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by Peregrine
Mon Jan 22, 2024 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 41
Views: 8962

Re: New guy with old questions.

... Typically I'm a side sleeper who moves side to side often plus I get up normally 3-4 times a night to visit the bathroom . ... Joe Another thought: Maybe your frequent trips to the bathroom are related to Benign Prostatic Hyperplasia (BPH). In your blood test panels do they test for the PSA mar...
by Peregrine
Mon Jan 22, 2024 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 41
Views: 8962

Re: New guy with old questions.

Joe -

Here's some information about port (central line) implantation:

https://www.mskcc.org/cancer-care/patient-education/your-implanted-port
by Peregrine
Mon Jan 22, 2024 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 41
Views: 8962

Re: New guy with old questions.

... I am a bit nervous about how I am going to sleep whilst attached to a pump. Typically I'm a side sleeper who moves side to side often plus I get up normally 3-4 times a night to visit the bathroom. What advice to people here have as regards tips for sleeping with a pump? ... Joe Joe- I understa...
by Peregrine
Mon Jan 22, 2024 2:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24711

Re: STAGE IV RC GUYS AND GALS

Hi Joe, Welcome to Colon Club. You have come to the right place... I agree with Paige. This is the right place for you at this point in time. This support forum provides both informational support and emotional support. Just hang in there and eventually you should be able to get the help you need. ...
by Peregrine
Sun Jan 21, 2024 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24711

Re: STAGE IV RC GUYS AND GALS

My name is Joe. ... This is the first thread on here that I am reading and I look forward to reading many many more threads and learning even more. Joe in NY Hi Joe, and welcome to the Forum! If you want to read some more Stage IV threads, here are a few: NED roll call Stage IV: NED for how long? (...
by Peregrine
Sun Jan 21, 2024 3:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello fellow survivors, I am new to CRC (stage IIIa)
Replies: 5
Views: 1580

Re: Hello fellow survivors, I am new to CRC (stage IIIa)

Hi all, I'm new to the club and will appreciate any advice you have! It's great to see there's a nice community here. I'll state my journey so far, forgive me if my wording or terminology is not descriptive enough. I am otherwise healthy 49m of average height/weight no other medical conditions or m...
by Peregrine
Sat Jan 20, 2024 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 《 The Times They Are a-Changin' 》
Replies: 9
Views: 2295

Re: 《 The Times They Are a-Changin' 》

RP I’m not aware of any issue discussing or linking between this group and FB - I must admit I don’t do it very much (probably just because the interface between platforms is manual and clunky), but no other good reason. The FB groups I admin are all private so I can’t link to or post content here ...
by Peregrine
Thu Jan 18, 2024 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3.5 years result
Replies: 5
Views: 1691

Welcome

Congratulations on your clear scans and low CEA level. I do not know what the CA199 is? I’m new to this space and your post is encouraging. Thank You. Hi GinnyS - Welcome to the Forum. If you're new to this space you can get some additional details about the Forum here: Welcome Wagon For your infor...
by Peregrine
Tue Jan 16, 2024 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: fusobacterium nucleatum
Replies: 3
Views: 1300

Re: fusobacterium nucleatum

Just some thoughts... 1. You might get responses from people if they recognize your tumor mutations. So, if you update your signature with KRAS Q61H, POLD, and TP53, it might help elicit some feedback. . 2. It might help to read up more on biomarkers and gut microbiome. https://fightcolorectalcancer...
by Peregrine
Sat Jan 13, 2024 3:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Bleeding after SBRT Radiation
Replies: 11
Views: 1938

Re: Rectal Bleeding after SBRT Radiation

Sorry, just realized one other thing. Your sig isn’t clear about your initial cancer or surgical procedure. ... Jumpman50512- Yes, your signature is not clear about quite a lot of things, and the dates are all out of order. It would help if you could edit your signature and put everything in correc...
by Peregrine
Fri Jan 12, 2024 1:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Call on Congress 2024
Replies: 0
Views: 2024

Call on Congress 2024

If anybody here is interested in attending Call on Congress, March 9-12, 2024, now is the time to think about registering for the event. After February 1st it will be too late to register and get a room at the sponsoring hotel.
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Recommendation
by Peregrine
Tue Jan 09, 2024 10:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taking steroid medication and Proton-pump inhibitor whilst on FOLFOX
Replies: 7
Views: 1543

Re: Taking steroid medication and Proton-pump inhibitor whilst on FOLFOX

Hey all Question - I was advised to take steroid medication 2 days following my folfox treatment. The last treatment I didn't take it because it always gives me bad stomach cramps ... Pagola44 - You have mentioned abdominal pain or cramps several times in the past. Maybe the problem is related to t...
by Peregrine
Sun Jan 07, 2024 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Loose stools
Replies: 5
Views: 2154

Re: Loose stools

Hi survivor12 - Welcome back to the Forum. It has been a long, long time since you last posted a message here -- over 13 years, in fact. This is your third post since you were diagnosed and treated back in year 2000. I'm sorry to hear that you are having bowel problems again. For rectal cancer patie...
by Peregrine
Sun Jan 07, 2024 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Growth whilst off treatment
Replies: 8
Views: 4528

Re: Melatonin

CoolHandLuke8723: I take mel o tonin at night to suppress cancer growth while I am sleeping. Think there is some posts on mel o tonin on this blog and its benefits. Yes, there are indeed some posts on melatonin here -- over 200 of them, in fact -- but ... you have to spell the word correctly if you...
by Peregrine
Fri Jan 05, 2024 4:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy from FOLFOX?
Replies: 11
Views: 2394

Re: Neuropathy from FOLFOX?

Pagola44 - In the post below, you can scroll down to the bottom and look at the various links and references to Oxaliplatin toxicity, Oxaliplatin de-sensitization, peripheral neuropathy, etc. Side effects management under FOLFOX https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=44542...

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