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by O Stoma Mia
Thu Apr 04, 2019 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 fu
Replies: 9
Views: 1388

Re: 5 fu

Hi, My dad is 79 with colon cancer stage 3b with T3N2M0. He had right colon remove, partial colectomy on 2/19/19. Pre surgery, his CEA was 68. He saw his oncologist this week and the doc suggested to do a 5 fu only for 6 months. My dad post surgery, CEA is 2.8, below the range of 0.0-5.0 ng/mL. Sho...
by O Stoma Mia
Wed Apr 03, 2019 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mixed mri results
Replies: 36
Views: 3667

Re: mixed mri results

I have a somewhat technical question about your mother's MRI sessions: Do you know if she has been faithfully following the MRI instructions during her sessions -- i.e. the instructions to not move around during the scan session, and the instructions to hold her breath continuously for the required ...
by O Stoma Mia
Wed Apr 03, 2019 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 534
Views: 227209

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

... I didn't have too much reaction from an earlier dosage of Xeloda although towards the end of the month I started to experience some itch and tingly on my finger tips which felt irritating. With Xelox, I'm guessing I will be experiencing a lot more as it's gonna be spanned across 4 months instea...
by O Stoma Mia
Wed Apr 03, 2019 2:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Preparing a facts & to-do-list for "newcomers"?
Replies: 36
Views: 7962

Re: Preparing a facts & to-do-list for "newcomers"?

Newcomers here may not realize that over-the-counter Tylenol (acetaminophen) can be harmful and can cause liver damage. In some cases involving high dosage levels, it can cause acute liver failure. Extra-Strength Tylenol and Liver Problems Acetaminophen is the active pharmaceutical ingredient in Tyl...
by O Stoma Mia
Wed Apr 03, 2019 12:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting during/after chemo
Replies: 13
Views: 1810

Re: Fasting during/after chemo

... Patients MUST educate themselves as to what is being used in their bodies ... AND .... WHY ... and HOW it works Xeloda (capecitabine) is a pro-drug and MUST be absorbed / metabolized / transported to the tumor site ... http://slideplayer.com/7993434/25/images/3/Enzymatic+activation+of+Xeloda%C2...
by O Stoma Mia
Tue Apr 02, 2019 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4102

Federal law 21CFR50.25 - Elements of informed consent

Before your meeting with the Senator you might want to have a look at Federal law 21CFR50.25. This is the law that outlines the required elements of Informed Consent in the case of clinical-trial patients (i.e., research subjects who volunteer for clinical trials). From this law you might be able to...
by O Stoma Mia
Tue Apr 02, 2019 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Influenza (Flu) after Oxalyplatin
Replies: 1
Views: 609

Re: Influenza (Flu) after Oxalyplatin

(Note that I titled this "influenza" because when I went to search on FLU, it said that these 3 letters are too common to search.)... There are, in fact, some threads here on 'flu', for example: Flu shots? https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=43717&p=311807...
by O Stoma Mia
Tue Apr 02, 2019 2:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 534
Views: 227209

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

... I'm not looking forward to the port. On the other hand, after watching one vein after another blow out in January, and suffering through 3-4 attempts to dig around in my arms for a vein per infusion session -- I think I understand why it is necessary, at least for me. nifty624 - You may have a ...
by O Stoma Mia
Mon Apr 01, 2019 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4102

Re: Oncology and chemo business as a monopoly on treatment

behconsult wrote:.. I got in. Appt with my Senator on April 16 for a 1/2 hour proposal.....after my onc appt in the morning-- Irony. B

Good! I'm happy to hear that you got an appointment. Have you decided what to focus on during your half-hour appointment? Do you have an actual proposal to present?
by O Stoma Mia
Mon Apr 01, 2019 2:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4102

Re: Oncology and chemo business as a monopoly on treatment

... If my senator or state rep calls me back, I will share an earful. I think all the change can occur from a bottom-up initiated force. Requiring a detailed pro-patient informed consent and required disclosure about treatment options. Good luck on your contact with your Senator. If you don't get a...
by O Stoma Mia
Mon Apr 01, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 353
Views: 127456

Re: Calling ALL Colorectal CANUCKS !

... I go tomorrow to meet with the surgeon I am hopeful to get this started but scared at the same time.. Jen43 - Good luck on your meeting with the surgeon. Here are some things you might want to discuss during your meeting: First Meeting with Surgeon https://coloncancersupport.colonclub.com/viewt...
by O Stoma Mia
Sun Mar 31, 2019 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4102

Re: Oncology and chemo business as a monopoly on treatment

behconsult wrote:...Can I hear an Amen?

Yes, I agree with you. What I would like to ask is this: Realistically, what can be done about the current situation? How can we shift to a different paradigm that will give more rights to cancer patients? Any idea?
by O Stoma Mia
Sat Mar 30, 2019 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 534
Views: 227209

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I've been wondering lately if anyone on the board ever did W&W and then couldn't stand the anxiety and then had surgery? Or anyone who had salvage surgery - and how it went? If anyone has seen this, please let me know ..... Yes, I have seen it here on this board some time ago, but I can't remem...
by O Stoma Mia
Sat Mar 30, 2019 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radioactive Sugar Uptake -PET
Replies: 3
Views: 777

Re: Radioactive Sugar Uptake -PET

Cured wrote:...What do you all know about UPTAKE as an indicator of active cancer?

Some SUV threads
by O Stoma Mia
Sat Mar 30, 2019 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Preparing a facts & to-do-list for "newcomers"?
Replies: 36
Views: 7962

Re: Preparing a facts & to-do-list for "newcomers"?

There is another little-known fact that newcomers may not be aware of: If a newly diagnosed patient is prescribed an anti-anxiety drug such as Xanax (alprazolam) or Ativan (lorazepam) , this prescription is only appropriate for short-term relief (from 4 to 8 weeks duration maximum), and only for use...

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