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by claudine
Thu Mar 12, 2020 8:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 8612

Re: No more chemo?

That was me last night, Siti. I really hope you get good news tomorrow !
by claudine
Thu Mar 12, 2020 3:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Complete response
Replies: 3
Views: 965

Re: Complete response

I've read that for those who can tolerate it, Folfirixi is the best of both worlds and does better than either Folfox or Folfiri alone. Glad that worked for you :D
by claudine
Thu Mar 12, 2020 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lukewarm to positive?
Replies: 52
Views: 21417

Lukewarm to positive?

This morning, DH had the first CEA test since mid-January (when it had crept up to 10.2). This is post-adrenalectomy. His oncologist considers him "cancer free", that's at least how he worded it, which I found a little strange knowing that he still has a lytic tumor in his L4 (hopefully un...
by claudine
Thu Mar 12, 2020 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more chemo?
Replies: 51
Views: 8612

Re: No more chemo?

And just as we were planning our trip to MSK, I got an email from them saying they are not accepting International patients due to the corona virus. Such bad timing! Hopefully it blows over soon.


I was thinking about you and the travel ban from Europe... Just what you needed :(
by claudine
Thu Mar 12, 2020 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Support - Told today I'm on Palliative Care
Replies: 67
Views: 33524

Re: Need Support - Told today I'm on Palliative Care

Daughter is being sent home from college to finish the semester remotely. Needless to say she is upset. It's her first year and she was finally, she said, feeling like a real college student. She's also someone who learns best face-to-face. So, for someone who hasn't done much driving since surgery...
by claudine
Wed Mar 11, 2020 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR REFERENCE - treatment of adrenal metastases
Replies: 17
Views: 3100

Re: FOR REFERENCE - treatment of adrenal metastases

You're most welcome, I've learned a ton through this forum so it's nice to be able to share with others! Because my husband had so many tiny lung nodules, surgery or SBRT were not an option; instead, the hope was to control them through systemic treatment. And they seem to have responded to Folfiri ...
by claudine
Wed Mar 11, 2020 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 3257

Re: Me again, my fave topic: CEA

But monotonic increases for 3 months isn’t a spike, it’s a trend. Nothing to do but wait for the next scan. We're definitely in the same boat. DH's CEA reached a low of 3.2 in July then slowly but steadily increased... Yet the scans showed stability/slight decrease in his tumors (at least up to the...
by claudine
Wed Mar 11, 2020 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost made 5 years and now have a recurrence
Replies: 10
Views: 2064

Re: Almost made 5 years and now have a recurrence

From everything I've read on this forum and online, isolated lung mets are quite treatable, via cryoablation or SBRT. Sorry this happened, but as far as recurrences go, it could have been a lot worse, and hopefully you'll go back to being NED in no time!
by claudine
Wed Mar 11, 2020 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 3257

Re: Me again, my fave topic: CEA

That CEA, I can't tell if it's a blessing or a curse! It's a very good indicator for DH. Last time it was measured (mid January), his was up to 10.2 (he'd been off chemo for a while to prepare for surgery). His next test is tomorrow, the first one post-surgery and after 2 months without chemo... I k...
by claudine
Wed Mar 11, 2020 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still Kicking
Replies: 5
Views: 1599

Re: Still Kicking

You have already been through so much! I am glad you are able to find comfort in your faith. This makes me think of friends who've lost their three sons (1 suicide, 1 car accident, 1 cancer) but still forge ahead, are still present for their friends. Many thoughts your way XXX
by claudine
Wed Mar 11, 2020 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Metastatic Nodules
Replies: 2
Views: 889

Re: Lung Metastatic Nodules

Hello Gloriamazz, My husband had multiple, tiny lung nodules (the largest one was 5mm). Because there were so many, systemic therapy (chemo) was the best approach. He did Folfiri + Avastin and they pretty much disappeared (although he's been off chemo for a while now, I have no idea if they've grown...
by claudine
Mon Mar 09, 2020 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spontaneous expulsion of primary tumor
Replies: 12
Views: 2644

Re: Spontaneous expulsion of primary tumor

Did you save the masses and submit them for biopsy?
by claudine
Mon Mar 09, 2020 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello Again!
Replies: 6
Views: 1491

Re: Hello Again!

I love your positivism, Pollux! Hopefully you can soon become one of those NED folks who come back to cheer us on!
by claudine
Mon Mar 09, 2020 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hubby in denial or just a positive thinker?
Replies: 7
Views: 1614

Re: hubby in denial or just a positive thinker?

Hello Edswife, I concur with what's been said above - especially since your husband has a PET coming soon. There's not much to do in the meantime, so its good that he's in high spirits! My DH leaves all the online readings/advocacy to me; he goes with what his onc says, and even though he's definite...

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