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by O Stoma Mia
Sat Mar 30, 2019 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 38
Views: 5038

Re: Mom’s bag won’t stop leaking

...I’m “on call” tonight if it leaks. Here’s to hoping. Just checking... How is the leak situation now? Still having problems? If leaking turns out to be a chronic problem, there are all kinds of temporary solutions you can try. For example, you can add extra bandaids or wide tape in the area or in...
by O Stoma Mia
Fri Mar 29, 2019 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RGCC test questions
Replies: 7
Views: 2326

Re: RGCC test questions

I’m considering having the RGCC test. I searched the forum and found some general discussions but those were 2-3 years ago. Does anyone have any more recent experience or knowledge about this test and the success when a patient complies with the recommendations? I’m especially interested for mainte...
by O Stoma Mia
Fri Mar 29, 2019 2:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 38
Views: 5038

Re: Mom’s bag won’t stop leaking

MissMolly's post is precious. It contains all of the essential information to start managing stoma bags. For future reference, here is the direct link (Post Bookmark) for her post. You can save this link somewhere so that you can easily find this reference when you need it again, later on. http://co...
by O Stoma Mia
Thu Mar 28, 2019 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gardner's syndrome with Serrated Adenomas
Replies: 3
Views: 775

Re: Gardner's syndrome with Serrated Adenomas

... On Monday, I repeated the lower endoscopy. Again he found a flat 12mm polyp in the right ascending colon. Pathology came back yesterday as sessile serrated adenoma again. Dr. said that it is not if but when this is full blown colon cancer. He doesn't know what to do. I happened to have a regula...
by O Stoma Mia
Thu Mar 28, 2019 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation FAQ
Replies: 8
Views: 997

Re: Radiation FAQ

What type of radiation are you talking about? If it is some kind of internal radiation therapy (e.g, brachytherapy), then you can read about it and its effects in the first article below. if it is a different kind of radiation therapy, then you can click on one of the other links on the left-hand si...
by O Stoma Mia
Tue Mar 26, 2019 1:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to tackle Xeloda side effect
Replies: 11
Views: 2120

Re: How to tackle Xeloda side effect

Hi rp1954, Would you pls let me know what kinds of supplement that may help me? Thanks! You can get this type of information by ordering some tests, under the guidance of a doctor. There are various test panels available to check for nutritional and other deficiencies. For example: http://store.rio...
by O Stoma Mia
Mon Mar 25, 2019 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New blog post by Leighann Sturgin
Replies: 1
Views: 781

New blog post by Leighann Sturgin

Moving Forward https://colonclub.com/moving-forward/ ◄ ◄ Latest blog post by Leighann Sturgin Also, some earlier blog posts by Leighann: Another 10 https://colonclub.com/another-10/ Most Magical Vacation from Hell https://colonclub.com/most-magical-vacation-from-hell/ Colon Cancer Ruined My Kidneys...
by O Stoma Mia
Sun Mar 24, 2019 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan report question
Replies: 3
Views: 983

Re: CT Scan report question

Hi, My last CT report said: " Bones and Soft Tissues: No suspicious osseous or soft tissue lesion. Transitional anatomy is noted in S1." Should I be alarmed about this "transitional anatomy is noted in S1"? On my last visit to both oncologist and surgeon, neither mention about t...
by O Stoma Mia
Sun Mar 24, 2019 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on the Focus4 UK trial?
Replies: 1
Views: 706

Re: Anyone on the Focus4 UK trial?

The first outcome data from the FOCUS4 trial are reported in The Lancet Gastroenterology & Hepatology: ...

by O Stoma Mia
Sun Mar 24, 2019 2:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 2
Views: 944

Re: New here

Hi - I am new here. On Feb 27th I had a colonoscopy which I was having cause I needed and endoscopy to check if I have bleeding veins cause I have cirrhosis good news was I don’t. Bad news is a spot was found in my colon biopsy and was told March 5th it’s colon cancer. I am 39 years old and like an...
by O Stoma Mia
Sat Mar 23, 2019 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pathological downstaging
Replies: 11
Views: 1614

Re: Pathological downstaging

My mom got a verbal prelim report of her pathology from surgery—with her 8 rounds of FolFox and short course radiation, her tumor shrunk from a T3 at diagnosis to a T2 and her lymph nodes went from “more than 4” suspicious nodes to 0/38 cancerous nodes affected. They told her that her pathological ...
by O Stoma Mia
Sat Mar 23, 2019 5:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Preparing a facts & to-do-list for "newcomers"?
Replies: 36
Views: 7962

Re: Preparing a facts & to-do-list for "newcomers"?

Here's another little-known fact relevant for newcomers from the US or Canada:

In the U.S., possible toxicity due to excess folate or Vitamin B9
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50140&hilit=folate#p382499
by O Stoma Mia
Fri Mar 22, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1741
Views: 450767

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

In 2018, NHMike wrote:I wrote the first paragraph of the introduction. I find that it helps to put something down and get the document started as a placeholder.

Mike -

I was wondering how your writing project is progressing. Is it still in the pipeline? Do you have a proposed title or a proposed outline yet?

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