Shaina You are an amazing person to go through this (as a Mom, I know how your children give you the strength to fight and live beyond what can be imagined.). Thank you for coming here to share your story...honestly. I was told when I was 46 years old with an 8 year old and a 4 year old that I had 1...

Just wanted to check in and see how you were doing. Been thinking about you and your sweet son.
Cynthia

Paradise....before I relaxed, I would get a second opinion from a board certified colorectal oncologist. I have never heard of anyone being cured through cehemo alone. Generally it is used to shrink the cancer to a controlled level so that the areas of cancer can be surgically removed. I think belie...

Stay calm...and remember you are a Mama and you will do what it takes to get through this for your son. I did this....many many rounds of chemo, surgery after surgery, recurrences, trying over and over to hang on for my babies. Set small goals...fight through the fear and keep going and pray....God ...

Good to see you back, Butt! I am not on Stiverga or Opdivo....but I have been on Keytruda for over two years. My oncologist told me that Keytruda and Optivo act very similarly and produce similar side effects. I have had very few side effects at all. I do sometimes have fatigue...and twice int he tw...

I contacted Dr. Kemeny's office...told them my story and sent all fo my records in to her for review and consideration. Several weeks later they called and said that Dr. Kemeny had agreed to take my case and that I needed to come in for an appointment about a week later. I flew in to NYC and met wit...

This is such great news!!!!!!! I am so happy to read your post! Keep us updated as you move toward a long life!!!

Cynthia

Gina is right. I had dozens and dozens of tumors in every section of my liver. I got my HAI pump at MSK after my local oncologist said chemo was my only option. Within 6 months my liver was clear enough to do a resection of one side (the other side was clear) and 6 months later my liver was clear......

What wonderful news, Vana!!!!!
Cynthi8a

This is great news. My Onc mentioned something about FDA approved something, not sure if it was Keytruda, but will talk to him. My TMB is 8, but I want him to do a new test from my last surgery, will talk to him about it. So when you say your Cancer free, are you not doing any regimen at the moment...

The FDA has approved the immunotherapy Keytruda for solid tumors with a tumor mutation burden of 10 or greater. This means that CRC patients with MSS tumors (with TMB of 10+) are able to get insurance coverage for the use of Keytruda! My oncologist had to petition and appeal to get my insurance to c...

I was MSS too, Claudine! Don't brush it off. When "they" say immunotherapy doesn't work for MSS, they are talking about infused agents like Keytruda, and Yervoy, etc. Celine I am MSS with a moderate tumor burden identified in my tumor. My local oncologist had seen some new research that i...

Moni: I would get a second opinion on the HAI pump if possible. I was told that I had no other options and that it would be chemo for the remaining 12-22 months that I had left. I did well on chemo and got a second opinion from an aggressive liver surgeon at MD Anderson. He said I was ready for a li...

Claudine & Rik:
I have the KRAS mutation as well as 10 other mutations in my cancer. They believe this is why immunotherapy is working for me even though I am MSS. My cancer is considered to have an intermediate tumor burden and it is thought that this is why Keytruda is working for me.

Rikki I was on Irinotecan + Xeloda for 2 1/2 years then just Xeloda for 2 years before my cancer couldn’t be controlled with maintenance chemo in this way (I also did multiple rfa’s on lung Mets and had surgery to remove affected lymph nodes.). So the chemo got me 4 1/2 years at which time my oncolo...