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by O Stoma Mia
Sat Sep 28, 2024 3:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10++ years and counting ...
Replies: 18
Views: 8612

Re: 12+ years and counting ...

Just checking in again. It has now been 12 years since DX. Not much change here from last year, but I noticed a lot of change on the ColonClub website. It's not the same there now as it was 12 years ago. That's all for now. See you next year, same time, same station. Take care, OSM BUMP Just checkin...
by O Stoma Mia
Tue Sep 24, 2024 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Loose ends ..
Replies: 0
Views: 1370

Loose ends ..

It is already September of the first year of the FightCRC/ColonClub merger , and there are still a number of "loose ends" that, in my opinion, need to be taken care of by the two merging organizations. Some of these issues pertain to Colon Club digital and material assets that existed befo...
by O Stoma Mia
Fri Sep 20, 2024 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2A N0M0 cea rising at four years
Replies: 20
Views: 2642

Re: Stage 2A N0M0 cea rising at four years

Welcome to the forum. Here is some information on CEA. A 2019 overview of CEA (Carcinoembryonic Antigen) https://www.verywellhealth.com/carcinoembryonic-antigen-cea-797561 "In addition, CEA levels may not reflect what is happening with a tumor at the current time. As cancer cells die, CEA is r...
by O Stoma Mia
Wed Sep 18, 2024 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 27 - sessile serrated polyp
Replies: 22
Views: 22058

Re: 27 - sessile serrated polyp

I took a Cologuard® test and it came back positive. I believe this test saved my life for now. I had the colonoscopy done and they found (2) 7 mm pre-cancerous one tubular the other sessile serrated adenoma. My understanding there are two major concerns with this polyp (1) location-ascending colon,...
by O Stoma Mia
Wed Sep 11, 2024 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR, Stoma, Permanent Colostomy, Oh My!
Replies: 8
Views: 2114

Re: APR, Stoma, Permanent Colostomy, Oh My!

... Of course, I know a ton about this now, so I can say the following: in general ileostomies are regarded as more challenging than colostomies. This is true in part because you have to empty them more often (output is more liquid-y because earlier in digestion and more frequent), dehydration is m...
by O Stoma Mia
Wed Aug 28, 2024 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kimberly Fund 2024 - Deadline August 31, 2024 !!
Replies: 2
Views: 4103

Last chance!! August 31st deadline for this round of Kimberly Fund grants.

Last chance !! August 31st is the deadline for this round of Kimberly Fund grants. According to the 2024 Colon Club website, applications for the Kimberly Fund were suspended last year but were due to resume as of July 2024 How to Apply: Children, with the help of a parent or guardian, whose parent(...
by O Stoma Mia
Wed Aug 28, 2024 11:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kimberly Fund 2024 - Deadline August 31, 2024 !!
Replies: 2
Views: 4103

Re: Last chance!! August 31st deadline for this round of Kimberly Fund grants.

Last chance !! August 31st is the deadline for this round of Kimberly Fund grants. According to the 2024 Colon Club website, applications for the Kimberly Fund were suspended last year but were due to resume as of July 2024 How to Apply: Children, with the help of a parent or guardian, whose parent(...
by O Stoma Mia
Tue Aug 27, 2024 3:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Really Bad Gas and Diarrhea
Replies: 5
Views: 3415

Re: Really Bad Gas and Diarrhea

How many different kinds of diarrhea? https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=60828&p=481822#p481822 . Do you know what kind of diarrhea you have? Could it possibly be due to a viral infection or to a bacterial infection, or to food poisoning? Do you have a high tempera...
by O Stoma Mia
Mon Aug 19, 2024 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgical Leaks
Replies: 1
Views: 2791

Re: Surgical Leaks

Are you talking about anastomotic leaks ? If so, I have already posted my experience with the "anastomosis leak test", but I'm not in a position to share any stories in an article on surgical leaks since I never actually had such a leak. https://coloncancersupport.colonclub.com/viewtopic.p...
by O Stoma Mia
Wed Aug 07, 2024 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kimberly Fund 2024 - Deadline August 31, 2024 !!
Replies: 2
Views: 4103

Kimberly Fund 2024 - Deadline August 31, 2024 !!

According to the 2024 Colon Club website, applications for the Kimberly Fund were suspended last year but were due to resume as of July 2024 How to Apply: Children, with the help of a parent or guardian, whose parent(s) have been affected by colorectal cancer, should fill out this brief application....
by O Stoma Mia
Mon Aug 05, 2024 6:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Camp 2025 (Cleveland, Ohio) -- Is it really going to happen?
Replies: 1
Views: 2918

Colon Camp 2025 (Cleveland, Ohio) -- Is it really going to happen?

According to various recent announcements, there will be no Colon Camp this summer (2024), but there should be a Colon Camp sometime next June in Cleveland, Ohio. Colon Club Members who might be interested in applying for this event should mark their calendars for JUNE 2025 and be alert for the anno...
by O Stoma Mia
Fri Aug 02, 2024 2:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance coverage for Stage IV
Replies: 6
Views: 4799

Some Colon Club book & blog authors

Cindyz - You are to be admired for your goal to publish your Stage-IV memories of 15 years ago. When you finally get your memoirs published you can then join the ranks of others who have also written about their experiences with the Stage-IV CRC journey. Good luck on achieving your goal !! ---------...
by O Stoma Mia
Wed Feb 07, 2024 11:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Uncommon metastasis for colon cancer
Replies: 10
Views: 4325

Re: Uncommon metastasis for colon cancer

There's an organization in Europe that publishes subscription-based e-journals, where each issue is dedicated to a different medical topic. One of the latest topics is "Remote Lymph Node Resection": Management of Surgically Accessible Lymph Nodes Beyond Normal Resection Planes Abstract Thi...
by O Stoma Mia
Wed Jan 31, 2024 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what is purpose of this forum?
Replies: 29
Views: 7755

Re: O/T post

I think one purpose of this forum is to have O/T posts from time to time... For example, here is an O/T post of a Pomeranian pooch having fun on a new segment of The Path of the Flood Trail in Western Pennsylvania ... :D And does the new segment of "The Path of the Flood Trail" still have...
by O Stoma Mia
Sat Jan 20, 2024 1:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PETE’S 10 Year Anniversary
Replies: 2
Views: 1982

Re: PETE’S 10 Year Anniversary

.Hi Julie - Thanks for checking in and telling us about Pete's wonderful 10-year milestone. It's always nice to hear updates from the 53rd Street Gang ! As for Pete's recent toilet problems, they might be related to pelvic floor muscles that become weaker and weaker as we grow older. You might try l...

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