. I agree there should be more standarised approach, but right now is hit and miss, pretty much luck. There is huge study/trial right now about W&W in North America, we shall see results in few years. CCR, PCR, surg...
by mozart13
Mon Jan 22, 2018 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Journey
Replies: 59
Views: 9382

Re: Chemotherapy Journey

Watermellon saved me from being dehydrated, there were nights , usually chemo week, my body was burning, I was literally swimming in my sweat, would get up and finish half watermellon in no time. Dehydration could be the cause of constipation, as well as zofran, not sure if you are taking it for nau...
by mozart13
Sun Jan 21, 2018 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox question re: timeline & platletts
Replies: 2
Views: 834

Re: Folfox question re: timeline & platletts

I had few treatments delayed by week, low platlets, was quite happy to have extra week off, at the end didn’t make any difference for me. Once was borderline, so my Oncologist ask me if I wanna stay or go, home was my answer, after that it wasn’t my dessicion to make, I suppose they new my answer. I...
by mozart13
Sun Jan 21, 2018 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another anniversary
Replies: 11
Views: 2016

Re: another anniversary

Congrats !!!
by mozart13
Wed Jan 17, 2018 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306613

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just had MRI and colonoscopy this week. All negative.
It’s been year since I finished chemo/rad.
Not sure if that made much difference, but when they did radiation year ago, they focused on lymph nodes, and nailed it!
by mozart13
Wed Jan 03, 2018 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 3899

Re: Question for Canadians re genomic testing

I am in Ontario as well, my understating is , that testing is offered automaticlly if under 60 years old. For trials I would check Princes Margaret Hospital in Toronto. There is scientist on UofT that discovered potential cure for lung cancer, it looks like they gona start trial soon, might be worth...
by mozart13
Wed Jan 03, 2018 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 3899

Re: Question for Canadians re genomic testing

I was told by my surgeon that I automaticlly qualify for it since I am bellow 60, surgery didn’t happen, so no testing in my case.
by mozart13
Mon Nov 27, 2017 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306613

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Sorry to hear about CEA Riki, and reccurance. Like Susie said, wonder if consolidation therapy would make the difference. Such a spike, your radiologist might be right. Dr. Angelita Habr-Gama did mention in one of conferences, wandering if there is more harm than good in this kind of approach, calli...
by mozart13
Mon Nov 27, 2017 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: List of Watch and Wait hospitals/doctors in the US
Replies: 8
Views: 1715

Re: List of Watch and Wait hospitals/doctors in the US

Loop, Memorial Sloan from NY has ongoing phase 2 trial about W&W, they probablly could provide you with more info. https://www.mskcc.org/cancer-care/clinical-trials/13-213 Good luck! There is tread about this subject on this forum: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t...
by mozart13
Mon Nov 27, 2017 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: List of Watch and Wait hospitals/doctors in the US
Replies: 8
Views: 1715

Re: List of Watch and Wait hospitals/doctors in the US

Loop,
Memorial Sloan from NY has ongoing phase 2 trial about W&W, they probablly could provide you with more info.
https://www.mskcc.org/cancer-care/clini ... als/13-213

Good luck!

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